I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: krismimo on February 23, 2012, 07:43:45 PM
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Okay here goes, it has been hell the last couple of weeks. My husband has had End Stage Renal Failure for almost six years now. A few weeks ago his sight went bad, we went to the doctors twice and they said it was fixable and he will have laser treatment next week. At the same time he is scheduled for a surgery due to his glands over reating and they are in the process of testing him to remove those glands that are over producing hormones. While we were prepared for the surgery the doctors notice that my husband had this abnormal bloating which concerned them, we thought it was due to the over reactive glands which can cause bloating. They were afraid it might be cancerous I'm freaked out of my mind. Although we took a CT scan and they said there is nothing there but fluid (No tumors) I'm so scared to talk to his kidney doctor. The good thing is that he has no bleeding in his stool and or mucas, no nausea, and no tumors, healthy appetite and oddly no weight gain just flluid trapped in his stomach. But he does have vomiting (not from nausea), mostly from coughing. I was reading all kinds of things from something as simple as extracting fluid from the stomach to the possiblity of liver disease. His doctor wants to see him tommorrow and says it is important. I'm scared and my overreactive brain is not helping. Anyone been in this situation before? I could really use some prayer right now.
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Of course I can't guess what's going on because I'm not a doctor, but if he's had ESRD for years and is not on dialysis, could it just be that maybe now it's time for him to start?
ESRD causes bloating, vomiting, etc. and possible the glands you mentioned: could they be parathyroid glands? Those are often overactive in kidney failure. Has he been taken care of by a nephrologist during the last 6 years?
Of course I can say a prayer for you both. Please don't feel too upset til you know what's going on. It might be OK after all. All the best to you.
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There are just all sorts of things that it could be. Try to think positively, which I know is really hard. No doubt it's something important to take care of, but it may have a relatively easy solution.
Personally, I'd always rather just know what's going on. It's usually not as bad as the places my imagination take me.
I'll be thinking of you and wishing for the best for you and hubby.
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He has been on Dialysis for almost six years and yes he is going in for surgery for the pyrotheorid. Thanks Bevy I'm trying to stay positive but I'm so nervous.
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I'm praying for you both. :pray; I have no idea what could be the cause of this fluid buildup, but "just fluid" doesn't sound like cancer to me. Why did the docs say they think it may be cancer? This makes no sense to me, but I'm no doctor. I hate to think they're scaring you for no reason, but I guess that's better than scaring your FOR A REASON!
Let us know what the docs say, OK? Try to get some sleep if at all possible. I know it will be very hard to relax...
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At first I think they thought it was cancer I dont think it is either, but I just like to know what the heck is going on. I will give you an update. I'am trying my best to keep it together. Thank you for the support!
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I dont know what to say, except keep your chin up and think positive. Soon you will know what is going on and I am hoping it will be nothing important at all. Please keep us posted. Poor guy, End stage for 6 years, he must feel terrible.
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I'm praying for you, Krismimo, and for your hubby too.
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What type of dialysis is he on or even is he on dialysis yet??? I'm wondering if it is PD. My husband got really sick on PD when it stopped working. He basically went blind and had 25 lbs of fluid on. Once he changed to hemo he was fine. If he isn't on dialysis it may be time to start.
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sometimes, an alternative to the pth surgery, is sensipar to lower it. home hemo will do same. just asking is all. 6 years of this you are no doubt quite versed. :grouphug; :grouphug; :grouphug; keep us posted!
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You are right the noob but that medicine is about 200.00 dollars a bottle here and they don't make a generic brand. My husband has been on dialysis for almost six years now, he did clinic 3x a week for four and for about two years we have been doing them at home. Were getting ready to go the hospital as soon as I know what is going on I will keep you guys posted! Thanks again for all the replys and support!
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Sensipar is VERY expensive. Hubby is taking 90 mg a day. The cost is over $1000 for a months supply!! Luckily I have good insurance and we only pay $8 a month. What type of home dialysis is he doing - hemo or PD???
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Thank you all so much for the support! I have been burnt out lately. Our kidney doctor said the fluid is accumulated through inconsistent dialysis treatment and it will go down in a few months. I admitted that have felt over whelmed and we set up in clinic where he will go three times a week and at home for twice a week. I feel so bad but I have been under a lot of stress but at least we know what to do now. Thanks again for the prayers and support.
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I knew it, but I was reluctant to speculate!! It was the only real rational explanation! So, is the neph going to change his dialysis prescription? What will happen next?
You must be so relieved! I know I am! :yahoo;
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I knew it too!!! He was just like hubby was when PD stopped working!! Glad you found some answers!!
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Thanks guys! Well she suggested that If I feel burnt out to do a mixture of home dialysis and clinic so he will be doing dialysis for six or maybe 7 days a week. She said over time the bloating will go down with more consistent dialysis she said by summer it will go away. I'am so releaved and disapointed in myself I wish I could have been a better caretaker but I'm doing the best I can, the lesson I learned is it's ok to ask for help. I love our doctor she was firm but very understanding, and she listened. I'm happy to have her. I think once I get off work I'm going to have a nice glass of wine maybe a couple or maybe something a little stronger. Jeeze louise what a week. The adventure continues thank you for being here you all made me feel so much better. I love this place.
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You shouldn't blame yourself for his "inadequate dialysis". You're not his nephrologist. His nephrologist made a clinical decision to prescribe more dialysis for a certain length of time to address a specific problem. It is essential that you see yourself as part of a team and not as the lone provider of care, and as the member of a team, it is your responsibility to ask for the appropriate help from the appropriate person.
That's great that she addressed your needs and suggested your husband could do a mixture of inclinic and home hemo. So, what will happen next?
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Thanks moose mom I agree with everything you said, I'm still new at this and I'm learning to "work the system" I think for at least two months I will have him go to in clinic for few times a week and do like 2x a week at home or 3x a week at home or 3x in clinic still trying to figure out what is best. I'm just happy that things are getting take care of and he is going ot be ok. I think I'm also going to get a part time caretaker and figure out something for transportation that makes it easier on the both us and were more organized into a routine, I'm learning to work smarter not harder.
Thanks again and any suggestions are welcomed! :)
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Don't blame yourself because it is a team effort. Never be afraid to ask for help. When PD stopped working for hubby we asked for help but it fell on deaf ears. He gained weight, had vision problems and was even to the point of seeing things that weren't there. His b/p was through the roof- 230/130 and his dialysis nurse told him that was normal for a dialysis patient. DUH!! It isn't normal for anybody!! He finally called and said enough is enough I am not doing PD any more. I want a chest catheter put in (he had a fistula that wasn't matured) and I want to start hemo. Within a few days he felt better. His sight started to come back and in less than 2 weeks he had 25 lbs of fluid removed!!
Be very careful with the eyes. After 8 weeks of complaining hubby was sent to an opthamologist. He was told that because of the fluid there was swelling behide his eye and a blood vessel was about to burst and if it did he would be permanently blind. He was dialyized every day for 2 weeks and once the 25 lbs of fluid came off his sight came back.
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Add me in as one of the relieved that this is a fixable thing. Sounds like the team is coming up with a plan. Just try to keep close tabs on things and if part of the plan isn't working for you, just keep insisting on more help. Sometimes that's hard but I figure it's much more efficient to get some help before things end up in an emergency situation.
Don't take this as a failure on your part. We're not medical professionals, or at least I'm not. All we can do is our best to keep our people as healthy as we can, while making sure that we work enough to pay the bills and look after most everything else going on in life.
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Oh Krisimo, I know exactly how you feel! Husband started out on PD then it fizzled out. He went in-center for almost a year, when we started NxStage at home. I work a job during the day, then come home a put him on machine for 4hours. I was geting so frustrated and just making things harder on myself than I should have.
Eventually, I started to not look at it as a job, and made it a "fun" time for us both, so it would not be such a hardship for us both. Yea it is no picnic, but with a different approach/attitude towards it, it does seem to have gotten better! Sometimes I just get up in bed with him and we watch TV, play cards, monopoly or whatever. It helps pass the time away and the stress of it seems somewhat eased.
Don't blame yourself, dear! We have all been through that too! You do the best you can with what you got! That's all any could ask for.
Please take time for your self so that you won't fall sick or something. He has this disease, but needs to know that you are living with it too. Just continue to do your best in his care! He knows and understands that this is hard for you, trust me! He didnt ask for this for your lives, and neither did you.
Take care and let us know how we can help.
lmunchkin
:kickstart;
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Oh my goodness! A blood vessel did pop in his eye and he has trouble seeing! But the doctors said it was fixable through laser treatment. THey didnt say anything about blindness I hope he weill be ok! As far has his weight it is the same it has not changes really, the fluid is in his stomach which they said is the most manageble and shoulde go away. I'am starting to think that the fluid and the eyes are connected. Maybe something to think about, I'm so happy for you that his vison returned.
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Wish i had been here for suport sooner,,,,,,,,, but!! im here now and one thing i can add is that bo (hubby) also has had blood vessles break in his eyes. and yes, for him anyway, it is renal related, but, not fluid overload. They burst, he gets them cartorized, and then hasnt had that now for at least 2 years. Didnt effect his sight except a tad until the blood drained out. (dont know where it goes, but it does) He said he coud see the blood in there, or a dark area in his eye. It was weard and scarred me more than him as he has more confidence in drs than i :shy; I love his optometrist and did have trust, but still, well, ya know, im a worrywart. So, that part is prob just fine as well as the overload. Dare i mention that hubby had overload in his... ah hem, testy sack.. (dont know that is correct termiage..lol) Now that was nearly funny, though terrified him. Once again, that water will find some pretty sneakie places to hide so we just now take real care to keep it off as best we can.. It was real incentive to not over drink..lol Im so glad Your getting help, and CAN do the incenter and home to accomplish what ya need done. All the best, and though i couldnt give prayers sooner, im sending now :pray;
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"TESTY SACK"!!!
Oh lordy, that's bloody brilliant! I haven't smiled in 7 days, but now I am. :2thumbsup;
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krismimo,
So glad this is something that can be resolved with some time. Don't get down on yourself. It's really not your fault and your hubby is so lucky to have such a loving spouse that will care so much and worry so much! But, you gotta stop that worryin' part!
God bless
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What a relief and what good news!!! :2thumbsup;
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When hubby had 25 lbs of fluid on there was no fluid to see . No swelling at all. It was hidden in his blood vessels. Keep a close eye on your "hubby's eye". Hubby has to go get his checked every 9 months with the opthalmologist.
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Interesting point about the eyes. When hubby was completely dehydrated before he came off PD onto hemo, he was having problems seeing, his vision was quite blurry and his eyes felt dry all the time. The optometrist suggested some drops and so forth. When his fluid stabilized - he actually went up about 8 kilos as they were not taking any fluid off during hemo for about a week - he could see just fine, no more drops. I guess it would be similar with too much fluid. Definitely something to watch if it's an ongoing issue but hopefully they'll get him sorted out and he'll be doing much better.
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BW...I love the termiage! Keep it coming, kiddo! Thanks for the grin.
Krismimo, the blood vessel issue should clear up once he is getting good dialysis again. Hubby also experienced this at the end of his PD stint. Once he switched over to hemo, he has not had this happen again. So glad things are getting better for you. Don't be hard on yourself.....you are just one person on the team. :cuddle;
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HAHAHHAA testy sack so very funny! Thanks again for all the support, we have been consistent with the dialysis for last few days hubby says he starting to feel much better. Tomorrow we go in for Pre Op appointment for his Pyrothyroid glands he is sch for surgery for the 6th. This week is going to be crazy between him going to dialysis and being at the hospital almost everyday. He has is laser surgery (for his right eye) this Friday finally after a month! Ever since we have been married hubby hasn't been under the knife this is the first time and I'm a little nervous and I just want things to go smoothly. :)
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UPDATE!!!!! So we went in for the Pre Op today and it went ok as expected. His potassium is high and if he doesn't get it under control by next week they will postpone the the PTHD Surgery. As far as his stomach goes, he has to do a colonoscopy this Wednesday (Part of Pre Op). Only problem is he is a kidney patient. He will do In center tomorrow so maybe I could ask them. Please keep the prayers coming along they are a big help. I'm looking forwad to his laser surgery this Friday. I'm already wiped out and it is only Monday. But I count m blessings, it could always be worse. I have also decided that I think I want to to the mix between In center Hemo and at home a few more months if they can take him. I'm thinking for the rest of the year if possible. lix 3x a week there and 3x a week at home.
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that is so great if you can do that. Hope all the surgeries and procedures go well! :)
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Yes that would be great if that can be done. The only draw back is that I think In-centers try to "rush" his blood threw machine instead if slowing it down some! I know most run a very high blood flow rate and that could not be good for his heart! But maybe this clinic is different! But please be mindful of it Kris.
You are doing a good job and Im praying strength for you both!
God Bless,
lmunchkin
:kickstart;
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just a note on this (ie the running faster in center) ... we have had to go in for transfusions a couple of times latly and they run the speed i ask them to. and with no fuss about it. I think being 'hommers' as well, we have more 'say' in what we want. Check that out :)
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You are so right Boswife. J. aint been back in-center, but if he does for some odd reason, I hope they listen when I ask them to slow down. Most the clinics around here are full, and thus, the rush to push them through! You know "Assembly Line" effect!!
I just wish they offered Nocturnal In-center like Looney, but it would be difficult, cause of my job!
lmunchkin
:kickstart;
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UPDATE: :thumbup;Ohh Ok good to know I'am meeting some of the people at his new in center for the first time. So it is good to know. He had his colonoscopu today no cancer! Yay alhtough they did run test on his stomach he still has too much fluid. but it has gone down some, were trying to krank out the dialysis treatments in between. His eye appointment is this Friday and on Tuesday he is suppose to have his PDTH surgery. So far...so good. Thank you for all the support! :)
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Great!!! I know that eases some tention on you! Still praying that fluid will be removed soon. That fluid can be a stickler sometimes. It can get on the lungs, heart ect..... Want to continue to remove it.
God Bless,
lmunchkin
:kickstart;
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Minor UPDATE: About to get off Work Hubby is at In Center Today. They are so nice and helpful were about to get a new machin in about a few weeks. Now tomorrow is another big day. Hubby has not been able to really see fore almost a month now. Two eye doctors looked at his eyes and said it was fiaxble now tomorrow his right eye is getting the laser procedure. I'am so anxious I hope he can see again. Thanks again for all the support. This weekend is going to be a long one, THen on Tuesday he is sch for surgery for Pyra theroid surgery. So far things have been going good. Thanks for all your concern and insight. I will keep you posted. :)
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:sarcasm; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant; :rant;
UPDATE!! We have been waiting for this eye appointment for 1 month. The eye doctor cancels and the nearest and or closet appointment is toward the end of the month! Which means it will be about two months since he has lost his sight. I'm so p****ed off right now I'm seeing red. On top of that his PDTH surgery almost go cancelled bc the surgeon is still sick. My husband is so upset he just went to lie down. I wrote a long grievance complaint at out hospital. We can't go to another hospital because he is going in for surgery on Tuesday. I just feel so beat down right now for him. I want to cry out of frustration. But what is the point. We have to wait regardless and the result is just the same. SIGH happy friday my a**. lol
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Sorry this is happening!!! It makes me mad too when things get cancelled and then can't be rescheduled until much later.. I called the dialysis nurse today to see what hubby's last PTH levels were. It had gone up from 1300 to over 1900!!!! He is taking 90 mg of sensipar a day. They will increase it but his calcium needs to be higher before they do because sensipar lowers the calcium. Looks like he may be heading for surgery to have the parathyroid removed GRRRR!!!
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unbelieveable! Im really not good with things like that. It's so hard to wait and then this!! wow! I hope that mabie you can make morning calls and get an apt sooner??? Thats what i have done. I dont know if they get sick of me calling, but 'usually' we get fit in much sooner than originally told we could. Bless you and bring you rest as well. It's HARD on us when they are not only physically ill, but when it gets to there emotions as well, it becomes unbarable :'( Im so sorry. I wish you well..
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This may be late but if you call Amgen, the makers of Sensipar, the will send you a card to get your meds for 5$ a month if you have a private perscription plan, ie..not Mediwhatever 1-866-711-4162
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I don't know anything about parathyroid function, but I was thinking maybe when his system has had time to straighten out with the change in dialysis, his parathyroid might work alright again? So I was a bit worried, reading this thread, that they were still going to 'whip it out', without giving him a chance to get back to some kind of normality and see if the parathyroid recovered too... and that all the invasive stuff (colonoscopies etc) aren't going to help his body recover either. So maybe this delay might be good? Will they test him again before they go ahead and take out the parathyroid? I mean, it might still need to come out, but given all the other stuff that was happening at once... ? Just a thought.
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Looking back at your first post, all those various possible diagnoses (cancer, for example) were coming from people who weren't renal specialists, but other kinds of specialists? I ask because then you said that you were worried to speak to his renal doctor. Doctors don't necessarily see the body in the same way, and the specialists looking at him in your first post didn't read that list of symptoms as renal. But their decision (to remove the parathyroid) was based on the perspective they had that day, before the renal specialist pointed out the need for more frequent dialysis. So that's kind of why I'm wondering if the parathyroid thing could be a side effect of his whole system going out of whack due to kidney stuff. I'll stop thinking aloud now. Hope you and he are getting some peace today, its been such a horrible roller coaster for you. Hope you had that stiff drink you were planning. :thumbup;
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Me again! Hee hee, I told Gregory about Boswife's husband (Bo?'s) problems with the testy sack. He said, Bl** hell! I've never had nut swell!
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You may be on to something here, Natnat. Sometimes too many "fingers in the pie" in such a short time span, can not be good for you! Allow time for one thing to work, and especially after another lab result, before just jumping in there to remove body parts!
I know of your frustrations, Kriss! It seems it never ends and in some cases, it never does! But we have to do what we must for them. Take several deep breathes before you react. I find myself doing that more often than not.
Thank God, you have your job to go to. It gives time away from all the drama, but it can be exhausting none the less!
Praying for you, and it will calm down, I hope, for you and Him.
God Bless,
lmunchkin
:kickstart;
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Hey all! Right now at work I figured to let you know were doing all right!. Thank you for all your concerns. Were blessed to have a wonderful kidney doctor and we have known for af ew months that he may have to do the surgery. He told her awhile back that he can't afford the sensipar and she said well the other alterntative would be to remove his pdth by coeinsidence his symptoms (although it took awhile) did take affect on him and his hormones are going crazy theyre like in the 2000.
With that and us slacking with his treaments did not helo things either. Everyone has been very cautious, we weren't ready to hear it at the time about 6-8 months ago. Plus over time we learned that even if he didn't do the surgery now regardless when he does receive a kidney he would HAVE to get the surgery anyway. So I l look at is as were getting it out the way. Tomorrow is the big day we have to come in 545am oh joy! We spoke to the Surgeon and she was very friendly and professional she put my mind at ease. Now as for his eye doctor I'am going to have another serious talking to while my hubby is in surgery. Hopefully the can do the laser procedure while he is in the hospital it sure would be a great help and a blessing. I'am a little nervous but I'am ok just want this to get over with and know he will come out ok but something tells me he will. I also found out that the hubbs had to get colonoscopy anyway for his transplant so I look at that has a positive thing especially since they said he is all clear and he wouldnt need another check up for 10 years! :) Any words of wisdom and advice is more than welcomed. :)
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well well, we do have our days laid out for us dont we :cuddle; It's amazing how these stories get to feeling so familiar as pretty soon, it seems we all get around to having such similar *busy* times, and then it levals out for a while. It'll be good to hear when your's levals out and on the upside..Hope the time for you both passes pleasantly as possible...
And Natnnat,,, yeppers, nut swell is what it was lol If it wernt a 'bit' frigthning for him, he would have laughted too... ;D
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amen to that, I think I'm going to be on here while hubby is going through surgery something to keep my mind busy. He is cool as a cucumber. And I'm the nervous one! But I know he will be ok I just have to be patient and pass the time doing other things.
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So today is the big day! it is about 630 am and right now I'm waiting in the waiting room, they will call me when I can stay with him for a bit just before surgery. His surgery starts at 7:30 I think by 9 he might be finished. Well keep those prayers coming they have helped so far I will keep you guys posted later on in the day to let you know where things are. Thanks for everything! :pray; :pray;
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hubby is in surgery right now i will keep you posted when i learn more. :pray; :pray; :pray;
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:flower; :flower; :flower; update hubby is doing great the surgery went well he is in recovery now thank goodness.
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Glad to hear it Kris....glad to hear it! :2thumbsup;
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krismimo, Hope every thing goes OK to-day.
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Thinking about you both all day. Wondering how it is going!
:pray; :pray; :pray;
lmunchkin
:kickstart;
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:flower; :flower; :flower; update hubby is doing great the surgery went well he is in recovery now thank goodness.
Oh, I bet you are so relieved! I'm very happy for you both!
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:bandance; :bandance; :bandance; :flower; UPDATE!!!! So thanks to you guys advice and everyone who was cheesed off bc my husband "eye" appointment was cancelled. This morning (while hubby was in surgery) I went to optomology I tried to see the nurse who was suppose to call to see if they can push up his appointment, however this department is in the basement which means no cell phone reception and I wanted to be in the waiting room area where his surgery was taken place. So I left but in the words of Arnold...I"ll be back! So I left went back to the surgery waiting room and vowed to call when I knew hubbs was going to be ok. A little while later after I saw hubby high on life with the wonderful morphine and knew he was ok, I called optomology again and left a message with the doctor who is suppose to do the procedure. I figured I wasn't going to stop there so later on I called again. This time I got a person explained to her the whole situation (I think they knew who I was) and they bumped up his appointment to this Friday at 3pm. YAY!!!!!!!!!!!!!!.
Edited: Fixed smiley error - paris, Moderator
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awwwwww, sigh of reliefe :flower; Life is good for now :flower;
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You see "Bugging them constantly" did pay off. You go girl!! :cheer: So glad things went well for him! God Bless you both, youv'e been through alot!
lmunchkin :kickstart;
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UPDATE::: Hey all hope everything is well you. I have been MIA back and forth from the hospital and trying to fight off this nasty chest cold. Hubby got everything worked out. He got his stomach drained yesterday he had 9 liters of fluid in his stomach yikes!. He sounds so much better. Yesterday he had a eye consultation and the eye doctor said he has seen better but he certainly has seen worse, today he is going to drain the blood from his right eye and he is going to inject something in his eye. And next month he is going to work on his left eye. The doctor said is should start clearing up in about two to three weeks. I hope my hubby's sight does return. Oh and while he was at the hospital one if the dilaysis doctors did say that they also think that the bloating and his eye sight are related and as soon as he got all that fluid out of his system his sight should return again. Thank you so much for beig there! Now just waiting for hubby to come home tommorrow, more than likely I will be at work. But it will be a nice surprise. :)
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It really helps to be pushy sometimes!! I have had to do that!! Glad things are looking up. Take care!!
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Hang in there Kriss! You PUSH all you can, cause its your hubby and he can't do it right now! He is greatful to have you in his corner, even if he hasn't told you lately!
God Bless,
lmunchkin :kickstart;
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Hey all minor update hubbs had his eye surgery.I missed the eye doctor, but he said he had an anuysem in his right eye. As of right now he said he might get about 40% of his vision in his right eye. Basically he was told he will probably wiill not be able to read or see clear depending. The doctor put a injection shot in his left eye to stop the bleeding he wants to look at that eye ans dee if he can do a procedure on it. So right now things arent looking so great when it comes to his vision it reallys depends how his eye heals in two to three weeks, how do you come to terms with someone you love being partially blind? I'm sort of down but I'm trying to stay optimistic and see what happens. Anyone been through this before? Sigh..
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Kris...not quite the same thing but similar...my hubby also has vision issues and the more fluid he is packing, the worse his vision is. He is diabetic and has "diabetic retinopathy" and has had several procedures over the past couple of years to stop leaky blood vessels and try to improve his vision to a level we can live with. As of right now, hubby can read with very strong reading glasses and is able to drive on days his vision is good. For him, the key is fluid control.
I'll keep you and your hubs in my prayers. :grouphug;
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Okay! I had a feeling especially when it comes to the eyes he is going to be back and forth for awhile. THey got a lot of the blood out of his right eye or at least as much as he could. His left eye the doctor put an injection in his eye to stop the bleeding. Im going to wait and see how his eyes goes he comes home tonight. I'm feeling a little better today just had to revamp my thinking. Were in Los Angeles and I'm thinking of setting an appointment for hubbs with UCLA they have a wonderful eye program and I think I will talk to him about it after he gets settled after a few days. Thank you for your stories and sharing what you know I know I'm not alone.
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Like Looney, my husband has diabetic retinopathy. He is visually impaired in both eyes, but can see slightly. He stopped driving long ago. As long as they are in their surroundings where they are familiar with what is there, they can do amazingly well.
Diabeties is the cause of all his problems. He never knew he was a diabetic till he lost practically everything!
lmunchkin :kickstart;
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Yeah hubby has type 2 diabetes, he has had it for 20 years. I believe he has the same issues with his eyes. So what do you your hubby's do to pass the time?
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So the doctor made a follow up appointment for my hubby for Monday he is he put some type of oil in his eye which is like a gel. He probably will drain more blood out of his eye. The doctor said that my he will need catarac surgery eventually. The left eye hasn't really been touched yet and I get the feeling were just really getting started on his eyes. I think what bothers me in some ways in that the eye sat there full of blood which did more damage to his eye if I really didnt push for him to see anyone no telling what would have happened. I told hubbs to get his eyes looked eye and he didn't get around to it and now here he are I hate saying it but I sort of resent it because now there is more pressure on me. I hate to say I told you so and now I know I dont have to. Sigh I'm really trying to be positive and Im really not sure how much more I can take of his health it has been a long four years, and a longer marriage and getting hit with all this and were barely married two years is to say the least... a lot...The other good news is that they cut down his blood pressure medicine by half. And he can have a little bit of dairy. His kidney doctor works with his in center so she already sch him to have in center dialysis for the next two to three months. She wants to see how is vision is going to be. He has a great Kidney doctor. So there are a lot of good things there.
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Hello.... ANYONE!!
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Krismino, hubby was 8 weeks complaining to doctors that he couldn't see and nobody would listen to him!!! Finally when he saw an opthamologist it was almost too late. Luckily he did get his site back except for scarring in one eye. He can see fine with both eyes open but when he closes one eye he says he has too look around the scaring.
Kidney disease is very demanding. I knew hubby had kidney issues when we married but kidney failure of dialysis was not even thought about. We were married for about 10 years when he first saw a nephrologist and she blew the 2 of us away buy telling us that in 2 -10 years he would need dialysis or a transplant. He was lucky it was ten years before he needed dialysis!! It is not easy at all. Hubby does all his own pushing so I don't need too. Hubby has no other health problems though - just the kidney failure.
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theres so much 'pushing' with this disease and it seems it never ends. We had such a nice long stretch of bo feeling good and back to life as usual and now it's just one thing after another it seems. I wonder who will last longer at this pace. Im so sorry when i hear of others 'woes' because unfortunatly i relate all too well. Bless you for hanging, gather strength whereever you can, and ya got my prayers :pray; AND!!!! It's good to hear 'some' good is happening with ya.. Hold on to that with all ya got :) :flower;
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Kris, I'm glad to read that things are better. Hang in there...you're in my thoughts and prayers. :grouphug;
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Thank you so much I have my days some days I feel ok, others optomistic and some days I want to scream. @ Del that is almost the same exact time length with hubby people kept pushng him aside like it wasn't a big issue. And I know how you all feel we didnt go through much after awhile and now all this stuff hits. Thank you for sharing your stories sometimes you feel nuts like no one can understand what your going through. But I know all of you do just thank you.
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Sorry, Kriss, Ive been out of pocket for a few days. Work is flourishing now and I love it, but it requires alot of my time. So what was this "gel" they put on your husbands eye? Has it helped in any way?
I know this stuff "poops" the big time, but I think we all do quite well all things considering. We havent walked away, have we? I mean come on, we may think about it, but we dont! I know they cant help this, but I also think that they understand our frustrations. I certainly don't want what they have, so I consider myself very lucky.
There are people on this very site, that are alone in all this. So, yes, I consider we are blessed to at least have each other!
God Bless,
lmunchkin :kickstart;
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VERY VERY True muchkin!! UPDATE: So we had the follow up appointment today. The eye DOC (This is the first time we have spoken). Said my husband had a rear case happen and he had the anyrism and it busted and he saw so much blood it was sthe most he has ever seen in his career. He cut out the anurism out his right eye, and cleared up as much blood as he could during the surgery. When he looked at it today he said that his right eye is doing healing much better than he expected it to. And it looks really good. He also cut down the some of the drops he was taking from 3 different types of drops to one bottle.
As for his left eye it looks pretty good, he put an injection in it to stop the bleeding. He said it will take 4-6 weeks for it to work. His left eye has way more promise than his right, but he is still working on the right, as of right now he is giving it time to heal and at a later time he might go back and drain the rest of the blood in there. His left eye has a normal hemorage. And he schedule a laser treatment for his left eye, the doctor was stern but also optomistic that he will be able to read and drive from his left eye. He is waiting for the blood to clear up on it's own if he doesn't he is going in and try to manually drain the blood. The good thing about both his eyes is that (Doc) can actually see clear in both of them. So how I look at it is one eye is doing better than the other and at least it wont mean he will not see at all. So all in all a really really good day to hear such good news and all his other recovery is doing great. :) Thank you for all the prayers and support.
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Awesome Kriss. I know this is hard for you because of your love for him. It just hurts to sit and watch them go through it. But hopefully, once this gets straightened out then you can concentrate on the next thing to be taken care of. All you can do is approach it one day at a time. But please Kriss, make time for yourself. Be there for him, but get out of it for awhile too! He has to respect that for you. He is glad that you are there for him, but I bet, he would like for you to do other things not Kidney or health related.
You are doing outstanding job Kriss. Try not to stress too much and ask lots of questions of the medical experts.
You are not alone in this as you well know! We are here with you girl!
God Bless,
lmunchkin
:kickstart;
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UPDATE So today my hubbyy said he felt tingles in his toes and it wouldn't go away he said his shoulder felt tired like he had been lifting weights. The doctors told him that if he felt those sensations that he should go to the ER. He is at the Er now he has a room and I had to go to work I felt bad but I had to go, they have my phone numbers. They were doing a EKG on his heart to make sure things were ok. He thinks he might stay overnight. I will keep you guys posted.
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:grouphug; :grouphug; :grouphug;
Thinking of you both,
lmunchkin
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Thanks muchkin! He is being discharded the doctor said it was normal and his calcium was low which was good. My mom is picking him up while I'm at work.
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Thinking of you both, sending loads of hugs.
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Thanks all is well just trying to keep my spirits up, hubby goes to eye doc on monday to get laser treatment in his left eye. I'm really hoping he can see a lot better by then.
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Hey All!
His left eye hasn't cleared up as the Doc would like so he is going in to remove the rest of the blood.
We had a feeling this would happen. His appointment is set for May 9th in the morning,so it would take about two weeks to see weather or not it will clear up I'am a bit nervous as usual.... I feel now all our cards our on this operation to go well. I think it will the doctor thinks so. Oh and I also went to UCLA Sunday and gave blood to see if me and hubbs are compatible six more days until we know for sure. :)
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I hope you are feeling better. I just want to give you a big hug and say that I care! :cuddle;