I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: tyefly on September 12, 2011, 09:30:31 PM
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Want to know what hemoglobin level are used for transplant people....we all know that hemoglobin levels with dialysis are 10-12.... can we be higher...back to the normal levels..... mine right now are 8.4.... I have never been that low..... out of breath alot..but I think they are going to start me back on epo for a while...untill that kidney kick in....... just was wondering what others are doing with their hemoglobin levels....
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Did the transplant center not give you a goal? 8.4 is pretty low! When is your next checkup?
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Mine was about 10.5 soon after transplant and has slowly climbed over 18 months to the low end of normal without epo or suppliments. I would guess if you don't reach 10 soon, they will give you a shot.
Ed
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With this trx my levels run high...like 15...but the last one I did epo shots. It may take a while to level out I'm guessing. :cuddle;
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I typically run about 11 but I have never been off epo with this transplant. My neph wants me at about this level.
Cora
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Carl's have run high. They told him that the signals from the kidney that shut off the production of hemoglobin were not getting through. They had to "bleed" him to bring his down some.
I bet you are just washed OUT!
:cuddle;
Aleta
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I was really low at the beginning, and needed epo every week. I went back off it and now mine actually runs 13-14 most of the time, which is considered at the high end of the range for a woman. I'm okay with that!
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8.4? I feel for you!!! At one point I was readmitted due to abdomen pain. My hemoglobin was in the 8's. I was given blood, which I didn't want at first. I actually refused it.
The TX neph said 'Ok tell you what we'll wait one more day and see where you're numbers are.
He was very clear, and told me they would probably drop some more and at the point they would strongly recommend the transfusion, although I had the choice to refuse it again.
The next day labs showed my Hgb had dropped some more >:( Neph asked me what I wanted to do? I decided to go ahead and take the transfusion as much I hated the idea.
My Hgb has been in the 10's and the last 6 weeks in the low 11's which still makes me feel tired.
I was told by Coordinator when I was running in the 10's that my insurance would not pay for EPO unless I dropped below 10.
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Jenna was always around 10 or 11. If it dropped below 10 she'd get epo, but it was maybe once in 4 years. Lori Hartwell told me it takes a while for the kidney to produce hormones, not sure why, I need to ask her. I hope you feel better soon! :cuddle;
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Mine runs slightly low all the time, but notto where epo is needed. About 3 or 4 diferent of the blood levels run slightly low all the time unless sick.