I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Nameless on August 18, 2011, 08:16:39 AM
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My name is Misty (age 30). I am caregiver to my husband Chris (age 40)and my son Jason (age 11). My husband started dialysis August 17, 2011. He has diabetic related ESRD. My son Jason is Autistic/ADHD with bipolar issues. We living in a little town called Hemet in California. We have Kaiser Permanente currently. Chris and I have been together for 12 years.
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Welcome Misty.
:welcomesign;
---Dan
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Hi Misty. This is a tough one. You guys are new to dialysis. It will get better for you. You are overwhelmed right now. Stick with us. We will support you and answer your questions, which are many right now. I'm so glad you found us.
Rerun, Moderator :welcomesign;
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Welcome :welcomesign; and Hemet... Yea! I lived in Idyllwild in my teen years WAY BACK :shy; Sorry you had to come here (ie... illness) but you are in good company :) you'll learn lots and get a lot more comfortable with 'what it is'. :cuddle;
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I've been to Hemet! I have an aunt and uncle who lived there for a while not too long ago. Small world.
I have a son who is autistic, so I understand the challenges.
Bet you're feeling a little overwhelmed. Does your husband get his dialysis at home or in a clinic?
Glad you're here, and I hope we can help. Just ask.
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Misty, Welcome to the site. :welcomesign; It will seem over whelming and scarey to start with but you will get use to it. You did not say what kind of dialysis your husband is on. Which ever, there is always some one on here that will be able to answer any questions you have. You are not a lone.
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:welcomesign;
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Hi, Misty!
You have your hands full! :cuddle;
Welcome to IHD!
:welcomesign;
Aleta
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:welcomesign;
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:welcomesign;
You've come to the right place!
jbeany, Moderator
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Right now all I know is he has the neck catheter and he is still in the hospital. He is being released tomorrow but we are having problems with our insurance. They are not saying when he is getting his permanent one. He is still very ill and I am scared to have him come back so soon. Our house isn't exactly sterile. We found out he has uremia today and he has a really bad infection on his foot...I am also worried they are going to send out adult protective services again. It just upsets him...always helpful when we are transitioning him home from a hospital stay.
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I'm not familiar with Adult Protective Services and with what they do? Are they in a position to offer practical help to you? I'm wondering if your husband is too ill to be released from the hospital. Are your insurance problems a factor in his early release, do you think?
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Adult protective services is suppose to protect older adults and persons with disabilities from abuse, neglect and exploitation by investigating and providing or arranging for services as necessary to alleviate or prevent further maltreatment. They have done absolutely nothing for us...they make me drug test (i have been sober for almost ten years)...they threaten to take my son...the threaten to charge me with elder abuse, but have never done anything useful. Kaiser says they can't do anything further for him right now.
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Welcome to our community, Misty! You have been given a great deal to handle at your age! But I am always impressed with the strength of the human spirit when faced with such challenges. Now you have your IHD family to be there for you :grouphug; This is an excellent place for information, support and encouragement.
We have a lovely group of caregivers here on IHD - check out that section - supportive, caring and sharing.
Please read as much as you can, and post as much as you can. We want to know how your husband (and you too!) is doing.
Bajanne, Moderator
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My husband will be doing his dialysis at Davita. He is finally home. Thank the Gods. :cheer:
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I'm so pleased to hear that!
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Hi Misty and welcome to our group. Glad you found us and sure hope we can help you along the way. :welcomesign;
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I hate the illness too. It makes me angry mostly.
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:welcomesign; Misty. It's a pleasure to 'meet' you, although a shame about the circumstances. I'm pleased that hubby is now home. Hopefully the insurance will sort itself out and you can start getting used to this new life living with dialysis.
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:welcomesign; Misty, hope you can learn a lot out here. Hang in there, things sometimes have a way of working out.
Iwannabean
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Hi Misty - my hubby started dialysis in May at a DaVita center, and its been QUITE a ride. My hubby is also diabetic, how is your husbands foot ? I had a lot of questions when he started dialysis, and the people here have REALLY helped me. :grouphug; hang in there - Linda
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Welcome to IHD, Misty! My husband has this disease also, and I hate it for him! Glad you found us!
lmunchkin :kickstart;