I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: billybags on July 26, 2011, 08:16:08 AM
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We had a good weekend, (daughters wedding) husband struggled through the day but he made it. Last night I had to call out the paramedics, he could not breath, for the last few days he has had trouble breathing, finds it hard to walk around, climb stairs and was coughing like mad. They checked him over and said it could be a chest infection. had to have the GP in this morning he said it could be his heart and it could be fluid. Yes I could say it is fluid but he is on a restriction and does watch it. He is dialysising OK, good fluid pull off, tea time and overnight. So what do we do.We are as we were, I am so fed up with all this shit. Sorry I had to vent.
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Oh BB...it sure seems like a positive gets too quickly folllowed by several negatives every time, doesn't it? Is the GP offering anything as far as treatment? I sure hope it gets cleared up quickly. It's so hard to have a good weekend and then watch things spiral downhill. Sometimes I think when we have good days that we get our hopes up that things are going to be better. Then the bad days happen and we come crashing back into reality.
Am sending you a huge cyber-hug my friend. :grouphug;
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:grouphug; Wish there were more I could do. :cuddle;
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:cuddle; Best wishes. It's very frustrating when there's no easy diagnosis and remedy. I feel your frustration!
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Did they check to see if it was fluid?? He could have no swelling but still have fluid. I hate when doctors say it could be this or it could be that and don't check to see what the cause is!! :grouphug; to you.
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hope he's feeling better soon :thumbup;
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BB, there is not much that I can say that would help you through this Dreadful Disease! But you are not alone! We all have ups & downs in this world, guess just do the best you can! Isn't that all we can do? Hang in there girl, and I do know & understand your frustrations!
Hope things get better for you both & God Bless!
lmunchkin :flower;
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I feel ya :'( It's awful to say the least. Bo just had a bout with coughing and thankfully, dr xraed his lungs and and there it was..... fluid build up.. Took it off in about 3 days and is all better. But........ thats cause we SAW it and so could do what was needed. Sure hope they get to the bottom of this for the both of you... :grouphug;
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So the paramedics decided not to take him into hospital and your GP also decided he didn't need to go even though it could be his heart, or could be fluid build-up? How is he today? Is he still breathless? Can you phone your neph (I would think he needs to be made aware as he knows more about your hubby's condition than either the GP or the paramedics) directly?
I hope this gets sorted soon.
*huggles* for both of you.
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oh can so relate!!!
if anyone needs some great kidney docs and surgeon in the NW Ohio area, we have some wonderful ones.
it was still diligence on my part through the rough storms. but i believe these docs saved hubbys life. just wish we'd had them from the get-go. :cuddle;
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I feel like the GP has written us off. he is very reluctant to do any thing because he does not understand kidney failure and just refers us back to the neph. We are seeing him Friday.
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BB, if you have a neph that you and hubby are comfortable with, see if he/she can suggest a good cardiologist or a pulmonary doctor! The breathing is what so frightening! If GP wants to write him off, than so be it! There are plenty others out there!
I hate this for you both. It can't be easy!
lmunchkin :flower;
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So sorry to hear of your frustrations BB. Vent all you want or need to, we are here for you. Hope your neph can get this taken care of promptly. :pray; :pray;
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I suppose I can understand the GPs reluctance somewhat. I hope the appointment with your neph goes okay tomorrow ... hopefully he'll be able to help/put your mind at rest.
*huggles*
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Thinking of you, BB. :cuddle;
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Vent away!!!!!!!! Lord knows I've done it a million times right? lol If he has congestive heart faulire, fluid build can hapen easily even on a restricted diet. With that condition the heart can not pump adequetly and you get "congested" with fluid . My guess is they put him on a lasix in the hosp. and how is he doing right now? Again, "if" it from CHF, he will have to watch his exertion etc, time in heat, etc.... Please let us know how he is and what the diagnoses finally is. Kow just how tired you get. Sometimes I feellike my whole life is fixed around my husband's issues.
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Yes, Texasstyle, it is and you do a really good job too. He is blessed to have you, my dear! As far as Venting, oh, I would NEVER do that!!!! lol
It's what makes this site "special".
lmunchkin :flower;
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Of course we don't vent. We "explore our emotions in a safe and supportive environment." That's why we all immediately know what "@#$%#@^&$" means when it is translated from thread speak.... ;D
Hope you both get some relief soon, BB.
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This sucks!! Sorry for you and your hubby....I hope the neph offers more resolutions to this!!! Hang in there!!
xo,
R
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Neph sent our nurse , who is lovely, to check husband out. He has lost an awful lot of weight these last months but his appetite is returning and he is eating a lot better, but apparently where he thought he was putting body weight on and we are only talking a few ounces, it is fluid. So she is tweaking the regime to get this fluid that is fuc**g hiding every where off..
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Not the best news, but not the worst either, eh? At least now he may start feeling a tad better. Thank goodness for lovely nurses!
;D
*huggles*
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Oh, BB, just keep hanging on Lady. He needs you so much! I know it never seems to end! Just when things settle down a bit for you, another monster rears its ugly head! Im sending prayers and hugs to you! Hopefully things will get straightened out, before you Collapse! Keep your head up girl, no matter what happens, you be Strong!
God Bless you,
lmunchkin :flower; :kickstart;
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Thanks gang for all your reply's, to-day I feel much better. With tweaking he has drawn off lots of fluid, and here is me, silly sod thinking he was gaining a bit of weight. How the hell do you tell which is which.
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Off we go again. Two appointments at two hospitals yesterday. At least they are only 30mins apart. Vascular man says "electrodes are not working properly" or brains not ticking as it should. He is making an appointment for a lumber fluid test. We only went to him because we were referred by the osteopath, hubby only wanted a new knee and now we have all this shit to put up with. Off to the next hospital for a chest x-ray and blood test , we have another surgical thing on Thursday, I keep making hubby laugh because its the stick up the dick thing. I bet this test makes your eyes water guys. We had a letter this morning from our neph, he wants a kidney CT next week. The only time I go out is to hospitals and you know girls I get dressed in my best because its the only time I get out. I put my best cloths on, perfume, beads. Sad isn't it. Still it keeps us going.
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I keep making hubby laugh because its the stick up the dick thing. I bet this test makes your eyes water guys.
This made MY eyes water and I'm a GIRL!
;D
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Hubby had that "stick up the dick" done last January!! He wasn't impressed. Then he had to have a larger one put it to have a polyp removed ( he had a spinal instead of being put to sleep) . And he had to have it done again in July to check to see if everything was okay. It was and he doesn't need to have it repeated again. He said it really didn't hurt but it was uncomfortable (wouldn't think LOL!!) Usually you have a pain in your back and feel like you want to pee for a while after. It did make his eyes water!! Just thinking about it!! He almost cried when he got a call in July to have it repeated LOL.
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Man, BB, again? Does it ever stop? I don't get dolled up for those appointments, shoot, I go like Iam! Aint nothing special bout those places! Do they get all doosied up for you? LOL, although they do have some cute scrubs out now with all the flowers and such! But I know what you talking about girl!
What a downer! Hang in there, BB!
Will be in my thought and Prayers, :pray;
lmunchkin :kickstart;
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you know girls I get dressed in my best because its the only time I get out. I put my best cloths on, perfume, beads. Sad isn't it. Still it keeps us going.
I'm with you on getting dressed up. I show up in a nice pant suit, hair done, make up in place, rings on and everyone around me is in shorts and tshirts! Or sleep pants. I'm sure no one there cares what I wear. I do it for me. So, put on your beads and look fabulous! Keeping you in my thoughts and prayers.
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I get dressed up because I want them to see a fellow professional taking time out of a busy schedule - not a bum with nothing better to do but wait around for them!
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Iam definately different! Never have been one to get all dolled up! Now I don't go in rags or nothing like that, but I wear jeans, t-shirt, earings or whatever, but nothing fancy! Im a Tom Boy in that respects but I am proud to be a woman!
Now I will dress up a little for Church, but that's it, ladies!
lmunchkin :kickstart;
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hehhehe,,, i 'dress up' too for church.. in my tan jeans instead of blue... Hey, i try :shy;
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Thanks for all your posts guys. See, us women do like getting dressed up. Yes I do it for me, it makes me feel better, when I sit there there for hours. I am getting to hate hospitals.
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BB...I went to one of hubby's clinic/neph visits all dressed up in business atire and the neph asked me if I had a "job interview" to go to that day...I was on my game though and said "yes sir, I am going to apply here at the clinic as a quality control specialist". He got a big laugh out of it but I also think I scored a point or two! :rofl;
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Best Clothes? Beads? Perfume? Okayyyyyyy - I don't know, I used to get there at 6:00 A.M. and wait till Midnight. No Doctor. I'm pretty sure, they make Their Rounds at 3:00 A.M. , just so they don't have to Talk to Patients Wifes.
I had a great Comment to make about His next Appt., but I won't. I would be Banned for sure.
On a more Serious note, I hate the Phrase, " Been there, done that " but there really are People out here, who have done, what You are doing and most Important, They Survived.
Take Care, Billy.
s
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Iam definately different! Never have been one to get all dolled up! Now I don't go in rags or nothing like that, but I wear jeans, t-shirt, earings or whatever, but nothing fancy! Im a Tom Boy in that respects but I am proud to be a woman!
Now I will dress up a little for Church, but that's it, ladies!
lmunchkin :kickstart;
I'm not sure if I should be admitting this, but I always read your posts with a southern American accent (I'm not sure where you're from). I also have an image of you in my head which is probably completely different to who you actually are.
Will you forgive me?
>:D
Billybags, I have a confession to make ... I LOVE hospitals. The smell, the busy-ness, the people-watching. I can understand why you're starting to hate them though. *huggles*
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Poppy, How come you can see things. I probably are not how I come across. I live in a small town out side of Nottingham UK, have you heard of Robin Hood. I am 66, really skinny, I love reading, computing, I am involved in a residents group for the estate I live on. I do not swear, OK a bit when I am on here. I love a smoke and a drink of wine, I love my wine.I find fun in my 4 grandchildren. I love my husband very much. I really am very normal or what ever normal is. I get on my bandwagon when I feel some thing is not right. I enjoy discussions and I am involved with local issues. What more would you like to know.
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Oh billybags, I know where you're from (you only live two hours drive away)! My previous post was for lmunchkin!
But, you love a smoke!? Well, that has completely spoilt the image of YOU that I had! Tsk!
>:D
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Poppy, I love a smoke and a glass of wine. I have also been known to jump in on other peoples posts, Sorry.
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Poppy, I love a smoke and a glass of wine. I have also been known to jump in on other peoples posts, Sorry.
Made me chuckle!! :clap;
xo,
R