I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Keith98058 on December 27, 2011, 06:09:00 PM
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Hello all,
Just recently found this board so i'll get to introducing myself.
I have been doing In-center Hemo for 13 years. Diagnosed with ESRD in September of 1998. I was on the transplant list until the 14th of December 2011 when I was told I was permanetly removed from the list. Along the way there was several screwups that kept me from getting a transplant. Twice I had to start over as they lost my records and a few doctor screwups, plus living conditions factor into those 13 years. I will admit that since the 14th I have been angry.. and unfortunately not just a little bit with how things turned out for the transplant list.. mainly because the things that happened were beyond my control.. and with my Health that's not a good option I like to try and remain in control with how my life is.
I am also a Type I diabetic for 35+ years and using a Insulin Pump. Have all the wonderful complications that go along with that and some stubborness when it comes to my Health.. But that Stubborness is what has kept me alive.
I have had 3 strokes since Starting Dialysis and was paralyzed for 3 years. Told I would never walk again, but I showed them how wrong they can be. Went from Paralysis to a wheelchair, then got sick of hitting my head trying wheelies in the waiting room of my treatment center so worked on walking again.. while i'm no olympic runner.. I can walk with minor assist from Leg braces.
Other wonders of Dialysis has to be all the heart attacks I have had along the way as well. I know Diabetes plays a big part in that, but it seems once I started Dialysis some things progressed alot faster down hill then I had hoped for. I stopped counting those after a few dozen, I figured hey this might be bad luck to count. Since then, guess what? No more heart attacks, although I have had to have a few proceedures done to patch me up in that area still. So take that as a lesson.. don't count health issues.. your body doesn't like it.
Now the living condition is playing back into things with the Dialysis and trying to get it figured out with my in-center Social worker but yet again it's looking gloomy. Lately have even been checking out places wooded near my Center for a living situation. I started Dialysis that way and at this point looks like I may be going back to that way as the government has done so many cuts in it's budget. I am only hoping that I don't have to be that down on my luck again because after 13 years I am not in the health that I was then.
I would be really interested in hearing how others are coping with living situations. For me I have no family or friends behind me for support so everything I do, including the will to continue has been for myself. I think i'm rambling now, so I'll stop the introduction before none of it makes sense.
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Hi, Keith and welcome! You certainly have been travelling a long, hard road. Your will to keep going is amazing and your resourcefulness is admirable. Who wouldn't be angry at being removed from the list permanently because of issues beyond your control? Just keep going--keep finding creative solutions to your problems as they come up. All the best to you!
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:welcomesign; Keith. Lovely to 'meet' you but sorry for the circumstances.
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Welcome Keith! I agree this stuff is "krap". But if you are going to be on Dialysis, why not consider doing it at home? Many on this site are doing it and love it! Im not receiving dialysis, but I Dialysis my husband. Just find someone who can be there during your training. Just to see you through till you get good at it, then send them on their merry way! Heck, I believe that would be better than In-center. We love doing it at the comforts of home.
But then again, its what works best for you!
Again welcome & God Bless,
lmunchkin
:kickstart;
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:welcomesign;
Hi, Keith. I am sorry you have been through so much, but it sounds like you are a fighter! That and a positive attitude go far toward maintaining your health.
You'll find lots of support and information here! :2thumbsup;
Aleta
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Hi Keith and welcome to IHD. I also am new to this site and live in Washington state.
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Hi Keith, sorry to hear about your circumstances. I just joined the site and am in Washington state as well.
Wish you the best!
Rose