I Hate Dialysis Message Board
Off-Topic => Off-Topic: Talk about anything you want. => Topic started by: MomoMcSleepy on April 27, 2012, 12:06:00 PM
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Me, too! :beer1;
Ok, so the other day I googled the term "persistent cloaca," something that I do periodically in the hope that enough of us are around that we've started a group. The closest I can find are the ostomates.com folks, but I wasn't too excited to join their site. I know that a lot (or all) of persistent cloaca kids eventually end up in renal failure, so I am posting this in the hope that some of us wind up here. I also hope it shows up when people do google searches and we can find each other. I found someone like me on the "mom's circle" website under anorectal malformations. I am so excited to talk to her, I never meet anyone like me! Mom had a playdate for me once with a girl we met at Children's hospital, but otherwise, no...and it was a little awkward, once the novelty wore off, but I bet our moms had a great and enlightening conversation over coffee downstairs.....
Let's everyone say a prayer for my new friend, she is having some health issues right now, and we all know that that's a life-long drag and hope this most recent issue resolves quickly.
Oh, please find this post and be my friends, ladies (cause you know we're all ladies), and maybe we can start a site where we can share info. just like the IHD kids get to do! :waving;
Just an email exchange with Jen got me the name of a good doctor who helped her! :yahoo;
Private message (PM) me if you're shy. :secret;
Here's hoping....(I wish there was a crossed fingers emoticon... :pray;)
:bandance;
(I never get to use the banana guy....)
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I was SO happy to have read your post!
I'm 26 I too was born with persistent cloaca and congenital solitary Left kidney, my R ovary and Fallopian tube was removed back when I was 12 and I had a small bowel obstruction when I was 17.
Would love to talk to you some more!!
Please email me.