I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Willis on May 09, 2012, 07:22:09 PM
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Finally, I'm on the transplant waiting list! I first started the process in Dec 2010. They wouldn't talk to me at all until I started on PD and qualified for Medicare which was May 2011. A whole freakin' year wasted with appointments and paperwork. Now I get to wait for real at least...
:bandance;
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:clap; :clap; :clap; :yahoo; :yahoo; :yahoo;
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:bandance;
Happy for you!! Wish you the best of luck and hope your wait is short!
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Yay!!! That's great that you finally did it!
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Finally, I'm on the transplant waiting list! I first started the process in Dec 2010. They wouldn't talk to me at all until I started on PD and qualified for Medicare which was May 2011. A whole freakin' year wasted with appointments and paperwork. Now I get to wait for real at least...
:bandance;
This is terrific news, but I don't understand the reason for the delay. Could you explain it more? Why wouldn't they talk to you until you started on PD and qualified for Medicare? Did you perhaps not have private insurance?
Anyway, congratulations!
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:yahoo;
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Great! We'll wait with you and then celebrate together when you get the call. :2thumbsup;
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The Medicare thing appears to be somewhat standard. I had private insurance through COBRA when I did my testing for the list. They knew that would run out and I would have to be on Medicare. They wouldn't make me active on the list until my Medicare was in place. I did manage to get them to put me on as Stage 7 where I accrued time but couldn't be called.
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That's funny how every center is different. My so is on status 7 at one facility because he only has Medicare and they don't feel that's adequate. Which is why we're switching...,
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I have to say that I agree with Poppy,
:yahoo;
Kinda says it all. :-)
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Finally, I'm on the transplant waiting list! I first started the process in Dec 2010. They wouldn't talk to me at all until I started on PD and qualified for Medicare which was May 2011. A whole freakin' year wasted with appointments and paperwork. Now I get to wait for real at least...
:bandance;
This is terrific news, but I don't understand the reason for the delay. Could you explain it more? Why wouldn't they talk to you until you started on PD and qualified for Medicare? Did you perhaps not have private insurance?
Anyway, congratulations!
Thanks everyone!
Concerning the early delay...no I did not have private insurance. I was a member of a medical co-op that covered major medical like my fistula surgery but it only pays after the fact. All payment arrangements had to be made ahead of time and a lot was out of pocket until the money came back from the co-op which sometimes took months. The transplant center wanted an insurance card (or Medicare) or $15,000 CASH up-front just to get on the waiting list and a $250,000 BOND for the ENTIRE AMOUNT OF THE TRANSPLANT!
Well, needless to say, I don't have that kind of money laying around. So I had to wait about 5 months until I started dialysis and Medicare and then they were all smiles. The rest of the wait since then was mostly just getting through all the appointments to check off all the boxes on the waiting list application. It seems to me to be a somewhat deliberately planned "hoop jumping" process to weed out those who aren't assertive or demanding enough to see it through...not to mention what ever percentage of people die before they even get on the waiting list. I guess that's what some call "Darwinism" in practice.
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Welcome Aboard. :cheer:
Congrats! :clap;
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Those are dumb Medicare rules, but, I am very happy that you are on the list. Good luck and I hope it comes soon.
:yahoo; :yahoo;
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Congratulations Willis! :yahoo; :yahoo; :yahoo; :clap; :clap;
That is great news! Hope you don't have too long a wait.