I Hate Dialysis Message Board
Off-Topic => Other Severe Medical Conditions => Topic started by: Sluff on February 09, 2007, 04:02:07 AM
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I have had it in the past and I'm glad it is not chronic for me. Anyone else have it? What medicine do you take to prevent or treat it?
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Is there anything to prevent gout for people who must take Prednisone forever even on dialysis (me) but don't have gout yet?? :thx;
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They made me take colchicine (very Toxic alkaloid), allopurunal, and good old prednisone for the past so many years. I forgot others I took so many years ago.
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I'm not sure what I took last time but the pain was terrible for two days and then after I took whatever they gave me it was gone in half a day.
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I even had to have 2 surgeries on my ankles because of years of calcified gout.
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I have had it in the past and I'm glad it is not chronic for me. Anyone else have it? What medicine do you take to prevent or treat it?
Certain protein sources raise uric acid levels more than others. You might get some relief in moving to sources that are less likely to raise uric acid but its hard to say. ???
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I was getting gout all the time when i got an attack i would have a course of Prednisone but was only allowed it 4 times after that they put me on Zyloprim(Allopurinol) 200mg every day for a few months and because that stopped anymore attacks they cut it back to 100mg a day and so far i have been Gout free hope that continues as you know its really painful.
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Oh my God, gout is incredibly painful. I've had it several times; the first couple of times, I didn't even know it was gout, but looking back, I now see that it was. I was put on allopurinol and colchicine...that colchicine stuff is gruesome. It gives me diarrhea, but I have read that once diarrhea sets in, then you know that you've had enough of it. I had an allergic reaction to allopurinol; I got a rash, but that's all, so my doc reduced my dosage.
I stopped taking it once the gout subsided. I went on holiday to France. We had rented a cottage in a village in Normandy, and I got an attack there. My French is not too good, and no one at the village clinic spoke English, but I managed to get my point across. I was given colchicine; I took it according to the instructions, and once I swallowed it, I decided to read the patient information that came with it; I thought this would be a good opportunity to increase my French vocabulary. I read that the colchicine was combined with....opium...(I couldn't believe it); opiates act as a "binder" to prevent the inevitable diarrhea. I didn't get diarrhea, but my God, I was so sick that I had to go to bed for two days.
I had a gout attack in my knee a couple of years ago, so that's it...I take allopurinol each day, and no more gout.
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I have a gout story....
6 years ago in Dec 2000, long before I started dialysis, I was in the USA (San Diego to be exact).. ironically I was there as my mother had been flown there for a potentially life saving operation to hopefully fix up a embolism caused by DVT... unfortunately once she was there they decided they could not, after all, operate :( Anyway a day or so after that while we were still there more or less on holiday (as much as you can be when your mother has pretty much been given a death sentence when we had gone there with some hope). Anyway I had an attack.. and I had no idea what it was except that it hurt like hell!! I could hardly walk and was in horrible pain.
So, off we went to the UCSD (I think it was) medical center emergency and THEY had no idea whatit was. I told them of my kidney failure but even then they didn't seems to suggest that it maybe gout.. in the end they just said have an anti inflamitory and go away. Well, that helped and I was OK after about a day (thank god) and could fly home.
The doc put me on 100mg Zyloprim pretty soon after and I have had it ever since with no further attacks (hooray!).
I am not sure which is more painful.. gout or a cramp... it's hard to tell since gout lasts a lot longer but is perhaps a smidge less painful while happening. Either of which I don't want to experience again but I am sure Mr Cramp will pay me more visits before I am done.
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Zyloprim is a nasty and dangerous drug. interactions with some immunosuppressives can be lethal.
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Gout is sometimes called metabolic arthritis) It is a disease where monosodium urate crystals are deposited on cartilage of joints, which causes inflimation.
Normally, (are any of us normal) the human bloodstream only carries small amounts of uric acid. However, if the blood has an elevated concentration of uric acid, uric acid crystals are deposited in the cartilage and tissue surrounding joints. Elevated blood levels of uric acid can also result in uric kidney stones.
Foods that are high in uric acid are meat, fish, dry beans, mushrooms, spinach, asparagus and cauliflower, as well as alchool.
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Foods that are high in uric acid are meat, fish, dry beans, mushrooms, spinach, asparagus and cauliflower, as well as alchool.
Wow I didn't know that! Thanks for that informative post! :2thumbsup; :clap; :beer1; :thumbup; :thx;
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I have had an off and on relationship with gout for years. I have had it so bad, I could not even drive myself to the hospital and had to call an ambulance. But I am so thankful that I haven't had an outbreak recently. It absolutely cripples me. Once I had to use a wheelchair when I was taking a trip home. So humiliating!
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Is there any way to prevent gout or is it something all dialysis patients eventually go through??
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I wasn't aware that so many dialysis patients came down with gout. I thought it was more of a genetic disorder.
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Uric acid levels cause the gout symptoms atleast thats what I was told.
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Zyloprim is a nasty and dangerous drug. interactions with some immunosuppressives can be lethal.
Does this mean if/when I am lucky enough to get a transplant (or rather before) I should
talk to my doc about stopping it?
I don't think I need it that much these days.. I haven't even had an incling of gout since
the one incident over 6 years ago....
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Zyloprim is a nasty and dangerous drug. interactions with some immunosuppressives can be lethal.
Does this mean if/when I am lucky enough to get a transplant (or rather before) I should
talk to my doc about stopping it?
I don't think I need it that much these days.. I haven't even had an incling of gout since
the one incident over 6 years ago....
The lethal combination of zyloprom and imuran almost did me in.
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I've suffered from gout for over 30 years. The first attack was surprising in its intensity. I had no idea what it was. I went to the doctor and he told me it was gout. He wouldn't even touch my foot. I was prescribed oral colchicine and that stopped the attack. For later attacks I was prescribed oral colchicine (on the label it said to take one tablet every half hour until you vomit) which killed the acute attack and I was then prescribed 300mg of Allopurinol, which I still take. The Allopurinol has kept the gout at bay. When my kidney disease became acute, I couldn't eat anything including my meds. I noticed in less than 3 days a "tweaking" in my left big toe. I forced the med down and within a day, the tweaking went away.
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I've suffered from gout for over 30 years. The first attack was surprising in its intensity. I had no idea what it was. I went to the doctor and he told me it was gout. He wouldn't even touch my foot. I was prescribed oral colchicine and that stopped the attack. For later attacks I was prescribed oral colchicine (on the label it said to take one tablet every half hour until you vomit) which killed the acute attack and I was then prescribed 300mg of Allopurinol, which I still take. The Allopurinol has kept the gout at bay. When my kidney disease became acute, I couldn't eat anything including my meds. I noticed in less than 3 days a "tweaking" in my left big toe. I forced the med down and within a day, the tweaking went away.
As long as Allopurnal can control and contain gout that's great. Did they ever make you take colchicine?
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What does Gout look like? How do you know if you got it?
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What does Gout look like? How do you know if you got it?
Thank you for asking that Angie, i was wondering the same thing... ::)
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author=angieskidney link=topic=2638.msg38710#msg38710 date=1171648
What does Gout look like? How do you know if you got it?
well when i get attack it starts off with a ache and then it get really painful.I get in the foot and it gets really hot to touch, swells up and goes red and it really hurts walking makes it more painful and when you lie down in bed even the weight of a sheet hurts it.
EDITED: Fixed quote tag error - Sluff, Moderator
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If you have deposits of uric acid (called tophi) it may look like lumps under the skin!!
Also i found this info:
How Is Gout Diagnosed?
Signs and symptoms of gout include:
Hyperuricemia (high level of uric acid in the blood)
Uric acid crystals in joint fluid
More than one attack of acute arthritis
Arthritis that develops in 1 day, producing a swollen, red, and warm joint
Attack of arthritis in only one joint, usually the toe, ankle, or knee.
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If you have deposits of uric acid (called tophi) it may look like lumps under the skin!!
Also i found this info:
How Is Gout Diagnosed?
Signs and symptoms of gout include:
- Hyperuricemia (high level of uric acid in the blood)
- Uric acid crystals in joint fluid
- More than one attack of acute arthritis
- Arthritis that develops in 1 day, producing a swollen, red, and warm joint
- Attack of arthritis in only one joint, usually the toe, ankle, or knee.
Oh thank you for that because before this it sounded exactly like Athlete's Foot! lol
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This is one of the signs I knew I had to stop being stubborn and get onto haemo (also not sleeping at night because of fluid overload, what can I say BADGIRL)
I used to go to work in my office in ugg boots cause thats all I could get on my feet, and even a friend of mine gave me some crutchers cause it got that bad to walk.
But ever since I have been on haemo no sign of it, thank god(and me too lol)
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Wow! I am lucky I guess to say I have never had it!
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There's strong genetic factor to gout.
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There's strong genetic factor to gout.
Oh okay. I am learning more everyday! So people who get it have some kind of genetic disease like PKD or Diabetes that leads to Gout or what? My CKD isn't hereditary.
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In earlier times the pain was so bad the victim thought it was a cursed so they used to kill the patient. Some used to kill themselves because the pain was so bad.
I read this somewhere but I can't back it up with documentation.
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omg, reading up on this, i think i have it, at night, when i go to bed, my feet are in sooo much pain, hard to explain the pain though, but if i put my feet down, the pain seems not to be so bad. Is there medication that can help with this? damn, another pill, ugh :-\
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omg, reading up on this, i think i have it, at night, when i go to bed, my feet are in sooo much pain, hard to explain the pain though, but if i put my feet down, the pain seems not to be so bad. Is there medication that can help with this? damn, another pill, ugh :-\
The pain is continuous though it doesn't go away without meds. It is more like Flare ups, goes away for days or weeks and then comes back. Depends on uric acid levels. It is almost as bad as bone pain. I think yours may be bone pain cause I have that too, it is also a symptom of fibromyalgia, yes I have that too. You are probably starting to wonder what is it I don't have.LOL at least I pee. ;)
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omg, reading up on this, i think i have it, at night, when i go to bed, my feet are in sooo much pain, hard to explain the pain though, but if i put my feet down, the pain seems not to be so bad. Is there medication that can help with this? damn, another pill, ugh :-\
The pain is continuous though it doesn't go away without meds. It is more like Flare ups, goes away for days or weeks and then comes back. Depends on uric acid levels. It is almost as bad as bone pain. I think yours may be bone pain cause I have that too, it is also a symptom of fibromyalgia, yes I have that too. You are probably starting to wonder what is it I don't have.LOL at least I pee. ;)
there ya go again with the peeing business, just rub it in why dont'cha, ummmm, strike that last comment, ew at the thought, lol, my pain definetly goes away during the day, there is no swelling, redness or sores, i guess i should just tell my doc whats going on huh? damn, I AM BREAKING DOWN QUICKLY PEOPLE... lol :'( ;) :P
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I was prescribed Allopurinol also, but I was told that I wouldn't help during a painful session, that I should wait until the pain subsided to take it. Were you guys that take it told that as well?
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I was prescribed Allopurinol also, but I was told that I wouldn't help during a painful session, that I should wait until the pain subsided to take it. Were you guys that take it told that as well?
No I don't know what I was perscribed, but I took it right away and within 24 hours the pain was gone.
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I was prescribed Allopurinol also, but I was told that I wouldn't help during a painful session, that I should wait until the pain subsided to take it. Were you guys that take it told that as well?
That what i was told also i have another tablet that i have to take when i get an attack not sure of its name will have a look for it and post later
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Have any of you ended taking colchicine?
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I had my first gout attack about 10 years ago. First it came very seldom, but slowly it started to come more often. I was trying to manage it with colchicine 0.6mg max twice daily. It was not really enough, it took several days/weeks to get rid of the attack, but my nephrologist told that it is max I can take and be safe for my kidneys.
Last year the attacks came even more often in summer I had 2 very painful back to back attacks (about 1 months together) and I could not get rid of it with colchicine, so I called my nephrologist, who prescribed me prednisolone 4mg dospak, which helped.
After that I started taking allopurinol 100mg daily (again max dosage for my kidneys). First I was taking it with colchine, because if you have gout it can make it worse, and then after while I stopped the colchicine. Since then last (10 months) I have had only 2 very mild attacks, which both went away with couple of colchicines.
So at least so far allopurinol has worked very in preventing the gout attacks for me.
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I have had it in the past and I'm glad it is not chronic for me. Anyone else have it? What medicine do you take to prevent or treat it?
I only ever had it once, around my ankle. But it put me off my feet for a week. Which was bad news for a self-employed dog groomer :(
I think the drug they gave me was Allupurinol.
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sorry, double post.
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Thanks for this thread, it is very informative. I have been having increasing levels of uric acid in my lab results, but I have never had an episode of gout. What do you think I should do? My doctors have never said anything about it yet. But I think I should call their attention to it and see if we can lower it. I don't eat any of the foods you cautioned about, except the meat and fish as protein sources. The other things I either don't like , or they are to be avoided on the hemodialysis diet anyway.
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Stay well-hydrated is the only thing I can think of.
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Thanks for this thread, it is very informative. I have been having increasing levels of uric acid in my lab results, but I have never had an episode of gout. What do you think I should do? My doctors have never said anything about it yet. But I think I should call their attention to it and see if we can lower it. I don't eat any of the foods you cautioned about, except the meat and fish as protein sources. The other things I either don't like , or they are to be avoided on the hemodialysis diet anyway.
Bring it to their attention, you do not want to deal with gout pain.
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Dialysis patients are NEVER well hydrated.
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Good point, kitkatz. :2thumbsup;
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I can add myself to the list , luckily i only had one episode of gout and Frusedmide caused it. I got it in both knees , no outward signs but the pain was incredible , i couldnt stand and had to be carried to the toilet (huh) In fact in the end i was crying in pain and at the time didnt know it was gout, a call to my GP and a home visit , 24hrs later ahhhhh, I cant remember the tablets because it was 4 yrs ago but they worked really well !
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You can read about gout and think you know what it is like -- but once you have it, there aren't enough words to describe how much it hurts. Mine started last week, thought I had "stubbed" my toe. Within two days, my foot was swollen, couldn't bend my toes, lowgrade fever and could have nothing touch my foot. Saw the dr. Monday - prescribed steroids for the flare and then will put me on Allopurinal. Pain is much better today, but still have several very tender spots. I have a high treshold of pain, but this was really hard to bear. No way to get relief. I thought it was an old man's disease, but dr. says it is definately a kidney patients disease. They don't tell you when you first are diagnosed how many things are going to go wrong with your body!!! Maybe that is good - I don't really want to know what will go wrong next!
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You can read about gout and think you know what it is like -- but once you have it, there aren't enough words to describe how much it hurts. Mine started last week, thought I had "stubbed" my toe. Within two days, my foot was swollen, couldn't bend my toes, lowgrade fever and could have nothing touch my foot. Saw the dr. Monday - prescribed steroids for the flare and then will put me on Allopurinal. Pain is much better today, but still have several very tender spots. I have a high treshold of pain, but this was really hard to bear. No way to get relief. I thought it was an old man's disease, but dr. says it is definately a kidney patients disease. They don't tell you when you first are diagnosed how many things are going to go wrong with your body!!! Maybe that is good - I don't really want to know what will go wrong next!
Paris, are you diabetic? I used to have problems with Neuropathy, but now i feel that i am losing the feeling in my feet, they are always tingling. Did you get any symptoms like that before your gout? ???
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No, not diabetic. My uric acid levels have been going up for the past year and they didn't want to put me on another med until I had symptoms. I didn't have any pain previously or numbness. Neuropathy can be extremely painful, so I figured it was that. I hope you can get an answer to your problem. I am always reluctant to tell my doctor when things hurt, but I have now learned my lesson. Talk to you dr. - don't let it get worse. Thanks for asking! Take care.
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Well, the foot just kept getting worse. Dr. gave me another medicine. By then my foot felt like it was broken. Medicine worked, but the side effects were horrible. Pain has been gone for 5 days and today I can feel it starting again. Last week I couldn't get out of bed, so I really want this to stop. Don't they just shoot horses at this point???!!!
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Well Thank God we are not Horses.
I have had gout that I have had to drag myself on the floor to get to the Toilet.
It is shocking pain, and I even got given a pair of crutches by a friend of mine !
Go back to your doctor, discuss the side effects and also the pain starting up again.
It will get better, otherwise instead of shooting you we will shoot the doctor! ;)
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Good point, kitkatz. :2thumbsup;
Yes, very good point! My bad. ;)
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Some information I've gathered over the years about gout...it is hereditary. Uric acid levels rise with the amount of purines consumed in food. Most food is broken down into levels of purines and the items in the number one (or worst for you if you're susceptible) are organ meats, scallops, legumes (beans and hearty vegetables), gravies and extracts (oxo), and salted fish such as anchovies and mackerel. White bread and refined white sugars are better for you than whole wheat or browns or naturals (as far as purines go).
I didn't know before reading this that gout was associated with the kidneys! Thanks....
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the items in the number one (or worst for you if you're susceptible) are ...... legumes
Oooooooh, perhaps that had something to do with the gout attack I had. Luckily, I never had a repeat and that was a few years ago now.
Well, I think I'll keep eating legumes, but perhaps consider limiting the intake.
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It was own fault i should have gone on dialysis sooner but i wanted to do things i couldn't do when i was on before. I remember i was working and my wrist was hurting something bad. After going to the emergency room they told me it was gout. The pain was unbearable. They sent me home with pain pills and that was it. A few weeks later it was now in my shoulder, ankle, and hip. Words can't describe my friends. It was during this multiple pain i finally went on dialysis. It was a few weeks after that and it was gone.
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That sounds truly awful Keefer. Just having it on my ankle area was bad enough, it put me off my feet (and therefore, out of work - I was self-employed) for a week.
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Thanks for this thread, it is very informative. I have been having increasing levels of uric acid in my lab results, but I have never had an episode of gout. What do you think I should do? My doctors have never said anything about it yet. But I think I should call their attention to it and see if we can lower it. I don't eat any of the foods you cautioned about, except the meat and fish as protein sources. The other things I either don't like , or they are to be avoided on the hemodialysis diet anyway.
Iamillinger
I have been on dialysis for 10 months now but my kidney condition has been monitored for the last 19 years. 15 years ago my blood results showed an elevated level of uric acid. Although I hadn't developed gout they put me on allopurinol and I've been taking it ever since and have never developed gout. So my answer would be to ask your Doc. to start you on the drug as a preventative measure.
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Well, folks! Here it is - another gout attack!! A lot of it is my fault, as I have not been taking the allopurinol that was supposed to keep it away. This time it went for my big toe (the classic gout region). I have never had it there before. This time my nephro gave me Indomethacin 50 mg. and for the first time, my pain subsided after a day or two. I am accustomed to having this pain for weeks before it finally goes away. I think I will get a presciption for allupurinol and take it!
My nephro said that this medication he gave me is not good for the kidneys but since mine are shot anyway...... Well, it works! and I am glad.
Had spelled the medication wrongly. I did a search and found out it is great for helping during attacks - Indomethacin
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Thanks for this thread, it is very informative. I have been having increasing levels of uric acid in my lab results, but I have never had an episode of gout. What do you think I should do? My doctors have never said anything about it yet. But I think I should call their attention to it and see if we can lower it. I don't eat any of the foods you cautioned about, except the meat and fish as protein sources. The other things I either don't like , or they are to be avoided on the hemodialysis diet anyway.
Ive been taking allopurinol now for fifteen years as a preventitive measure because my uroc acid levels were high. Luckily I've never had an episode of gout. Maybe you need to ask your doc. to prescribe allopurinaol just as a safeguard.
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Allopurinol has been a life saver for me. I have been taking it for several months and have only had one small,short episode of gout. I hated to add one more medicine, but it has made a world of difference. Bajanne, get the prescription -- it will help!
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the items in the number one (or worst for you if you're susceptible) are ...... legumes
Oooooooh, perhaps that had something to do with the gout attack I had. Luckily, I never had a repeat and that was a few years ago now.
Well, I think I'll keep eating legumes, but perhaps consider limiting the intake.
Hi Cyco - Not sure if you have to watch your potassium (off subject I know) but 1/2 cup of legumes contain roughly 1200 - 1500mg of potassium. Specifically, black beans, cranberry beans, garbanzo beans, pinto beans and kidney beans. Just an FYI.. I always knew about the phosphorus but never about the potassium.
Now on th gout - I have had it for well over 10 years. For some reason my previous nephs never diagnosed. My new neph on the old hand, spotted it right away. I have done a massive amount of research on it and here's what I know:
High Uric Acid is an indicator that gout symptoms can happen, but in some people they don't get the crystals and don't have symptoms.
The pain from a gout attack is from the uric acid crystal shedding it's outer protein layer.
White blood cells attack the raw crystal as a "foreign invader" becasue it appears new without it's outer protein layer.
You build up a new protein layer around the crystal and the pain subsides.
Allopurinol works by extracting uric acid from the blood. In kidney patients, the kidney is not usually able to do this. Thus, the allopurinol.
Allopurinol needs to be taken everyday to keep uric acid levels down.
Colchicine works by acting as a decoy so the white blood cells stopp attaking the raw crystals.
This is the reason colchicine iis usually taken at onset of symptoms and repeated later on in the day.
Usually two doses in one day is sufficient to help start to subside the attack.
A pain medicine is usually taken with colchicine, even something as simple as tylenol (no NSAIDS).
There are two dosages of colchicine .5mg and .6mg.
Usually patients take allorpurinol or the colchicine, not both. Consider it akin to steroid or non-steroid protocol for transplant recipients.
So, if you can tolerate allopurinol. Take it. It is certainly simpler than dealing with gout attack.
For me, I had every side effect in the book from allopurinol. Hallucinations, heart palpitations, blurry vision, all kinds of wierd stuff. I was like a zombie. So, I take colchicine .6mg x 2 at onset with 1000 mg of tylenol. And then repeat one more time if needed. THe mpst important thing you can do for yourself for a gout attack is rest. THis way your body can put a new outer layer over the crystals and the attack will subside.
My doc advised me to eat no, none, zip red meat or alcohol. Not even wine. SInce I have done that, my attacks have subsided greatly. Red meat really does it for me. WIthin 12 hours I can start to feel the gout. Also, I don't have typical kidney disease (no high blood pressure, no salt restriction). Mine is from scar tissue from surgery when I was a little girl. So, I am able to stay very hydrated. But, if I slip up - gout kcicks in.
I know this is long, but I was in so much pain for so many years. My gout spread to nearly every joint in my body. If I can spare anyone the pain and agony and the uncertainty of which med to take, I will have felt I have done a great service.
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Hi Lulu
I was very lucky, I only ever had one definite case of gout, and another possible one later down the track. Since my tx, I've not even thought about it.
I don't really have any dietary restrictions any more either, but thank you for that info, particularly re kidney beans as I do eat those quite a bit. My potassium is regularly checked in my routine blood tests.
I wouldn't wish gout on anyone, and I'm sorry to hear you have suffered it for so long.
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Lulu, my neph has me taking both allopuinal and clochicine. They work in different ways and have helped me greatly.
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My gout was in my toes, elbows, knees and fingers. It would just find a place to flare up. I had a knee operation because my knee was blown up and they thought it was a torn miniscus but now I believe it was gout since my knee has never healed properly. Allpurinol and Collechine seem to to keep it at bay. All I know is that it was a horrible pain.
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You can't even to begin to describe the pain. It truly is debilitating. Thank goodness for those two drugs. I haven't had any problems since I started them.
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Just today I remembered to ask my nephro for a prescription for allopurinol. My problem has always been that when the pain stops, I forget I need to take this to keep it away. I will fill the prescription tomorrow and start taking it properly.
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Bajanne, please remember to take it everyday. It will help so much and we don't want you in anymore pain. :grouphug;
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Lulu, my neph has me taking both allopuinal and clochicine. They work in different ways and have helped me greatly.
Hi - Just wanted to make sure I am being heard correctly. Please keep in mind I have done a ridiculous amount of research on gout I am just sharing what I have learned with everybody. It just doesn't make sense that docs still prescribe allopurinol and colchicine to both be taken. It really should be one or the other...Or - if you have both colchicineis best taken at onset of symptoms. But, it just doesn't make sense to take them both because the allopurinol should reduce the uric acid level so that the gout symptoms are virtually nonexistent. Before allopurinol was available people had to deal with the crippling effects of tophi (I am going to a rheumatologist as I believe this is starting for me). I wish I could take allopurinol, but alas I can not.
Anyways, just wanted to make sure that everyone knew that my big long post earlier was not geared in response to anyone. I was just sharing what I know. The only point I am desparately trying to make is don't needlessly take two drugs for the same thing. Allopurinol and colchicine were not meant to be taken together on a daily basis. Some docs just don't know any better. .
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Being a chronic Gout sufferer, I can tell you there is no other pain in the world like it. I get it in various places such as my knees, feet, ankles, etc. Sure, I'm on meds for it, but sometimes that doesn't help. People are right: You can't walk, not even to the bathroom. For me, it strikes in the middle of the night oftentimes with no warning. When I have an attack, I need help getting to dialysis and help getting in the damn chair. The pinch of the needles are welcome relief for the momentary second of distraction from the Gout pain. For me, it takes about 2 weeks to recover to the point of being able to walk. I've seen different doctors over the years, tried every med imaginable, led a purine free diet - but I still get it. I've tried eating fresh cherries to lower the purine, blueberries, etc. It's enough to make me suicidal. Because the pain is so intense, I can't sleep - not even in the chair. So, to top everything else - I'm tired, in pain, and my family cannot fathom why I'm such an asshole when it strikes. I'm the kind of person who wants to be left alone when I'm sick - but life doesn't work that way. My dog is the only that understands me, so I allow her to stay with me when Gout strikes. The only description I can give is this: Imagine the biggest guy you know hammering your joints with a sledge hammer consistently on one side, while someone else stabs your joint with a big knife and leaves it in there on the other. Now, imagine that happening at the same time for two weeks. You might get an idea of Gout Pain.
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The more I read in this thread, the happier I am that I've only ever had the one serious attack - and it wasn't "serious" compared with many of those described here. Sure, it put me off my feet for a week, but it WAS only the once.
I don't envy you regular sufferers. You have my utmost empathy.
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Being a chronic Gout sufferer, I can tell you there is no other pain in the world like it. I get it in various places such as my knees, feet, ankles, etc. The only description I can give is this: Imagine the biggest guy you know hammering your joints with a sledge hammer consistently on one side, while someone else stabs your joint with a big knife and leaves it in there on the other. Now, imagine that happening at the same time for two weeks. You might get an idea of Gout Pain.
This is a very good description. I get it in akk my joint too. It's horrible!!! When it hit my hands it really drove me nuts. I tried the cherries too. I am at the point of going to see a rheumatologist as I am getting the tophies because I cannot take the allopurinol. Have you seen a rheumatologist already? If so, just curious what they said.
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I am SO embarrassed. I lost the prescription the neph gave me. Asked him for another one last week and cannot find it. I checked with the pharmacy and 30 tablets will only cost me $4.50. But I am so ashamed, I am going to find another doctor at the hospital when I go on Friday and ask him to write me up. What scared me is that my uric acid results this week are sky high. I am just priming for another attack. I become a cripple. I don't want it again.
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Do I need to fly down there and hold the prescription for you?? :rofl; I want you to start taking the medicine before you are in total pain! On Friday, get the prescription, go straight to the pharmacy and then post here so I know you have it! Does Kitkatz need to get her big stick? ;D We love you and don't want the gout to take over :grouphug; :thumbup;
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Hold on Paris, if your going, then i am going with you :clap; Bajanne, GO GET THOSE PILLS A.S.A.P!!! ;) Take care girlfriend, WE love you :grouphug;
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My nephrologist passed by with lots of good news concerning my end of month blood results. He also announced that he is leaving the country. So I plucked up the courage to ask him about the prescription. He filled it very cheerfully, giving me lots of repeats. (Of course, I found the last one when I got home, but it didn't have any repeats so that was good).
Now to remember to pass by the pharmacy!
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Excellent, keep up the great labs girlfriend :clap; (now go get that prescription filled) ;) ;)
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Good job re: lab results. Now all we need to know is that you have your prescription and you can start taking the medicine. You know we worry about you!
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My nephrologist passed by with lots of good news concerning my end of month blood results. He also announced that he is leaving the country.
Good news! Glad to hear it!
Is he leaving the country permanently?
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:shy; :shy; :shy; gout again! this time in my right hand. can't even type with my hand. it started yesterday and i just woke in the middle of the night and the pain is severe. for a while the pharmacy had no allopurinol. i asked about it two days ago and then forgot to get it. now i have to deal with this! i will get an Indomethacin prescription in the morning.
i thought it was an infection at first. ihad forgotten about gout..... this is more than a year since i have had it...
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just found a means of some temporary relief - cold water on the area!
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OUCH! Sorry to hear you're in pain :cuddle;
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I am just getting over a bout of gout in my big toe. Ugh! It was painful!. My Neph put me on a 6 day course of prednisone. 6,5,4,3,2,1. The pain was gone after the first two days, but I was told to finish them all. I had been forgetting to take my allopurinol and paid for it.BTW, I was thought to be allergic to allopurinol at first, but my Neph sent me to an allergist who started me off on miniscule amounts and gradually built up tolerance, so now I can take it. Hope this info helps someone as the pain is SO debilitating! Cheers and Merry Christmas!
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I've had only two episodes with gout and we treated it with prednisone too. I take 5 mg daily anyway and for the gout we upped it a bit and decreased slowly. About four days in total as I recall. No reoccurrence in over a year.
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Bajanne, I am sorry you have gout again. It is unbelievable pain. Please take you medicine. At the start of the thread, Goofynina and I were going to fly down there to make sure you got your prescription! She would be telling you to take you medicine. She would be sorry you are going through this again. Sending you love :cuddle;
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I was on Indomethacin for a month and vicodin only at night when I couldn't take it anymore. Ice packs definitely helped me. My toe still hurts though. It's stiff, and when I try to bend it - it hurts. I've been wearing sneakers over a month. Tried to wear shoes and said nope. My first bout was 14 months ago. Same toe. When it was really swollen, I'd sleep on the couch with my foot up on top of the couch. good luck feel better!
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Well, the pain was really awful today. I couldn't even dress myself without help. At dialysis today, my nurse called through to Emergency/Casualty to make things easier for me. I went there and saw a doctor who gave me a prescription for Indomethacin. Since all pharmacies would have been closed, he gave me enough for a few days. He also gave me a prescription for Allopurinol. I have taken two doses of indomethacin, and the pain is subsiding already. I am now typing with both hands!
I was thinking about Goofynina and how she would have dealt with me for not taking my medication properly! Please don't let her know! I promise to take the Allopurinol religiously when the pain is totally gone!
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Goofynina would have :Kit n Stik; :Kit n Stik; :Kit n Stik; you for not taking your meds!
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I can just hear her!!!!!!
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I have gout, wow it sucks. It is so painful. I take colchicine, allopurinol, and from time to time I get a cortisone shot if it is bad enough.
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MandaMe, those are the meds I take and they seem to really help. I will do anything to keep it at bay!
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MandaMe, those are the meds I take and they seem to really help. I will do anything to keep it at bay!
Yeah for the most part it dose keep it at bay. *smile* But it dose still act up more then I would like. Probly 1 to 2 times a month. I know that isn't too bad, but it still gets old after a while. Where dose it effect you the most? It acts up in my right foot the most.
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Toes and ankles - end up on crutches and just can't move. What a stupid thing to have! I thought only King Henry and people like that got it! :rofl; Thank God for medicine!
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OMG!! I have GOUT it is so Painful. This is the first time i have ever gotten it in my knee. I usually get it in my feet but not this time it is so awful.. At first I thought that I had pulled something since I have been working out. But then i got my Blood results from the Dr and he said asked if I had GOUT I said my Feet don't hurt but my Knee does. Come to find out I had it in my Knee.. i do not wish this upon anyone.
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I had it a long, long time ago. I don't know why it stopped but after more than 30 years I still remember how much it hurt. Go ahead and scream. They use to say the pain was equivalent to giving birth. I've never done that so I don't really know.
I too allopure (spell) and zyloprim (I think). One prevented it and one would get rid of it once the pain started. Can't remember which on that either.
I was once consider for kings, etc. and called a rich man's disease. Supposedly that thought it was from a diet rich in red meats and red wines. I stopped eating red meat but and switched to Chardonnay. Later doctors said it had nothing much to do with diet... who knows. OMG, your post brought back some unpleasant memories. I'm thinking about you.
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Thanks
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I've had gout which started about 3 years ago. So far, all that has been needed is aspirin, which I already take due to one previous stroke, and total avoidance of Beef and Seafood (especially crustaceans). Thank God. It was terribly painful. I tried eating shrimp about a year after the first attack and it returned within 12 hours.
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I understand very well about gout BUT (knock on wood) I have NOT had an attack since I went on hemo 2 yeras ago.
Of course I try not to eat the foods I knew was a trigger.