I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Dragonfly on June 13, 2011, 03:22:13 PM
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I am interested in doing nocturnal hemodialysis at home and I would like to know what is required to do so, can someone help me please?
Dragonfly
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It really depends on what your dialysis provider requires. I think the number one requirement (maybe the only requirement) is your desire to do it, but I don't operate a dialysis center. You need to have the support of a center.
People on IHD have plenty of hard earned experience to share but the first question is who is your dialysis provider and what is their stance on nocturnal HHD?
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I believe the first requirement is that you have a care partner to train with... most clinic require someone to know how the machine works along with you ... Second... your clinic needs to support you on doing nocturnal and you need to want to do it.... My clinic was not doing nocturnal and I spend 8 months talking to them about it and what it would take to do it... like heparin pumps and how I would protect my self while I was sleeping.... It was easy .... and also my Doctor help me alot as he supported it and helped convince the clinic... there maybe Nxstage clinics close to your clinic or maybe your clinic supports Nxstage... if they do then start feeling them out on nocturnal.... or really the like to call it EXTENDED....... If you are in center now start cannulating your self and developing buttonholes..... I really like sleeping with doing D.... It free's up my whole day.... and YES I feel way better than I did doing short daily..... I am trying to do one on and one off right now....its working great....
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It's true that the majority of centers make the mistake of requiring a trained helper, but some don't. I've dialyzed at home, by myself, since 2002 ... it depends on the center.
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I agree Bill.... I too only had a care partner to train with and she only came in a few times over the three weeks that I trained... Right now I have been doing everything and feel very good with the care that I give my self.... its really pretty easy after you get past the newness of it all.... And Bill is the person to get alot of info from ....
I did..... and was much appreciated....
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I am interested in doing nocturnal hemodialysis at home and I would like to know what is required to do so, can someone help me please?
Like Bill said, it all depends on what your center requires. Mine requires a trained partner, though I've just found out they can and will make exceptions to that rule.
Certainly you need room for the machine and its supplies. (I can post pictures of my set up for you if you like.) Depending on what machine you choose for nocturnal, you may need a dedicated electrical outlet and a dedicated water line (Fresenius) or not (NXstage).
I'd say you need to be organized - so things don't slip through the cracks - and vigilant about sterile technique, so you minimize any risk of infection.
The ability to cannulate yourself is most helpful, or at least a care partner who can do so.
Of course, the first thing you need is a center to support your decision. Have you talked to yours?