I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Annig83 on March 16, 2012, 08:50:38 PM
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:cheer: :cheer: :cheer: :cheer: :cheer:
So I have moved to Indianapolis, and started seeing a new Nephrologist and being in a whole new center was quite an eye-opener. I've been very very very LUCKY to have had really amazing doctors, and it seems like this new one is going to be just as great as my last one.... ANYWAY...
When I went to meet my new Neph. they had me sit in the Hemo room. I do CCPD and I had never actually been in a Hemo room. I sat in this high off the ground putrid green chiar, next to me was the "MACHINE"!!! Oh my! They had charts and tubing and labels everywhere to show how to use it, and the D nurse even expalined how some things worked. I have never been so glad to be on CCPD, and I don't mean that to sound offensive or anything...I honestly, just felt nervous around that machine, and the thought of having a fistula, and being poked every time and having to sit in that chair for 4 hours... I'm lucky enough to be able to just sleep and have the cycler do all the work while I'm snoring ZZZZZZ's. I just wanted to say that all of you dealing with Hemo I give you props!!! (And I mean I give all of us a pat on the back too...this was just quite an eye-opener for me!)
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ya know, sometimes i tell my hubby... "your so brave"! we do home hemo and he tells me "im" brave cause i do the sticking..lol Yea, i give props to all who deal with this as well.. Eather way you go, it's REALLY something isnt it.
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I am told that I snored while on dialysis. The good news is that everyone around me knew I was alive.
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lovely Gerald, I'm sure that made them feel .... alive. Yes Annig83, I agree and think everytime I come out of there; good job done. But thanx for that anyway, and 'enjoy' ccpd for as long as you can.
love Cas
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I had to do 6 months of hemo before being switched to PD due to some intestinal infections. Luckily I had a catheter and didn't get stuck. But for the people who do hemo year after year, I am with you. I used to dread going. Not that I love PD but it is slightly better.
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Thanks for the props! Thirteen years on hemo. Still going and going.
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Even though I was blessed with a preemptive transplant, I think about dialysis all the time because chances are, it's in my future. I could never do HD. I bawl every time I have an I.V. and those needles are "only" 20 something guage. A 15 dialysis gauge needle looks like a toothpick!!! I have a pretty good idea what HD would be like with a chest cath because I had to have plasmapherisis treatments for a few weeks post transplant. That was scary as hell and the risk of infection hanging over my head was almost debilitating.
I have so much empathy and even more respect for
HD and PD patients!!! :bow;
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oh thank you Sax-O-Tix. But I might be okay with the 15/16 G needles, but I'm still huffing, and puffing about the flew-jab or something.
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When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad :flower;
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Is that true BigBill?
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True enough
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I've now moved onto 14 gauge. Known locally as crowbars!
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When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad :flower;
Same here Bill. No other choices available. J did very well with PD though, for 5 years. But after bouts with Peritionits, he could not do PD anymore. Thanks for the props Anng. It is a very difficult thing to watch and Im sure for the ones who have this, to go through it. Enjoy your PD while you can. Some have been doing it for years and some are not so lucky! Hemo was definately harder for me to learn than PD, but both were challanging to us.
God Bless,
lmunchkin
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however we look at it, its hard, but it saves our lives (for as long as it lasts that is) When I'm in my laughter-therapy phase (which actually works!!) I say to myself that I choose to do this. I could also choose to stay at home, and die, but I choose to stay a live, cos its still worth it.
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Thanks for the props, Annig! I agree with cassandra and bigbill. I'm willing to do whatever will keep me alive. I can't afford to worry about the size of the needles or the fact that I can't have my fill of pizza. It's my choice to live as long and well as I can. Not a candidate for transplant or PD...
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Cassandra amen to that! Whatever it takes to keep on going. I like the idea of "laughter therapy".
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Hey, dialysis is better than hearing the wife complain when the Queen is in a bad mood.
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When you're told that you can't have a transplant, you're not a candidate for PD, all the sudden those 15 gauge needles don't look so bad :flower;
Amen to that!