I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis - NxStage Users => Topic started by: M3Riddler on February 21, 2013, 04:07:59 PM
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NxStage Approved for Nocturnal Use in Europe.
http://www.nephrologynews.com/articles/109311-nxstage-gets-european-approval-to-market-system-one-for-nocturnal-home-dialysis
If only it were to be approved by the FDA, but I think there are too many issues such needle dislodgement that needs to be studied.
There is still no reason why your nephrologist cannot write for extended or nocturnal off label. All I can suggest is if they say no, then keep on them researching the benefits of longer dialysis with hard proof articles. and Dont let down... keep on them about it and it is your right to have the best quality and currently, you are not recieving the Best care possible.
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Why on earth would needle dislodgement be an issue? I use for 8-10 hours at a time, and asleep for most. Do a double loop around the palm of my hand and back 3/4 the way to my elbo. add a small tape on the wrist and 2 total wrap taps on the arm. Can give it a good hard pull and it never moves.
I can roll from, back to side with no issues. Could even walk around if i wanted
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I use three pieces of tape on each needle plus extra to secure the lines. They are NOT coming loose. It feels like I lose a layer of skin each time we remove them!
I also use a leak-detector directly over each needle site. They are super sensitive alarms that will sound at the slightest hint of moisture (blood). I am confident that if a needle does come loose, I will be woken up very quickly.
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I don't do extended as I am having issues with sleeping, although this may improve once I get my super-duper Lazy Boy that I have just ordered. Nonetheless, with a bit of additional taping, not much will change. I tape the wings, apply a tape chevron, which I put low, so I can mould it in around the tube, and then tape on top of the chevron. I use a Hemo-strap at my wrist, loop the tubes down and up around my thumb and the secure up the Hema-strap near the end of it. The good thing about this is that the little velcro pieces that secure the tubes as long as you place the connectors above them, prevents the lines getting pulled downwards. Looping around the thumbs also helps prevent this.
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Needle dislodgements happen incenter when people rely on overtaxed techs, and there have been a couple cases that I know of where people have apparently done it on purpose. I know of one instance (http://www.billpeckham.com/from_the_sharp_end_of_the/2008/08/can-a-blind-per.html) in the home setting by a lone dialyzor.