I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Jez13 on September 26, 2013, 10:10:07 PM

Title: For my brother in-law
Post by: Jez13 on September 26, 2013, 10:10:07 PM
Hi Everyone,

I don't personally have a kidney problem, but my brother in law does. He is going to go on dialysis on the 9th of October. I have joined this site to learn from others so I can better support my brother in-law and understand what he is going through. He is going on the urine dialysis (which I think you guys call DP). We live in Australia and he is 33 years old (I am 29). The kidney disease was passed down from his father who has recently had a kidney transplant from his wife (my mother in-law). There is a high chance that my wife can manifest the disease at any time and our son is also in danger. The disease they have has not been identified as it has never been found before (according to the Australian kidney specialists).
He loves soccer, but fears he will not be able to play ever again for risk of damaging the tubing. Aside from that he is on an emotional low and not knowing what to expect. He doesn't really have any motivation or enthusiasm to do anything however I try to encourage him to do things with me as much as I can.

Thanks everyone and thanks for letting me learn from others.

Jeremy
Title: Re: For my brother in-law
Post by: MaryD on September 26, 2013, 10:17:58 PM
Hi there, Jez, from Mary in Melbourne!  And welcome.       :welcomesign;

Where abouts are you in OZ?

I'm on PD too, and they don't know why kidneys have gone AWOL, either.
Title: Re: For my brother in-law
Post by: Poppylicious on September 27, 2013, 02:16:21 AM
 :welcomesign; Jeremy!

Lovely of you to join on behalf of your brother-in-law; sounds like you're all really supportive of each other.  They never really found out why my Blokey's kidneys failed either, although we have been assured it isn't hereditary.
Title: Re: For my brother in-law
Post by: Shaks24 on September 28, 2013, 11:43:43 AM
Hi Jeremy. Glad you joined us and hope you find useful information.
 :welcomesign;
Title: Re: For my brother in-law
Post by: MaryJoe on September 28, 2013, 02:01:57 PM
Hi Jeremy, welcome to IHD! I'm happy that your brother in law has so much family support, it makes everything easier to bear. I can understand his sadness at not being able to do something he really loves, kidney disease is a definite life changer. You will find much information and advice here and also much understanding and support.

 :waving;
Title: Re: For my brother in-law
Post by: Jez13 on September 30, 2013, 04:22:46 PM
Hi there, Jez, from Mary in Melbourne!  And welcome.       :welcomesign;

Where abouts are you in OZ?

I'm on PD too, and they don't know why kidneys have gone AWOL, either.

Hi Mary, we are Sydney-ites haha.

How are you finding life on the PD? Did you start to feel much better once you started because your kidney function was very low before, or does the PD make you feel worse? Are you still able to work and support your family?
I noticed someone is still playing soccer on this forum while on the PD. They used some special pouch and wrap around belt to protect it.... but it still doesn't sound convincing. He hopes to play at a less competitive level so long as it is safe for him. Maybe I should post a my first thread on it?

Thanks for the warm welcome :)
Title: Re: For my brother in-law
Post by: Jez13 on September 30, 2013, 04:25:44 PM
Thanks everyone for your warm welcomes. I will try my best to use this forum to help my brother continue to enjoy his life by using this forum to inspire him. Hopefully I could coax him into joining!