I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: travbug on June 16, 2012, 12:40:46 PM

Title: How low was your GFR ?
Post by: travbug on June 16, 2012, 12:40:46 PM
How low was your GFR when you started PD willing , not as an emergency??   Getting catheter next week.
Title: Re: How low was your GFR ?
Post by: jeannea on June 16, 2012, 02:41:59 PM
Sorry, I wasn't willing. I woke up from my coma on HD, later switched to PD. I was pissed to say the least.
Title: Re: How low was your GFR ?
Post by: MaryD on June 16, 2012, 06:06:25 PM
Mine was bouncing around between 9 and 13.
Title: Re: How low was your GFR ?
Post by: KAF454 on June 16, 2012, 06:16:00 PM
14, dropped from 30 six months earlier. The writing was on the wall and I wanted to get started on dialysis AND get listed before I got in real bad shape.

I'll tell you I felt better physically before I started PD but mentally I was slipping away (i.e poor concentration, forgetfulness, mistakes at work). Now I'm tired but my head is clear and the PD dietary restrictions are much easier to tolerate than the CKD diet was.
Title: Re: How low was your GFR ?
Post by: travbug on June 16, 2012, 07:36:20 PM
Thank you    Mine are 10.   Also foggy head.  Did not even think about dietary restrictions. 
Title: Re: How low was your GFR ?
Post by: MaryD on June 16, 2012, 08:33:46 PM
I have temporarily come off PD (peritonitis).  Last PD drain was Thursday 5am.  Sunday morning foggy thinking is back.

When I started PD foggy thinking disappeared on day four.  Blood tests results were not greatly different to before PD results.  So I wonder it the foggy thinking is caused by something which is not measured by the usual tests
Title: Re: How low was your GFR ?
Post by: WishIKnew on June 16, 2012, 09:36:58 PM
Mine was 8 when I started PD.
Title: Re: How low was your GFR ?
Post by: KAF454 on June 17, 2012, 09:20:36 AM
Travbug, I went from a 1 oz. per day protein restriction to a target of 10 oz. minimum per day. My neph says I can't eat enough protein to suit him. However, triglycerides can get out of hand quickly.
Title: Re: How low was your GFR ?
Post by: travbug on June 20, 2012, 08:53:04 AM
This will be interesting because I also eat very little protein and would have a hard time eating more right away.
Title: Re: How low was your GFR ?
Post by: billybags on June 20, 2012, 12:02:37 PM
My husbands  GFR was  8 and he felt  well, but our neph said he liked to put his patients on dialysis when they did feel OK because they took to it better. I believe he was right.
Title: Re: How low was your GFR ?
Post by: travbug on June 21, 2012, 11:33:55 AM
That is exactly what my neph said also.
Title: Re: How low was your GFR ?
Post by: brenda seal on June 22, 2012, 04:55:37 PM
I am thinking the lower gfr is when starting PD - the less benefit ! Laurie was 7 and six months in he is still not doing well and his creatinine remains high . The sooner you start the better I believe . I am of the firm belief if Laurie had started a year sooner he would be doing a lot better .
Title: Re: How low was your GFR ?
Post by: WishIKnew on June 23, 2012, 07:19:18 AM
My GFR was 8 and I was really sick.  I started PD and noticed a marked improvement almost immediately.  I guess everyone is different.  My brother started in center hemo dialysis  when his GFR was 7.  He had a really rough time for quite awhile before he started feeling a little better.

Wishing you and all IHDers the best!

 :flower; :flower; :flower;
Title: Re: How low was your GFR ?
Post by: wbdoug on June 23, 2012, 06:03:02 PM
My gfr was 9 when I got my catheter. I really did not have any symptoms nor was I sick. Due to the fact that wasn't feeling sick I was hesitant to get it done but after reading many, many posts here and my doctor convincing me, I did get it done before I got so sick that I HAD to go on D.
It turns out it was the smart thing to do and nobody has ever accused me of being smart  :-*

Bill
Title: Re: How low was your GFR ?
Post by: laphoenix on July 28, 2012, 11:24:21 PM
Ditto to everything billybags said.  At gfr 8, I still felt ok but neph likes to get us started while we still feel good - less stressful transition to dialysis.  I initially complained that dialysis didn't make me feel any better but I was told that was because I was never really that sick....
Title: Re: How low was your GFR ?
Post by: KAF454 on July 29, 2012, 09:34:46 AM
I'm glad my neph started me at 14. My last clearance came back at a 6 and I hate to think how bad I'd be feeling without PD.
Title: Re: How low was your GFR ?
Post by: mcclane on July 29, 2012, 04:11:10 PM
willing to go on pd, zero

gfr just before going on pd, it was 9
Title: Re: How low was your GFR ?
Post by: rosebudd85 on December 03, 2012, 12:27:48 PM
I started at 11 I was really foggy and bad memory loss and was getting sick to my stomach about 4 times a week.
after I started fogginess went away and so did the puking!  Feeling real good except for the cramping I get while draining.