I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: JonDyson on May 20, 2013, 03:43:19 AM

Title: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: JonDyson on May 20, 2013, 03:43:19 AM

Hi,
I'm a bit of a technical chap and support my wife with her dialysis.
I enjoy Computers, Electronics, Mechanical and general DIY and am a bit of a troubleshooter generally.

I've included Helen's kidney related diary here, so that you can get an idea of our experiences.

Helen's diary: (approximate dates)
1985 - Pre-eclampsia - Premature child (5 weeks early)
1986 - Diagnosed
1989 - Pre-eclampsia - Premature child (born 25 weeks - lived 10 days) RIP
1994 - CAPD
1996 - Transplant - lasted until 2006
2001 - Pre-eclampsia - Premature child (born 25 weeks - 1lb 4oz !!!)
2006 - CAPD
2007 - APD
2008 - Stroke
2009 - Peritonitis - severe
2009 - Haemodialysis - Fresenius (at Leicester Hospital) 3 days per week
2011 - Nxstage Cycler (6 days 20L) and Pureflow

We run our own Computer Workshop business and we have an RV which I have set up for Nxstage Cycler and bags.  The plan is to be able to grab a long weekend away now and again, without any planning.

Jonathan

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: boswife on May 20, 2013, 10:01:42 AM

So neat to hear your still goen with a good attitude!! :)  I want to welcome you to a great place for friendship, education, and 'teaching'  ;D  Hope to hear more from you...  and,,, thanks for caring for that wife of yours :)

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Rerun on May 20, 2013, 10:10:02 AM

So glad you found us.  How are your children doing?  I'm sorry for the loss; 25 weeks early is huge.  You have been through a lot.  I hope you come here often.

Rerun, Moderator    :welcomesign;

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Sydnee on May 20, 2013, 12:47:14 PM

Hello,

Nice to see you still plan to travel.
Your baby # 3 was born the same year our baby #3 was born. I had eclampsia with him (went blind and had a seizure)

Even with that My hubby made it to dialysis before I did (not that it's a race)

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: papacat on May 21, 2013, 12:02:12 AM

 :welcomesign; Jonathan
Glad you joined IHD. You two have had your share of issues. Your RV setup sounds great. Keep us informed of your trips.
papacat

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Poppylicious on May 24, 2013, 02:24:02 AM

 :welcomesign; Jonathan!

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Wildrose on May 31, 2013, 03:18:58 PM

 :welcomesign;

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: CebuShan on June 01, 2013, 09:20:21 AM

   :welcomesign;
Hope you keep us all informed as to your travel adventures!   :clap;

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Big E on June 01, 2013, 12:06:44 PM

What a great idea to do your nxstage set-up in an RV! 

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: Joe on June 01, 2013, 07:49:11 PM

Setting up in your RV is a great idea! Welcome to the group!

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: boswife on June 01, 2013, 07:54:14 PM

YES indeed it is!!  and i just read over your "how to" and am so impressed!!  Great job and thanks for sharing !!!!!!!!!!!!!!

Title: Re: Carer for Wife - CAPD - Transplant (failed) - Nxstage
Post by: lmunchkin on June 09, 2013, 08:07:46 PM

Welcome & what a clever individual you are.  Glad you joined, we could learn alot about your adventures!

God Bless,
lmunchkin