I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Rain on November 06, 2011, 11:11:45 AM
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I've been around reading the forums for awhile, and posted a few days ago for the first time.
I've been on dialysis for 4 years. In centre Hemo. (3 times a week). I got diagnosed with renal failure at 23, but I've had kidney disease due to reflux since the age of 4.
I work full time, dialysis part time and yet I find time for a life outside of it all. My hobbies include cooking (now I'm takng some courses), photography, and fitness.
I strongly believe that how you treat your body will help you feel better between treatments. So I eat very healthy, no process foods, and I exercise a bit every day.
The only medication I am on is epo, and iron for my treatments. And thyroid medication for hypothyroid. I got off BP meds 3 years ago by following a fitness program. I am currently looking at trying to heal my thyroid and get off the meds soon and so far for the last year my dosage has been decreasing every 8 weeks. So I am on the right track.
I am on the list for a transplant. And just thinking about it give me anxiety. I am just worried it's not going to work for me, since I've had bad luck when it came to finding a living donor.
I look forward to being part of your family and learning a lot from others with the disease, just by reading some of the post I feel comfort in knowing I'm not the only one going through this at a young age.
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Hi Rain, I'm from Ontario, Canada, welcome to you! :welcomesign; It's great to have you here with us :grouphug;
Photography is awesome, I enjoy it as a hobby as well, hope you enjoy the site here! :waving;
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Welcome to IHD, Rain!
:welcomesign;
I'm glad you found us. Now that you have de-lurked, post often so we can get to know you better. :clap;
Aleta
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Hello from Toronto....this is a great forum and we look forward to you being a part of this community.
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Hi Rain & Welcome aboard!
lmunch
:kickstart;
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Welcome aboard from another Canadian ( Mississauga, Ont ) . You've found the best place to talk to others that understand. It's great that you still have a life with hobbies and don't let dialysis rule it. Please stay in touch.
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welcome :welcomesign; hoping to see some of that photography in the near future :) I love hearing of you taking care of your body and will love hearing more from you..
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yup im here with ya on the young part, 21 now, been dealing with kidney failure and dialysis for 2 and a half years now... had 3 months of knowing my kidney failure before i had to chose my type of dialysis...
i am very impressed by the fact that u are on so few medications... i have supplements and high blood pressure meds basically the whole nine yards
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Dear Rain - hi and welcome to IHD!!!
I am going to POUR on your anxiety regarding transplant. I see it totally the other way to you (and that's easy because I'm 10,000 miles away and have a funny accent :) ). You already say you do as much as you can to keep your body in good shape - exercise, eating right etc.. This is SO IMPORTANT and you are doing yourself more good than you know - I am convinced of it.
I could not get a living donor myself - my siblings tested but didn't work out - not their fault of course. However, I kept hope up, and I exercised by walking where I could, My diet was not super awesome, but I kept my labs in order as much as I could and did my best to make sure when that call came that I would be in a decent situation to handle the transplant.
I'm 3 weeks away from my first kidneyversary! So far so good!
Yes, of course the anxiety that it may not work for you is a reasonable one - don't get me wrong, I was in the OR being prepped and had the same thoughts and wonders.. In the end though you put your trust in the team looking after you and in the universe. You're doing your part. The reality is that something like 93% of all transplants are still working at 1 year. If you ask me that's a pretty darn awesome statistic, and given you're young and pretty healthy other than KD, that there's absolutely no reason to think it wouldn't work for you - and for a long time.
You've come this far! Try to stay positive and keep the faith. We all are on your side!
Again welcome !!
RichardMEL, Moderator
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:welcomesign; Rain!
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:welcomesign;
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Thanks everyone.
I've stopped lurking on the boards and am now contributing. Woohoo
The other supplements I'm on are Replavite (Vitamins) and a probiotic pill.