I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Atooraya on December 04, 2011, 06:52:24 PM

Title: Bummer
Post by: Atooraya on December 04, 2011, 06:52:24 PM
Got news that my phosp is too high. Gotta take renvela......
Are there any home remedies to reduce phosph other than reducing it's intake?
Title: Re: Bummer
Post by: Joe on December 04, 2011, 07:10:39 PM
I have the same issue and have both Renvella and Calcium Acetate. I do the Calcium Acetate for Breakfast and Lunch, and the Renvella at dinner. Will see with my labs this month if mixing them works better than the Calcium Acetate alone.
Title: Re: Bummer
Post by: fearless on December 04, 2011, 07:33:51 PM
the only thing I've heard that reduces phosphorus besides binders and a low-phosphorus diet is extended therapy home hemo - that is several hours per night at a slow speed, which apparently removes phosphorus (other forms of dialysis do not)
Title: Re: Bummer
Post by: Kong on December 08, 2011, 11:24:23 AM
My neph has me eat three Tums with every meal to keep my phos down. Maybe this would help.
Title: Re: Bummer
Post by: sullidog on December 08, 2011, 06:53:29 PM
I take 5 renvella,
Another way is do nockturnal d.
Title: Re: Bummer
Post by: fearless on December 08, 2011, 09:47:54 PM
I think it's important to follow doc's directions regarding what pills you take.  Calcium is effective at binding phosphorus, but depending on your residual kidney function, the calcium itself may become a problem (that is what happened for me)  I can only use renagel, and I have to be careful to stay away from high-calcium food or pills (as well as phosphorus foods)
Title: Re: Bummer
Post by: Atooraya on December 09, 2011, 05:17:22 AM
Thanks for da feedback y'all. I get my test results back today on phos. Let's see what Renvella can do.
Title: Re: Bummer
Post by: tbarrett2533 on December 10, 2011, 06:59:52 AM
first off let me say that I have NEVER took a binder (so I may be the exception here)

but I did in-center Hemo  :puke; for 8 months and I followed the renal diet so strictly that it would make your head spin!!   :urcrazy;
then I switched over to CAPD and have been doing that for almost 7 months and now I eat whatever I want, drink whatever I want and do whatever I want!!  :2thumbsup;

now, my phos runs 3-4.5 EVERY month!!!
I eat chocolate, peanut butter, deli meat, nuts.... I mean I eat WHATEVER I want  (drink whatever I want to..... yes alcoholic beverages too  :2thumbsup;)

but the one thing that I do not eat AT ALL, not even a taste, is DAIRY of any kind and I don't care, I think that's why my phos has never been an issue for me!!!!!! 

so I am going to go with that try avoiding dairy all together!!! it could work, it could not, but I think its worth a try don't you?
Title: Re: Bummer
Post by: Atooraya on December 10, 2011, 01:09:08 PM
Definitely. However, I use very little dairy. Occasionally a slice of cheese.
Title: Re: Bummer
Post by: fearless on December 10, 2011, 09:19:54 PM
For some people who still have some kidney function, and maybe haven't been on dialysis very long, phosphorus might not be a big problem yet.  However, i encourage everyone who is on dialysis to avoid high-phosphorus foods.  They will make staying healthy harder for you.
Title: Re: Bummer
Post by: billybags on December 11, 2011, 09:24:29 AM
My husband does not do dairy, no milk in his tea, no custard, no cream, no butter,  no chocolate, he is so boring, but it keeps his phos down. Why don't they inform you of these things when you start going into renal failure. My husband was being assessed for 4 years before D not once did they tell him to watch his diet. As soon as he hit D it was, don't eat this don't eat that. Why the hell didn't they say that before.
Title: Re: Bummer
Post by: sullidog on December 11, 2011, 01:57:02 PM
I am the same way, I can't take binders with calcium, even have to be careful with the zemplar.
As for totally doing away with something in your diet, I tried that when I first got on d, I totally did away with foods with potassium, or if it did have potassium it had very little, well my k got too low and my hart didn't like it.
Title: Re: Bummer
Post by: amanda100wilson on December 19, 2011, 06:34:47 PM
When I was on PD the first time around, I did not have to worry about my diet because I had residual renal function.  When I was on it after my transplant failed, I had no residual renal function, it was a different matter and  i had to take binders and restrict my intake.  That is a big factor in how easy it is to control.  Now I am on short-daily using NxStage and myphosphorous hascome down considerably so when I see my doc. Next I suspect that he will reduce my binders.  No-one shouldtake Tums or any other calcium binder unless ordered by their doctor since they can send serum calcium levels too high and in the long term, calcium deposition can occur in the body.




Title: Re: Bummer
Post by: Atooraya on December 20, 2011, 09:55:34 PM
Thanks for the feedback all.
Title: Re: Bummer
Post by: bleija on December 24, 2011, 08:25:51 AM
my dietician told me that animal phosphorus, like from dairy is absorbed soo much quicker than planmt phosphorus... dairy really gets me so now knowing that i take the binder first thne eat or drink my dairy, lol
Title: Re: Bummer
Post by: Atooraya on December 24, 2011, 11:36:25 AM
That's a good piece of info to have. Thanks.