I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis - NxStage Users => Topic started by: bleija on March 27, 2012, 11:12:34 AM
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i posted this on another board but just trying to get some answers
i have had this shopulder pain for the longest time now. It intensifies when i lie down or when i take in deep breaths. It honestly feels likle air, but i dnt know from where. I am on PD, so my first thought was fluid. I did 2 greens the other night, as i usually do, and during the first dwell, my legs and feet were cramping so bad. you know how when u cramp u bend the oppsite direction to get it to release w3ell when i did tht it would initiate several other muscles to cramp, called my nurse about tht told him about my shoulder pain and he tolds me to go down to yellows, so i did, not cramping as bad today or even yesterday, but this pain in my shoulder is worse. My nurse thinks it could be air, and told me to make sure my liunes are primed all the way. And they always are trust me i make sure i hate the feeling of air. but this started when i was on hemo and when i was dealing with pleurisy issues. prednisone would clear everything right up and tht seems to be the only thing thazt this pain will respond to. I would like to avoid prednisone since they give u that after tranplant i dnt want my body to biuld a tolerance for it and then it not be effective whhen i get my transplant. I dnt know what to do but im tired of this pain
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Please go to the doctor; it may be from something else. Don't wait until it's too late. Nurses don't know everything.
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Agree with cdwbrooklyn- it sounds like there is something more going on, especially if you are priming and getting the air out of the tubes. I am on PD as well and the other day I got some air in, but it's cleared up with no issues now. What cycler are you using? I have just received a package in the mail stating that some of the software on certain cyclers is not working correctly. Mine is Liberty...2.7.3 and they are having to send me a new cycler in a few weeks due to the issue of overfilling which can cause pain in certain areas (mostly the abdomen). I would go to my primary, especially since you've had pluresy in the past.
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primary gave me prednisone, buit when i did this before, i would take the prednisone, and then about a week after i finished it, the pain would come back, i did this about 5 times before i said no more prednisone. he gave me something long term, but my neph told me to quit it bc kidney issues. so the pain has gona away on its own for the most part, its back to being managable.... so idk if im gioing to take the prednisone or not
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I don't know anything much about pd.
It could be a nerve problem. I went to a neurolgist almost 2 yrs ago for bad shoulder pain and was diagnosed with brachial neuritis. I was on percocet for two months for the severe pain. Made it pretty hard to sit in a dialysis chair for 4 hours when I first started dialysis.
I chalked it up to a nerve being damaged by the neck line I originally had. I have had to be very careful since the diagnosis and I don't allow anybody to take my blood pressure from my right arm where the shoulder pain was. I actually have my bp cuff put on my leg during dialysis since I can't have a bp cuff on my other arm where my fistula is.