I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: alchemist on January 05, 2012, 11:42:16 PM
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Hi I am alchemist New member.
I have a GFR of 10.11%
Serum Creatine = 4.9 mg/dL
Potassium 3.5 mg/dl
CKD 5
I need a stem cell transplant it cost 12,500 dollars US.
I need a KIDNEY.
I am not sure how long Iam gonna live. If I had not replied then it probably means I am already.
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Welcome.
I will say you have a bit of a pessimistic view on things. I doubt I have any function left at all. Dialysis keeps me alive pretty good, and has for not quite 8 years.
Are you on dialysis? Or just looking for a kidney? I know nothing about stem cells. I didn't know they were doing anything with them in humans as of yet. Can you give us some info on that?
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I agree with Riki.
Welcome though, alchemist - I do hope your stay is a LONG one.
Since you already posted about the stem cell trial in another thread, which has got a fair bit of debate going, and it seems clear you are very much focused on this as a potential treatment. Have you actualllty been involved in this trial or something similar? Do you not have any love donors for a potential "old style" transplant?
Dialysis does not mean the end at all. Many of us have spent years on D and live perfectly productive lives. Yes, some have troubles from time to time and it's not perfect for everyone, but neither is transplantation in its current form.
I hope you don't pin all your hopes on stem cell research. This is still very very new and unproven technology. I am sure down the track this will become something we, or future generations(more likely) can consider wonderful medical science, but until then we should be wary of something that is both hard to obtain and not conclusively proven in large scale trials and accepted worldwide. To that matter because the science is developing all the time even the treatments, techniques etc are changing all the time as we learn more and more. There is real hope.
Anyway welcome to our community. I hope by being here that you can see that stage 5 is not the end and find ways to live with your situation, dialysis etc and perhaps work towards a transplant and as for stem cells.. who knows!
RichardMEL, Moderator
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Welcome, Al!
From living with an eternal optimist, I've found that a positive outlook really improves quality of life.
But, I, like others, hope you are here for a long time.
:welcomesign;
Aleta
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Hi Alchemist and welcome to IHD,
What did your nephrologist say? Is he the one that told you you need a cell stem transplant? Did he tell you if you don't have one and a new kidney you will die?
Are you actually under the care of a nephrologist?
Just cause you have a kidney disease doesn't mean it's a death sentence. Please tell us more
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Welcome, alchemist! None of us knows how long we're going to live. Most of us focus on what will keep us going in the present. For a kidney patient at stage 5, that means dialysis, getting yourself on the transplant list and staying as healthy as possible. Hold on to the hope for a stem cell transplant, but in the meantime...all the best to you in your journey.
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What ever you decide to do, we will be here for you!
God Bless,
lmunchkin
:kickstart;
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:welcomesign;
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Yes, dialysis means the death to those who do not have money!
I live in a shitty 3rd world asian country the philippines.
I do not have money for dialysis nor does the government have any free health services. It is all false promises.
I am dead before I even have the chance to live. It is so unfair.
anyway, If can not reply to this thread then it means I may have died already.
Damn these irregular heart beats, constant back and side pain. Sometimes, I can not breathe because my lungs get filled with water or what they call as edema and sometimes sudden heart squeezing pain.
I am under a nephrologist Dr.Arnold Tan of Cebu Doctos/Chung Hua Hospital Philippines.
I do not have any available kidney donors and even if I do, I do not have money for it nor is it a guarantee that it will help you get cured or have a longer life.
Most people on kidney only live 3 - 5 years.
The buying and selling of kidney has been outlawed and is now illegal so it is getting harder and harder to live.
Blood pressure is at 145/90.
Creatine is now at 4.9 mg/dl
Poatssium 3.5 mg/dl
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A belated welcome to our community, Alchemist! Please keep reading and keep posting. This is a wonderful place for information, support and encouragement.
Bajanne, Moderator