I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: survivor on June 29, 2011, 05:25:34 PM

Title: Hi
Post by: survivor on June 29, 2011, 05:25:34 PM

Hi,
  This is survivor. I had a transplant in June '98. Celebrated the 13 years anniv few days back. Donor-Mom. A question? Is there anyone out there, who got cancer after the transplant. I got transitional cell carcinoma in my ureter, in 2004. Was told it was because of the immunosuppressants. Just wondering, if anyone has knowledge about this?

Ciao,Survivor.

Title: Re: Hi
Post by: Ang on June 29, 2011, 05:36:16 PM

 :welcomesign; survivor

sorry can't help,but sure to be some around who can help :thumbup;

Title: Re: Hi
Post by: willowtreewren on June 29, 2011, 05:37:12 PM

 :welcomesign;

Welcome to the group, Survivor!

My husband was recently transplanted and cancer is an on-going concern.  :embarassed:

Aleta

Title: Re: Hi
Post by: natnnnat on June 29, 2011, 06:02:12 PM

Hi Survivor and a big  :welcomesign;
Congratulations on your long lasting good health.
My husband who had a tranplant in 91 had a chunk of skin cancer taken off the side of his head a few years ago, and there's another patch of flaky skin which we are keeping a very close eye on.  In a separate example, my friend who had a transplant got skin cancer on his eyelid which they just couldn't contain, he lost his eye, and it still wasn't contained, he died of the complications of that cancer. It was bad.
Not sure what to say beyond what Aleta said:  yes, its a concern.  Responding to the idea that it is "because of the immunosuppressants", so far as I have ever heard, the immunosuppressants don't give you cancer as such, but they allow the cancer more leeway.

Title: Re: Hi
Post by: lmunchkin on June 29, 2011, 07:02:23 PM

Natnat, that is my understanding of it also!

lmunchkin      :cheer:

Title: Re: Hi
Post by: Jie on June 29, 2011, 08:42:02 PM

 :welcomesign;

Not just cancer, after transplant, many health risks increase. Hopefully, some days, there are ways to replace these immu. drugs.

Title: Re: Hi
Post by: peleroja on June 30, 2011, 03:03:00 PM

Welcome to the group, survivor.  Can't help with your question, but I'm glad you found your way to us.

Title: Re: Hi
Post by: survivor on July 06, 2011, 11:55:20 AM

Thanks for welcoming me.  :waving; I have to say, cancer is always an ongoing concern. Having been through one, it scares the hell out of me. That said, I am in full remission for the past 6 years and so, not bad.  :2thumbsup;

Title: Re: Hi
Post by: Rerun on July 07, 2011, 02:21:13 AM

The anti-rejection drugs lower your immune system so that your body doesn't fight off this foreign kidney.  Therefore, you get things like cancer and other t-cell abnormalities.  I'd rather have a transplant and take my chances.  Best of luck and welcome to IHD.

Rerun, Moderator      :welcomesign;

Title: Re: Hi
Post by: jeannea on July 07, 2011, 06:43:02 AM

I had a transplant in 98 also from my mom. But I had CMV not cancer. I'm sorry that happened to you. They had warned me about the possibility. Are you doing ok now? Or are things still difficult? Does your transplant still work or did you have to back off on the drugs?

Title: Re: Hi
Post by: peleroja on July 07, 2011, 06:33:03 PM

Welcome to the group, survivor.  Can't help you with your question, but I'm glad you found us.  Someone is bound to know the answer.

Title: Re: Hi
Post by: survivor on July 11, 2011, 12:32:08 PM

Hi Jeanne,
   Yes, I am fine now. Thirteen years of transplant , out of which 6 years of cancer survivorship and I am still doing fine.   When I started taking immunosuppressants for anti-rejection, I knew cancer was a possiblity, just didn't expect it to attack so soon. Sigh! Anway, take life one day at a time and face it.  In fact, people think I am a normal 37 year old female and are astonished when I tell them about myself. Touch Wood. But, the hardships has made me a better person.