I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Whamo on October 16, 2012, 03:32:17 AM
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I woke up to find my PD tube flopping around. Does anyone use these PD belts they sell? Are they worth the money? They look expensive.
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I've been using Stickman belts for the last three months and I'm very happy with them. I thought they're were a little pricey, but they are very comfortable and are washing well.
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I got my belts from the Dialysis clinic I go to. They gave me 3 the first time and now gave me one more. I've looked belts up on line and agree they are expensive. But I like mine. Keeps the tubing secure and I don't have to tape it to me. Grumpy
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My tip is for the women, I bring the catheter up the side of my bra and tuck the end into my "cup". I have 2 belts and I sweat under the belt as it rides just at the bra line. It stays very secure there.
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I have used the Stickman belts for the past year and have found the very comfortable. The are a bit pricy, but they do last a long time and wash right up. I have 5 regular ones that I use during the day and one mesh that I use in the shower. Have not had any problems with them at all.
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My center gave me a belt then my mother mad me more. But most of the time I just tucked it in the side of my underwear. I taped it to my belly when I took a shower because I didn't like it hanging.
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I found that I developed a terrible allergic reaction to tape after using it for several months. The Stickman belts were pricey but I bought 7 or 8 of them 2 years ago and they are all still in perfect condition. (They are hand-washed and air dried.) Now I feel uncomfortable without my belt on!
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couldn't stand them. uncomfortable IMO. tucked catheter down my underwear when not in use and just connected up. just automatically adjusted to not tuggin on it. this thing was in for eight years and once healed was well anchored in. if I did accidentally pull on it, it was just uncomfortable didn't hurt.
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I checked out a half-dozen different belts online. I decided to try two "dialysis t-shirts" with pockets for the hose. They were priced about the same as the less expensive belts.
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these sound like a good idea. never heard of these.
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I did some web searching and found a place (Carriagehouse Enterprise) that sells t-shirt with a catheter opening. Since I wear tees to bed I ordered two of them.
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Stickman belts are the way to go! Go stickman go
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I just ordered some Stickman belts. :2thumbsup;
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I got my t-shirts for PD, and they work great.
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Have used Stickman belts for about three years. They work very well, but do sometimes tend to ride up or get caught underneath the waist of my pants. I looked at the Carriagehouse shirts - to me they were quite unappealing.
For showers, I just use some tape. Throw the whole thing away along with my dressing.
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I just received my t-shirts and used one for the first time last night. Fantastic!!! In bed I didn't have to worry where my catheter was, no alarms when I turned over. I bought the tee as a night shirt and if last night was a sign of how well they work, HURRAY
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I use a device from Patent's Pride. It is elastic, and custom-made to your measurements, so it fits well. They sell them in the groups of 3, and they are a little pricey. But, my insurance company paid a porion of it as an assistive device. At night, I don't use anything, just tuck it into my underwear. I have never had a problem tugging on it, etc. I don't use anything in the shower, because it doesn't bother me to leave it hanging.
But after reading about the Carriage House t-shirts, I am going to order one and give it a try.
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Mahalo to the forum for the t-shirt suggestion. Ordered from Carriagehouse and just tried one on and their great! I've used stickman belts for about 2 years and the biggest thing that I see is that there's no belt riding up and down with the t-shirt. :yahoo;
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:thumbup; Shaka, brah, shaka. I like my belts, but yeah, they ride up and down. No problem with the shirts, and they cost about the same. I do like the black belt for use in the shower. I lived in Hawaii for few years, and I really miss it during November. I'm just glad I surfed as long as I did as often as I did.
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I got my t-shirt in from Carriage House and I love it. So much more comfortable than my Patient's Pride band. Although since I only bought 1 camisole, I still wear the PD band when it is in the wash. Now that I have one, I might try to convert some of my t-shirts/camis into something similar. (I sew and have been trying to think of more comfortable ways to secure the catheter, now I have a pattern!)
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During the day, I run my catheter up under my bra at my side and tuck the end in the cup. With a little adjusting it doesn;t show through my top.
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I love the Stickman belt; can hardly tell its there and it doesn't pull like the one they give you in training. Only problem I've found is mine likes to roll up my hips ans bell at times but that could just be cuz I'm a curvy lady. Lol
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Another Stickman patron here :thumbup;
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I have just this minute ordered 2 more. We have had the others for well over a year, they are brilliant.
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When I was on pd I got a patients pride belt. Designed by a patient (Shiela Shaw) and she owns the company. Also your insurance may cover all or part of the cost. I thought it was cool that a actual patient designed it for patients and is running the company.
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I'm fairly sure these belts were developed by a patient as well.
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I have tried several different types of catheter holders and found they all work, but some work better for me than others. I am 6 ft. 2 in. tall. My catheter was modified by the clinic to add a transfer set to work with the Baxter supplies. This makes the catheter/transfer set about 10 to 12 inches long. I am using a Baxter CCPD cycler at night.
PD-BELT by Frank Stubbs Co. Inc. comes in sets of three belts in a package. I probably have used these the most. I found them to irritate me because all the Velcro used in it caused it to stick together and to each other when hanging up to dry. Sometimes I was starting to wonder if I would get one free to use. I would put one on in the morning, wear it all day, use it to hold the cycler patient line to me at night and then in the morning shower. After the shower I would hang up the wet one and put on a dry one. The main issue is that it wanted to ride up and down requiring me to tape it in place vertically.
PD SECURITY BAND by Patient's Pride, Inc. can be ordered in any amount over the minimum 3. I found them to be very comfortable to wear but clumsy to put on and adjust. It is a continuous wide band about 8 inches wide. You step into it and pull it up into place. I had to fidget with it to get my long catheter/transfer set into place in the pocket. I didn't like showering in it because it was so wide and I couldn't easily wash under it. It wasn't designed to hold the patient line at night. I used it during the day and then switched to the PD-BELT for night and showering.
TUCK-AWAY-BELT from Stickman Industries Inc. can be ordered in any amount. This belt can be used for daytime, nighttime and showering. It is easy to use. The two main issues was, one, that it wanted to ride up and down requiring me to tape it in place vertically, two, my long catheter/transfer set was a large loop from the exit site to the pocket on the belt requiring me to tape the loop in place.
V-Neck T-Shirt from Carriagehouse Enterprises can be ordered in any amount. They do have different styles but I bought the V-Neck style. They also have a Shower Caddy belt available because the T-Shirt wouldn't be good for showering. I found out about these from this topic I am posting to tonight! This is the best option for me so far. The only problem I have is that the button hole, Velcro retainers and pocket need to be higher on the T-shirt for me. I will be contacting them to see if they can change the position of these on the T-shirt. The instruction pictures they provide are not very easy to see. I had to use a bright light and a magnifying glass to see the images. I also like their Shower Caddy.
I would like to thank those that posted to this topic with their ideas. This is what makes IHD great.
papacat
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I let my catheter hang loose during my shower; I use the Carriagehouse T-Shirt at night. I don't use the button hole I just bring the catheter up from under bottom of the shirt and secure it in one of the velcro tabs. During the day I bring it up my side, under my bra and tuck it into the cup. That part won't work a guy though. :rofl;
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"I use the Carriagehouse T-Shirt at night. I don't use the button hole I just bring the catheter up from under bottom of the shirt and secure it in one of the Velcro tabs."
JLM, when you secure the catheter, are you actually securing the catheter or the patient line or both?
I called CarriageHouse about a T-shirt with the button hole, Velcro and pocket moved up 3 inches. They said they could do it and I ordered it. Your idea of going under the T-shirt and securing the tubing with Velcro might work for me also. I will try it tomorrow night since I am already connected tonight.
My exit site is about 1.5 inches above and to the left of the button hole in the standard T-shirt.
Thanks for the feedback.
papacat
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I just use one velcro tab fastened between the connection to the catheter and the clamp on the extension line. It takes the "pull" away from my exit site and keeps the line from kinking in bed. I know what you're talking about with the lenght of yours. One summer I was in WI for 3 months and they only had a Baxter clinic there and I had to use an adapter from Fensenius to Baxter about 6 inches) then the Baxter extension was added..
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I just use one Velcro tab fastened between the connection to the catheter and the clamp on the extension line. It takes the "pull" away from my exit site and keeps the line from kinking in bed. I know what you're talking about with the length of yours. One summer I was in WI for 3 months and they only had a Baxter clinic there and I had to use an adapter from Fensenius to Baxter about 6 inches) then the Baxter extension was added..
JLM - I tried your idea of not using the button hole and going under the bottom of the shirt. It made it easier to clean the transfer connection with Alcavis50 and connecting to the patient line because the catheter had more freedom of movement. Thanks for the idea.
papacat
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JLM - I tried your idea of not using the button hole and going under the bottom of the shirt. It made it easier to clean the transfer connection with Alcavis50 and connecting to the patient line because the catheter had more freedom of movement. Thanks for the idea.
papacat
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I have gleaned so much info from here and I am happy you have found one of my hints helpful.
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Patient's Pride is out of business. 10/10/17
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I haven't started training yet (catheter placement surgery complications) but when I asked my clinic PD nurse about a belt she said she didn't like any if them & didn't recommend them. Thank heaven for you folks posting & for I Hate Dialysis.com! I'm going to try Stockman belts first. I don't even have my transfer set yet & already the tube is bothersome. Nurse keeps taping the tube with the pointy end of the plastic clip thing jabbing me all day.
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I went to Stickman site but all it says is Small, Medium, Large & Extra large...no measurememts...I'm a lower plus size WITHOUT any fluid.
Suggestions or your experience on how these belts are sized?