I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: vanessa on May 28, 2011, 10:37:19 AM

Title: facebook
Post by: vanessa on May 28, 2011, 10:37:19 AM
hello everyone i hope all of you are doing as well as can be expected. today i got on to facebooks I Hate Dialysis page and there i find some rude uncalled for post by Anna!! unbelievable i will whine if i choose to as will all of us she belittled the page as if we are all a bunch of ungrateful people who should just count our blessings and praise the lord for not having pain everyday all day as if our pain is minimal well guess what Anna we are in pain and dialysis is a huge pain in my daily life gosh i am so upset !!everyone on this website is amazing i have been so blessed to have been given the opportunity to ask questions that no one would know but all of you whom have been there and done this thing we call dialysis. do i have a right to be upset?  i know i am ranting on and on its just this does affect my life in so many ways as well as my kids and i feel like crap most of the time. i am glad Anna has found a way to praise and not whine however her judgment of me angered me because I HATE DIAYLSIS !!!
Title: Re: facebook
Post by: PatDowns on May 28, 2011, 10:52:46 AM
My thoughts are why do you feel like crap all the time, are you getting enough treatment and how well have you adjusted to the renal diet and med protocols?   

Title: Re: facebook
Post by: vanessa on May 28, 2011, 03:27:00 PM
I think it had more to do with her attitude rather then how i feel i mean you have to read it i guess to understand it . if you would like to it is on facebook under the facebook page i hate dialysis
Title: Re: facebook
Post by: greg10 on May 28, 2011, 03:42:24 PM
I think it had more to do with her attitude rather then how i feel i mean you have to read it i guess to understand it . if you would like to it is on facebook under the facebook page i hate dialysis
Don't let her get you down.  She doesn't know the mortality stats of first year ESRD patient going on dialysis.  She doesn't really know dialysis.

Anyone who posts on facebook can read people's real names, but it should stay on facebook.
Edited: Image removed - okarol/admin

Title: Re: facebook
Post by: kitkatz on May 28, 2011, 03:44:14 PM
Remember anyone can say pretty much anything on Facebook and on Message Boards.  Her outlook is sunshine and roses.  Let her have it. It is one opinion.
Title: Re: facebook
Post by: PatDowns on May 28, 2011, 03:49:56 PM
I think it had more to do with her attitude rather then how i feel i mean you have to read it i guess to understand it . if you would like to it is on facebook under the facebook page i hate dialysis

Yes, I read what she wrote on Facebook.  Again, what YOU wrote bothers me.  Why do you feel like crap all the time?  Is it mentally and physically?  Are you getting good dialysis?  How is your BP?  Are your phos and K+ levels in line?  Are you getting EPO and/or iron supplementation?  All of us have bad days.  However, those of us getting quality dialysis care have more good days than bad. 
Title: Re: facebook
Post by: Chris on May 28, 2011, 04:37:26 PM
Should we really be posting peoples facebook pages on here? We had a discussion about posting peoples names from facebook before and that was removed due to privacy concerns.
Title: Re: facebook
Post by: monrein on May 28, 2011, 04:59:03 PM
I agree with Chris that we ought not to be posting people's names here.  The post wasn't made here by the poster so I think we should leave things be.
Title: Re: facebook
Post by: okarol on May 28, 2011, 04:59:45 PM
Should we really be posting peoples facebook pages on here? We had a discussion about posting peoples names from facebook before and that was removed due to privacy concerns.

I removed the personal info.
Title: Re: facebook
Post by: okarol on May 28, 2011, 05:00:26 PM
Remember anyone can say pretty much anything on Facebook and on Message Boards.  Her outlook is sunshine and roses.  Let her have it. It is one opinion.
:thumbup;