I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: MDLoon on October 06, 2012, 05:05:18 AM
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I just received my access this past week, and was wondering how much time would pass before they would start using it instead of my permacath? Also, how can I tell if I got a fistula or a graft? Finally, when can I expect to have my permacath removed?
:sos;
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I think it took mine about a month to "mature",then they give you one needle a couple times ,then two small,working up to 15 guage in three sizes.As soon as they are certain it's working good they remove the cath.At least that's how my center does it.Getting used to the needles really sucks but they hurt less and less as you get used to it,and it really is better than that cath,Didn't they tell you what you got?I'm not sure about that,never had a graft,if nothing else call the vascular surgeon who did the procedure.Good luck Nick
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You REALLY don't know whether you got a fistula or a graft? Did you ask the surgeon ANYTHING at all???
Seriously, you can tell a fistula from a graft at a distance of probably 50 feet.
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Frank had his fistula done April 30 and it's still not ready to use. He got a cath 3 weeks ago and they've been using that. They are trying to nudge the fistula along by using one needle in it, but it probably only works one time out of three. It's been VERY frustrating.
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I really would suggest that you ask what you have. If you have a fistula, you should be exercising by squeezing a rubber ball to help it along. That won't do anything with a graft, from what I understand.
Please don't take this as criticism but hopefully finding out about your access will be the first step on the road of educating yourself about treatment. You have a far bertter chance of staying much healthier if you "take the bull by the horns" and become proactive rather than sort of being along for the ride. It's your body, get to know it and it will last a lot longer for you.
Take care.
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how soon you can use it depends on whether it is a graft or a fistula.as others have said, educate yourself ever step of he way before you have any thing done. that way you can arm yourself with questions and get answers to them before you have anything done. be your own advocate and don't be a passive participant in your care and treatment.
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A fistula is your natural vessels formed to be an access. The graft is where they put an "artificial" tube in your vein.
They used Johns fistula about a week I believe. His fistula works great to this day.
Please learn as much as you can about this disease. Knowledge is powerful stuff.
God Bless,
lmunchkin :kickstart;
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Thanks to everyone for assisting me in my quest to learn more about being on dialysis. I didn't mean to come off as completely ignorant regarding such matters, but I thought there were no such things as stupid questions. Obviously, I was wrong. Things are scary enough without having to be put in my place for seeking help from people in the know. I thought it would be best to go directly to "the source". I also don't think any of us truly wants to be anywhere near dialysis, but here we are just the same. I truly appreciate your kindnesses and support. :oops;
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It definitely wasn't a stupid question, MD. I have graft that is a piece of tubing about 12 inches long that is bent into a U shape. It's called a loop graft. One side is venous and the other, arterial. A graft can be used almost right away, but better wait a month or so for good healing first. If you have a graft, you can feel that long tubing under the skin.
A fistula starts out much smaller and is built up and made able to be used by exercising it, squeezing a rubber ball to increase blood flow until it is mature. This can take quite a bit longer. Most people get a fistula these days. All the best to you.
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I truly apologize if my reply came across as unhelpful. I've never actually seen a graft so good you good a proper description of it from another poster.
I really would encourage you though, as I wrote in my original post that if you have a fistula, it will mature faster and better if you exercise it. At least that's what hubby was told when he got his.
Hopefully things will progress so you can get rid of your permcath sooner than later. I cannulate my husband's fistula and although it can be a bit frustrating on certain nights, it beats worrying about clotting in a permcath - which was a regular occurrence for him - hands down.
Again, no experience with a graft so I don't know what the pros and cons of those are.
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Not to worry, Bevvy, I understand perfectly. And I'm one step ahead of you already with the squeezy toys. I carry one with me everywhere I go. At the rate I'm going, I will have hands the size of the Hulk by the time They start using my fistula (It's Official now ... FISTULA) :yahoo;
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That is the gold standard for access, as I understand it. And hopefully wherever you are going, if you're not training for home hemo will establish some buttonholes for you so you can self canulate (or have a permanent partner do it for you).
Keep working at it - I look forward to your posts about your progress.
Bev
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MD, please except my apologies, if I said something negative. That is not my intent at all!
Again my sincere apology,
lmunchkin :kickstart;
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lmunchkin -
nothing to apologize for, and thanks for your input :bestwishes;
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MD
I don't think anyone here would deliberately try to put you down for not know the difference between a fistula and graft. BUT as been said - You need to ask questions of everyone that is taking care of you. The Drs, the nurses, the techs at the clinic. Ask them "what are you doing" and why. I'm the type of guy that didn't ask questions from the Dr, just figured they knew the right things. Not now, I not only ask questions, I just in with my 2 cents worth of my opinions. And also, hang around here long enough you get an education on Dialysis and the ups/downs ins/outs and everything else. BUT take charge of your care, your health it is your life and you need to be in control. Grumpy
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Grumpy,
REST ASSURED I am taking control! I have started making a pest of myself, asking al sorts of questions and looking for the elusive answers. My latest quest is to find out why my BP was recorded as 200/102 on Friday, YET NO ONE SAID A THING!
No more backseats for me.....
MDLoon
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Good for you !!!!!!! :clap; I figured out the hard way too about not knowing what is going on with my body. Now I don't have any issues with asking questions and wanting to know why they are doing this or that. Continue to be a pain in their butts, While they might not know it, it is part of their job to explain things. Don't be afraid of the Dr either. I have some that I don't like - (more for their bedside manners) and a couple that I really like and don't have any issues in discussing what I'm feeling and my idea of why I'm feeling like that or things like can we change up some meds for this or that reason. You need to do the same - you know or will get to know your body and when it isn't feeling right or when it is. Don't let Dr or nurses tell you what you are feeling. Some think they know how you should feel - but we are all different, drugs work differently on each of us, our pain is ours alone. While we all share the common problem of kidney failure, we are all different in our pains, our moods, our ups/downs etc. We share our feelings with others here for support and knowledge, but we are all different. Grumpy
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I see where one persons fistula was usable in a week. Mine took ten for it to mature. Fistulas are different for each of us. Its our vessels and they have to grow. Oh and if you get one mapping is a good idea. It lets them know the best place so less cutting. And be sure to exercise it to encourage it to grow. Feel it often too to make sure its working. It should buzz. Docs call it a trill or thrill. If that stops call the doc right away! Good luck with everything :)