I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Krisna on February 03, 2012, 04:16:43 PM
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I got the paperwork yesterday but the Organ Transplant Clinic is still waiting for approval from my insurance. :bandance; :bandance; :bandance; :bandance; :bandance;
I still have to finish having my teeth pulled. But my doctor agreed that I should get started anyway. There is so much to do! But I got the paperwork to fill out! Of course I'm gonna have to enclose a list of all my surgeries since my last transplant. The should already have all my records from 1998 back. Since that is where I had the last 2 transplants. I also had my very first transplant at the same hospital! For those who don't know, my dad gave me a kidney when I was 8 yrs old. Feb. 27, 1980. Tomorrow Feb. 4th is the anniversary of the second one. I got that one in 1989.
I have always had a very common perfect match. With all three of my cadaveric 6 antigen perfect match transplants the clinics got multiple calls for me after I'd already accepted one. By perfect match I mean not only did all 6 antigens match but all the antibodies did as well! Which means it is less likely to reject right away.
When a blood transfusion was necessary, I have always been adamant about only getting blood without white blood cells so that my antibodies would stay the same.
FYI - My last 3 kidneys failed for different reasons. Number 2 failed because I quit taking my meds for about 6 months when I was 19. Yes, I told the transplant clinic abt it before they put me on the list for the third one. It was a different clinic from the second. I was honest abt it and they listed me. I was 23 by then and had been with my hubby, John for 2 yrs. Number 3 had to be removed due to infection. Number 4 rolled onto its artery cutting off all blood supply for several hrs before ultra sound discovered it. I was rushed back to surgery and it was saved but permanently damaged! So, it wasted fluid and electrolytes. But the 3rd yr I couldn't drink enough to keep up so I would end up in the hospital with dehydration and electrolyte imbalance every 2 wks or so.
That has a lot to do with why I have waited so long to go for another transplant!
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WOW! :yahoo;
I know you must be feeling a bit excited. I hope the wait is short.
Aleta
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WOW! :yahoo;
I know you must be feeling a bit excited. I hope the wait is short.
Aleta
Thanks! I am excited. I have been on dialysis since Sept. 6, 2002. I was the one who wanted to wait this long. Really didn't think I'd ever want another one but I am getting sick on dialysis and there are only 2 ways off dialysis and I'm not ready to die. So that just leaves a transplant! I have things I have to do before I will be able to have a transplant, I'm in the process of having all my teeth pulled. But all 3 of my cadaveric transplants were recieved after short waits. The one in 1989 I was only listed for a couple months and had been on dialysis for 5 months. The 3rd one I was on the list for abt a yr and a half. I had gotten called for 2 before that but my white count was too high for me to get it. And the last one I was only on the list for abt 6 months.
I've lived with End Stage Renal Disease since Nov. 1979! And most people can't tell I'm on dialysis!
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Out of interest, why do they want you to have your teeth removed?
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Wow five!! :laugh: I am on my 2nd transplant. You have to be one tough cookie. :2thumbsup;
I hope this kidney works for you years and years and years and years and years and some more years. ;D
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Out of interest, why do they want you to have your teeth removed?
15 years of low Calcium damaged the enamel and a fear of dentists caused them to all gone bad. Too far gone to fix. I've already gotten the right hand side done.
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Wow five!! :laugh: I am on my 2nd transplant. You have to be one tough cookie. :2thumbsup;
I hope this kidney works for you years and years and years and years and years and some more years. ;D
Thanks! I hope it does too! Everyone tells me I'm tough but I don't know. I've just been doing this for a long time! 32 yrs last November! I've lived 10 yrs longer than predicted by doctors when I was first diagnosed!
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All the best to you, Krisna!
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All the best to you, Krisna!
Thanks!