I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: Ladystardust24 on August 17, 2011, 03:59:53 AM
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Well, I actually met my boyfriend right after my transplant.
So he just missed my dialysis days. Which is ok.
But anyways, We both actually health issues.
Mine: Life long. CKD,Bladder.. later leg stuff. Anxiety/PTSD/OCD
Him: He has Aspergers and CML (A type of cancer)
So we do our meds together usually. He cannot usually come with me to clinic or anything of those. Mainly because he is at work. But if I'm in the hospital he comes and visits me. Although, he is extremely supportive and all. He is not always sure what to say or how to deal with things. I teach him a little bit of my stuff, and he teaches me a little of his.
Unfortunately, his mother has been battling cancer since last Nov (About a month after we got together) So I've been there supporting him and his family. His mom used to be a PA, so she knows some of my medical stuff. And since I've been in the medical world so much, I can be there for him.
It's quite hard for him to see me/her in the hospital. At times if he's emotionally overwhelmed he's unsure how to deal with it. But I reassure him he is doing fine. And if he does happen to miss something, I let him know.
But last time I was in the hospital, (I'm a VERY) hard stick. And after 4 IVs (And countless efforts from everyone including surgery) and he happened to be there late (Our transplant unit is fully closed off, and staff likes him alot. So we have a bit of visitor freedom) And he and I finished a documentary, and my IV stopped working. He stayed/wanted to stay further with me until I got another one. But luckily the best IV nurse came by and did it pretty quickly. But he came home and checked up on me.
And in other ways, he's been very helpful. (Getting meds when I need them and such, reminding me to stay hydrated)
Family wise, I do most of it myself. But I'm close to my dad.
I've told him my fears of losing my kidney, and other unpleasantness. He and I obviously talked about stuff like that. And being the age we are, and all. But he's been through a lot with me. And supports me in all ways. As much as coming to the Vegas trip, even though he is not fond of all the noise/lights and people. Also helped my friends throw me a pretty amazing transplant anniversary party.