I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: plugger on March 17, 2012, 03:21:11 PM

Title: Front Range Kidney Patient Association meeting March 25, 2012
Post by: plugger on March 17, 2012, 03:21:11 PM

I'm happy to be a member of this organization and I'm looking forward to their meeting on the 25th (mainly because they haven't come to their senses yet and kicked me out):  http://frkpa.org/events/frkpa-meeting/  (http://frkpa.org/events/frkpa-meeting/) In Denver Colorado.

Title: Re: Front Range Kidney Patient Association meeting March 25, 2012
Post by: plugger on March 19, 2012, 06:21:00 AM

Oops, had to fix the above link.

Title: Re: Front Range Kidney Patient Association meeting March 25, 2012
Post by: plugger on March 22, 2012, 04:42:40 PM

Just a few more days until the FRKPA meeting!

Title: Re: Front Range Kidney Patient Association meeting March 25, 2012
Post by: Joe on March 23, 2012, 06:32:10 PM

Moving this weekend plugger, sorry.

Title: Re: Front Range Kidney Patient Association meeting March 25, 2012
Post by: Whamo on April 11, 2012, 09:10:47 AM

So, give us a report, what happened at the meeting?  Anything cool?

Title: Re: Front Range Kidney Patient Association meeting March 25, 2012
Post by: plugger on April 16, 2012, 03:57:49 AM

Turns out I couldn't make it, but here are the minutes from the meeting:

Speaker was Connie Paeglow, MSW – Social Worker from Fresenius.

For those of you who were there – I know you derived much information from Ms Paeglow. She talked about all the duties of a social worker and she talked about other things such as Living Wills, DNR (do not resuscitate), death and dying directives, etc. She had answers for us that we didn’t even have to ask.

Here is a brief description of what your social worker does:

    A social worker is a support person for patients both before and after they start dialysis.
    The main duty of the social worker is to help patients and their families learn how to cope with kidney disease. They help patients adjust to life on dialysis. They advise you of the different options such as transplant, in-clinic hemo dialysis, home hemo dialysis, peritoneal dialysis, etc. They help educate you on ways to enjoy a better quality of life.
    They help patients to know what their benefits are and to advise you on financial situations and insurance issues.

There are so many things your social workers does for you that there are just to many to list. I am sorry you missed her (for those of you who did not attend). It was a very education meeting.

Refreshments were there to be had by all. What was left was taken home by members.

Vince gave a brief talk about the new FRKPA website (frkpa.org). You are all welcome to log on and become a member.