I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: LabRat on June 06, 2013, 05:05:56 AM
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Good morning! I found this site while searching for a kidney damage/failure forum on Google a couple of days ago. I decided to join after I discovered there was a section for those of us not quite there yet for dialysis.
My story began in 2011 with a simple blood pressure check. It was right through the roof.. around the 190 mark. My doc chalked it up to white coat syndrome at first, but after the 3rd visit he began to get alarmed and he sent me for my first of many 24hr urine collections.
Despite medications etc, my BP refused to budge, so off to the Internist I go and more labs to do. The very first 24hr collection was brutal.. I had to stop drinking coffee for a week before I could do the collection.. :thumbdown;
Fast forward to June 6 2012 and I finally got my answer as to what was going on.. I was diagnosed with a rare disorder.. Adrenal Hyperplasia. My adrenal glands were producing too much Aldesterone which in turn caused my BP to spike.
A year ago my kidney function was near 90%.. great!! Anyway I had to undergo many more blood tests to keep an eye on things. This past Feb I had noticed my kidney's were now at 59%!! I'm like what??!! More infuriating was that my Internist didn't think I needed to see a Nephrologist.
Back in May of this year I saw my GP and he had my most recent labs from April and he informed me I had Stage 3 kidney failure and he was sending me off to see a kidney specialist. I used to be a taxi driver and I occasionally I had to take passengers into Hamilton to the dialysis centre and sometimes I had to go inside the unit to get my passengers, and most of what I saw just freaked me right out!
Anyway I'm being tested for Multiple Myeloma and Hepatitis A B C, to see if this is the underlying reason why my kidneys have dropped so quick.
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Welcome to you! Great to have you here with us! :welcomesign;
I'm from Ontario, Canada too! :canadaflag;
Hope you enjoy this awesome site! :bandance;
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OK, try not to panic just yet. It is possible to recover kidney function if there is an underlying condition that can be treated.
Having reduced renal function doesn't mean you have kidney DISEASE, so that's a good thing.
May I give you a piece of advice? Please do NOT start researching dialysis at this point in time. That will only cause you to panic, and it's too early for you to do that.
I'm glad you have joined; I look forward to hearing more about what your doctors find and what their treatment plan will be. Please keep us informed, OK? Good luck!
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Welcome to IHD. Moosey is right! No need to panic. But learn about dialysis and the different options as a precaution. I hope and pray it does not come to that, but just be informed, in case it does! MM is a perfect example of getting informed and being prepared. She got right to the point, when her Blessing came calling. Now in saying that, had her "Bean" not appeared, this lady was very prepared through educating herself before hand. She was well prepared to do dialysis!
Your'e not there, so please, do whatever to get them back to functioning again. I believe it maybe an acute problem, rather than a chronic but Im not a professional. Good luck & God Bless & Be strong!!
Again welcome,
lmunchkin
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:welcomesign; LabRat!
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I believe it maybe an acute problem, rather than a chronic but Im not a professional.
Again welcome,
lmunchkin
Oh trust me on this, it's a chronic problem, been dealing with this since 2011. I forgot to mention I am spilling out gobs of protein. I think if it was an acute problem I would have been admitted to the hospital right off the bat.
However thanks for the welcome! :cheer:
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Sorry! What do I know, right? lol Just know that you are on a great site with people who know what you are going through. Everybody here has their own bit of Hell they go through. Doing the best they can. Thats all you can do.
Hope you learn all you can about this disease. Knowledge is empowering. You will be prepared when that time comes.
Good luck to you & God Bless You,
lmunchkin