I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: plugger on August 23, 2012, 03:32:23 PM

Title: A couple of new organizations to be aware of
Post by: plugger on August 23, 2012, 03:32:23 PM

Dialysis Advocates is an exciting new organization.  As this is being written, the organization is in the process of being formed.  Follow along and watch this much-needed organization grow!
http://dialysisadvocates.com/

Dialysis Patient Advocate Voice (DPAV) is on facebook.  It was started by a couple of dialysis patients fed up with conditions they were seeing.  They have been doing an excellent job amplifying the voices of staff and patients also fed up.
http://www.facebook.com/pages/Dialysis-Help-Dialysis-Patient-Advocate-Voice-DPAV/263412187096063

Title: Re: A couple of new organizations to be aware of
Post by: plugger on August 27, 2012, 05:58:46 AM

Some of the lawyers connected with Dialysis Advocates are involved with the Granuflo (http://www.nytimes.com/2012/06/15/health/fda-investigates-fresenius-for-failure-to-warn-of-risk.html?_r=1) class-action lawsuit.  They would like to hear from people who may have had problems with Granuflo.