I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Working while on Dialysis => Topic started by: BobN on August 01, 2012, 10:05:53 AM
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The book, now available on amazon.com, includes an entire section on working. I discuss hospital staff who tried to push me into disability, convinced that I wouldn't be able to continue my career.
To put it mildly, I was not a receptive audience to that message.
I also talk about a day when I felt lousy because of dialysis the night before and everything just seemed to go wrong, as well as my feeling out-of-touch with the younger crowd and how dialysis plays into that.
And then there's retirement. Ah yes, retirement.Why wasn't I just jumping for joy at the prospect? No more work and dialysis. Yippee, right? Well....
Anyway, if you want to check out the book, here is the link:
http://www.amazon.com/The-ABCs-Big-Life-Dialysis/dp/1477574263/ref=sr_1_4?ie=UTF8&qid=1343840686&sr=8-4&keywords=bob+northam
I would love your feedback on working or other issues. Thanks.
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I have continued to work full time throughout all of my testing and diagnosis with ESRD, while I was in-center and now that I am on home hemo. It was never an option for me to be able to quit because we would lose our house if I had to go on long-term disability, not to mention that I carry our insurance.
I am lucky in that my company is very flexible with my work hours. As long as I am getting things done, they really don't care when I'm in the office. I was also able to work from the dialysis center when I was doing in-center - have laptop, will travel.
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It's great that you were able to continue. I agree. I was 35 when I first had to go on dialysis, and disability was not an option.
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I am a classroom special ed teacher. Been working while on dialysis the last 13 and a half years. Nocturnal is so much better for me than the four hour three days a week dialysis was. Works with the work schedule so much better. Plus I feel batter.
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Hi Kitkatz, good to hear from you again. Hope you're doing well.
Glad to hear nocturnal worked for you. I know of many people who rave about it. Personally, I could never do it, simply because I am not able to sleep while being treated.
I'm on the first shift now that I'm retired, and many of my compadres are out almost before the needles go in. I am really jealous. It must make their treatments go by really fast.
Any others who combine nocturnal and work? I'm curious how that works out for you.