I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: carolyn77531 on February 07, 2007, 07:00:23 AM
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hello my name is Carolyn, im a mother of a 5 kiddos who are so wonderful in my life.one of my kiddos was born with a rare kindey disease she is 15 in esrd..she had a transplant when she was 5...she rejected her transplanted kidney in oct..they could not save it...so, she is back on capd again...waiting to get put back on the list...the thing i hate the most...the waiting...so she can have a normal life..instead of worryin about supplies, blood pressure, dry weight..too much fluid, or pulling off to much fluid....listening to the alarms from the home choice..to me thats the worse part..i imagine she hates it as much as i do.....i bet she gets tired of me handing her meds everytime shes sees me......im glad i found this site...the first time around there were nothing out there like support groups, or even sites like this one...
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:welcomesign;
I can really relate to your kiddo. I was diagnosed with CKD at 9.
I have learned that it is harder on the mother than on the child however. My mom carried a LOT of guilt. I always wanted her to know it was in no way her fault. But mothers tend to feel that way. Hope you don't! Just be there for your kiddo and maybe she can sign up here as well? Probably not. Kids don't like to be reminded about their health but just want to hang out with their friends ;)
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Welcome to IHD Carolyn,
It's great to have you here. Sorry to hear about your daughters esrd. Here we are like family and support each other. A good place to start is in our Caregiver section here> http://ihatedialysis.com/forum/index.php?board=33.0
I know youv'e been there before but there may be new information since your daughter was five years old. Post often,ask questions and browse around.
Sluff, Moderator
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Welcome Carolyn, good to have you aboard.
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:waving; Hi Carolyn,
This is a challenge, you've got a teenager dealing with everything and now this too.
I know my daughter had lots of problems with taking meds routinely. A therapist once
told her "You've got to find some OTHER way to rebel!" I am glad you're here, there's lots
of good support!
Karol
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:welcomesign; Carolyn
I am a firm believer in support, and you will find tons here.
Kim :)
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Hi Carolyn and welcome to our site. I wish this was an adult disease! It is hard enough as an adult. The nice part about being a kid is you get priority (supposedly) on the transplant list!
We have had like 5 transplants of members on this site in January! That is better than my region! I hope your daughter is next.
:welcomesign;
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Hi Carolyn, welcome to ihatedialysis.com. You will find that not only is this a terrific website, this is also an awesome support group. We all here have become one big family with one thing in common, dialysis, :-\ If you ever need help, please do not hesitate to ask, we will be more than happy to help you. Lookin' forward to hearing more from you. :2thumbsup;
Goofynina/Admin.
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:welcomesign; This is a great site.
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:welcomesign; and good luck with everything!!
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:welcomesign; second time around, glad you joined the community!
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Welcome to our community! You have come to just the right place for you and your daughter. We are here for you. This site has been a lifeline to lots of people, including yours truly. There is a lot going on here. Loads to read, but don't just read - post as well, and let us know how she is doing (and how you are doing too). We even have a arcade that she can visit if she likes games.
You two are facing a real challenge, but thankfully, not an impossible one. Just keep on keeping on.
Bajanne/Moderator
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Welcome to IHD, Carolyn; it's good to have you with us. :welcomesign;
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Hi Carolyn,
Welcome to IHD.
Mike