I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: bostonboxer on February 28, 2007, 07:10:22 AM

Title: New Member
Post by: bostonboxer on February 28, 2007, 07:10:22 AM
My name is Shirley.  I have been on PD dialysis and on the transplant list for 2.5 years.  I learned I had IGA Nephrapathy 11 years ago.  I was told by my doctor that it was not a problem and not to worry about it.  He never seen anyone have to go on dialsys with IGA and sent my home with no follow ups.  Then in 2001 my blood pressure went sky high and my family doctor told me to see the kidney doctor again.  When I went back to the kidney doctor he told me it was too late for him to help me and I should just order my casket.  After hearing this I decide to drive 90 minutes to the a bigger city with a much better hospital.  This new doctor gave me hope and help me stay off dialysis for 3 years. Now I have the best doctor in the world.  He seems to really care about all his patients. : ;D  I am married and have a 14 year old son.  I also have 2 dogs that I consider my daughters.




EDITED:  Moved post to proper thread "Introduce Yourself" - Goofynina/Admin.
Title: Re: New Member
Post by: okarol on February 28, 2007, 07:45:37 AM
 :waving; Hi Shirley,
Glad you didn't give up and were able to find good care!
When you have a chance you could post a photo of you and son and dog-ters!  :lol;

Welcome!
Karol
Title: Re: New Member
Post by: Joe Paul on February 28, 2007, 08:12:09 AM
Welcome Shirley, good to have you aboard.
Title: Re: New Member
Post by: Sluff on February 28, 2007, 10:28:35 AM
Hello Shirley,

What a great name, my mom has the same name. welcome to IHD.

This is the best place to get information about dialysis and kidney disease and it's treatments. With all your years of experience, I'm sure you have plenty of stories to share.

We value your input, so feel free to browse and post as often as you like.


Sluff, Moderator
Title: Re: New Member
Post by: aharris2 on February 28, 2007, 10:53:55 AM
hi Shirley, we met on the chat room earlier today, i have a niece with the same name it's really nice...I'm also glad you didn't give up, doctors can be dumb sometimes. keep coming to chat I'm there all the time if not me then someone else from our great repertoire of personalities including epoman "the boss"...well i just wanted to say  :welcomesign; to our community.

 :beer1;

Rolando
Title: Re: New Member
Post by: Alisa on February 28, 2007, 11:05:57 AM
Hi
I as well am new to the IHD so welcome. Everyonce is wonderful and I have learned so much on this chat is so little time.  Nice to meet you.

Alisa
Title: Re: New Member
Post by: Rerun on February 28, 2007, 11:41:26 AM
Hello Bostonboxer and welcome to IHD.  Please make a post in General Dialysis and explain IGA Nephrapathy.  I have not heard of that before. 

This is the place to learn new things about dialysis as well as some old tricks.  I hope you enjoy the site.  Remember to visit the site to get your dialysis clothes.  www.mykidneygear.com


Rerun, Moderator
       :welcomesign;
Title: Re: New Member
Post by: anja on February 28, 2007, 12:29:25 PM
 :welcomesign; Bostonboxer, to our community!  Glad you kept fighting and now have a great Dr.
Title: Re: New Member
Post by: Bajanne on February 28, 2007, 09:55:25 PM
Welcome to our community!  You really blew me away with that account of how your first doctor dealt with you!  Thankfully, you did not give up!  It is absolutely unbelievable.  Anyway, we are glad that you chose to join us.  We have lots to teach you here, and we have lots to learn from you as well.  PLease keep posting.  Let us know how you are doing.  This is the place to be when you want to vent - you have lots of people who understand exactly what you are going through.
Welcome again.   :grouphug;

Bajanne, Moderator
Title: Re: New Member
Post by: shay_pcb on March 01, 2007, 02:14:54 PM
OMG...I can't believe that doctor told you that!! It's a good thing you found a new one!!  :welcomesign; to IHD!!
Title: Re: New Member
Post by: billoggblog on March 02, 2007, 06:30:43 PM
Hi Shirley, welcome to IHD.  We met on chat room today, (bill from Scotland) I hope you find this site as informative as I have, and look forward to meeting in chat again sometime.

Bill.
Title: Re: New Member
Post by: BigSky on March 03, 2007, 02:16:02 PM
 :welcomesign;
Title: Re: New Member
Post by: kelliOR on March 03, 2007, 06:11:45 PM
Hello Shirley,

very nice to meet you!  kelli
Title: Re: New Member
Post by: jedimaster on March 03, 2007, 07:24:24 PM
 :welcomesign;
Title: Re: New Member
Post by: kitkatz on March 03, 2007, 07:34:38 PM
Welcome to the site.  You will find a lot of useful information here.
Title: Re: New Member
Post by: George Jung on March 04, 2007, 03:37:58 AM
Hi Shirley, welcome.  I too was diagnosed with IgAN and told not to worry.  I had some regular visits and my doctor told me my function was 75% and I would most likely out-live the disease.  Well, less than TWO years from diagnosis, I'm in center (for now) 3 days a week.  Can you say, complete shock?  Nice to have you with us under such unfortunate circumstances.
Title: Re: New Member
Post by: Zach on March 04, 2007, 10:31:20 AM
Glad you joined he community Shirley!     ;)