I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Des on May 24, 2011, 12:48:59 AM
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After my bad news yesterday about the live donor not happening I phoned the transplant clinic to check up on my position on the list only (for the first time) to find out that I have a PRA of 78%. I believe this is very very bad. Well it caused me to drop on the transplant list from 12.9 down to 7.98 points.
:rant;
So the saying that when one door closes the next one opens is a load of B#$%@&t !
My question is : What to do with a high PRA??
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Women tend to run higher on PRA because each pregnancy raises it. :thumbdown;
You can go through plasmapheresis to lower it. That works sometimes, but not all the time.
Even with a high PRA, transplant DOES happen. Look at Paris. Her PRA was MUCH higher than yours and Petey's Marvin had a PRA of 100!!! And he got a transplant (of course they really considered that somewhat of a long shot!)
Hope is a very powerful component, though. Your overall health will be uplifted if you can keep that shining light of hope alive. :cuddle;
Aleta
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Patients in the US with high PRA's get priority - an extra point because they are hard to match - is it different there?
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Patients in the US with high PRA's get priority - an extra point because they are hard to match - is it different there?
I was wondering that also Karol... I had high PRA and it gave me a point.... I don't know if that is an advantage... perhaps it levels the playing field??
Des I got a living donor transplant from an altruistic donor... do you have any kind of exchanges/chains over there??
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Okarol, a high PRA reduces your chances - no extra points :(
No chain donation as far as I know?????
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Des, please don't give up hope. Good things can still happen, there are so many people who can prove it. Hang in there! :cuddle;
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:bump;
I posted this question because I really need some feedback here.
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Des from what I have researched besides plasmaphersis, you can also do IVIG to lower the PRA. Plasmaphersis sounds like a machine like dialysis that separates the antibodies from the rest of the blood.
I hope this helps in some small way....I had a PRA of 65.
Thinking of you...
xo,
R
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My sister had very high PRA's and got a 6 point match after being on the list 4mths. She wasnt on D yet AND she is O+! If she can get one, anyone can.