I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Sandi1313 on October 28, 2011, 10:29:10 AM
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My name is Sandi.I've been on dialysis for about 4 month now.My boyfriend Thomas & I live in Centralia,Washington.It's part of Southwest Washington.This year has been like a rollercoaster ride for us.Ever since we found out that my kidneys are failing me.I've had 2 blood transfusions over the past few months.Along with 2 fistulas done as well to the same arm(my right arm).Late last year,we were told about my kidney disease from the doctor that I was seeing at the time.She referred us to my kidney doctor.At first,I was very upset about this.We could not believe this was happening to me.I go to dialysis 3 days a week in the morning hours .I go to the local dialysis center in Chehalis,Wash..My boyfriend has been my # 1 moral supporter.He has given me alot of encouragement when I feel like giving up.I have been trying to look at this in a postive way.There are times that I've surprise my kidney doctor.Cause I've been doing fine.I'm not the same person that he has seen in Jan of this year.There are times I feel that my emotions are mixed up deep inside me.There are times that I do feel weak & tired after I had had dialysis session.
Lots of Love & Hugs,
Sandi(Sandi1313)
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Sandi, that emotional roller coaster ride is normal when you are new to dialysis. It is like going through a period of mourning for your old life in a way. I hope you get settled in with it soon.
It was "funny" to me that my husband (the one on dialysis) took his condition better than I did. But then, he has always been a VERY optimistic person!
This is a good place for companionship and support.
:welcomesign;
Aleta
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Sandi, Welcome to IHD! So sorry you are going threw this. It can be an overwhelming disease, and so hard on you, especially the shock of it all. Like Aleta, I too am taking care of husband who has this disease. He was diagnosed in 2004 and it flipped our world upside down. But as time went on, he just accepted his situation and we both just settled down with the fact! It actually got much better for us to deal with. It has become a part of our lives! Things are much smoother now!
Has anyone told you of your options: Transplant, PD, Home Hemo or Incenter. Just try to settle down and take deep breathes. Nothing you or anyone else can change what has happened, so just live with it the best you can. Learn all you can about your disease! Knowledge is power, and you want to know all there is to know about your disease!
I know that when J was diagnosed, he nor I really knew nothing about it, and had to learn along the way. It was so very difficult at first but over time it will get more routine. Just read other posts on here and have BF read with you. There is a section for caregivers too, that has really helped me alot!
So sorry you are going through this! And Welcome to this site with people who know and understand what you are dealing with.
lmunchkin
:kickstart;
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Welcome to IHD, and welcome to your BF. He can join, too, you know!
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Hi Sandi, and welcome to IHD. I'm so glad you found us. I'm in Spokane just east of you. I've been on this site basically since it started. I had lost my transplant of 17 years and back on dialysis and just googled "people who hate dialysis" because I knew I was not the only one. This is a great site you will love it. I hope things settle down for you guys.
If you ever get to Spokane, I'll buy you guys lunch. :cuddle;
Rerun, Moderator :welcomesign;
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:bump;
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Hi Sandi! I am in Bellingham, just north of you. I just received a transplant after three years of Dialysis at the UW. I've been a member of this group about three years. There are a lot of wonderful, caring people on this site. They have helped me in this journey. Best of luck, and I hope to maybe even meet you in the future. Welcome!!
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:welcomesign;
baby steps and education is a good start to your journey
best of luck :2thumbsup;