I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: okarol on May 13, 2011, 01:52:29 PM
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Announcement from the National Kidney Foundation
NKF SUSPENDS U.S. TRANSPLANT GAMES IN 2012
Will Re-Examine Model in Light of Economic Conditions, Programs to Encourage Organ Donation Continue.
The National Kidney Foundation will not be hosting the U.S. Transplant Games in 2012.
“For 20 years,” says NKF CEO John Davis, “the NKF U.S. Transplant Games have educated the public about the life-saving power of organ donation and dramatically demonstrated that those with transplants can and do lead normal and active lives. But the Games represent a multi-million dollar expense for the foundation,” he explains, “that also requires a significant commitment of staff resources.”
“Now,” Davis says, “when most Americans view transplantation as almost routine surgery that restores life, we will re-examine the format and financial structure of the Games, to achieve maximum impact and to ensure sustainability going forward. As always, we will work with a range of constituents and supporters to accomplish this. ”
Since 1990, the biennial Olympic-style event has served to showcase the success of transplantation, promote health and fitness for transplant recipients and recognize and honor donor families and living donors.
“We want to thank the thousands of transplant athletes, living donors, donor families, medical professionals, supportive family members and volunteers who have worked so hard to make the NKF U.S. Transplant Games so successful over the years,” says NKF Senior Vice President for Programs Gigi Politoski.
“Special thanks to dozens of corporate sponsors for their support of the Games and our athletes. We could not have conducted the U.S. Transplant Games for
20 years without their generosity and enthusiasm and look forward to their continuing participation and partnership as we explore ways to restructure the Games.”
NKF will continue to direct its resources to helping ensure that every American who needs a transplant receives one. NKF’s far-reaching END THE WAIT! initiative offers a comprehensive action plan to address the shortage of available kidneys for transplant and to end the wait for those on the list by instituting best practices across the country and eliminating barriers to organ donation.
In addition to END THE WAIT!, NKF will continue to offer print and on-line publications and other resources for transplant recipients, donor families and living donors. A full range of educational materials can be found on the NKF website – www.kidney.org. Perspective living donors, transplant recipients, and donor families can also access the NKF Cares patient information help line.
For complete information about donation and transplantation please visit www.kidney.org/transplantation/. To participate in NKF’s on-going programs and services, click here. http://www.kidney.org/about/membership.cfm
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Due to financial issues, the light at the end of the tunnel will be out until further notice.....
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National Kidney Foundation
Officers, Directors, Trustees, and Key Employees for Fiscal Year Ending June 30, 2009
Name Title Compensation
John Davis Chief Executive Officer $488,425
Joseph Vassalotti Chief Medical Officer $327,159
Dolph Chianchiano Senior VP Health Policy & Research $289,226
Gisele Politoski Senior VP Programs $272,687
Kerry Willis Senior VP Scientific Activities $238,581
Stephen Bajardi Chief Operating Officer $231,371
Joan Shepard Lusting Senior VP Field Services $230,130
JoAnn Vecchione Senior VP Organizational Resources $216,793
Thomas Martin Chief Financial Officer $158,997
Hey Buddy, can you spare a dime?
8)
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Hahahah that's funny since Zach also lives in NYC!
The Transplant Games was paid for by patients selling candy here, for example, in Los Angeles. You were required to fund raise to be a participant. You also paid your own travel expenses and hotel bill.
I asked a NKF employee about how many kidney patients they have on as paid staff at their NY office. Answer = None (although a few affiliates have a couple.)
Their annual revenue is about $45 million (as of 2009) but very little of that money ever goes directly to helping patients. Some of it is for education and prevention, which is dandy, but why not help some of the 300,000 patients who are already on dialysis?
I find it upsetting that the patients who go on Kidney Walks, with family and friends who donate large amounts of money in support of their loved ones; pushing wheelchairs around a stadium while pulling together to make a difference - little do most realize that the majority of their efforts are to pay salaries for NKF officers.
And the "End the Wait" campaign. How does that help the folks who do not qualify for a transplant, or those who choose to remain on dialysis - what about them?
Don't get me started. Ooops. Too late. :oops;
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Go to Charity Navigator to compare these two charities, AKF vs NKF (http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=3270)
(http://ihatedialysis.com/forum/index.php?action=dlattach;topic=23014.0;attach=18783)
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They don't HAVE to hire kidney patients. But I truly believe that people in the trenches have a different perspective than employees who don't. Why not have a goal of providing work programs to those you serve?
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That's the problem. I have written for 10 years. I get the same bolier plate responses.
I do not agree about that being in the trenches is too emotional. The most successful drug and rehab programs are effective because they have counselors who have been there. I have seen the Renal Support Network helping patients, one patient helping another. It works.
The NKF has the audience but they drop the ball when it comes to meeting the needs of patients. They had a support forum similar to IHD and it was one of the first places I found other people who were sharing strength and experiences. It had thousands of posts. They lost it all during an upgrade. It's never been the same. I know many patients who were really let down by NKF's lack of interest in rebuilding the site. Perhaps a patient or family member or advocate could have done a better job.
Vocational rehab? I'd love to see where you find this. Jenna is 25 and we have searched for help. Please direct me to resources because the Ticket to Work Program here is all they've got.
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We did a walk ONCE for NKF but then when I called to see if there was any type of help for Otto's dental work that needed to be done they said no???? So no more "kidney" walk for us, AKF is paying for Otto's medicare premium, they will continue to pay for it as long as he needs it :pray; Now we walk for HOPEKIDS, and I learned to REALLY check out where my money go's when we raise it ;)
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Have you heard of the Able-Disabled Advocacy organization? It works with the CA Department of Rehabilitation through its Projects With Industry employment placement program for those with disabilities. Here's its web site: http://www.able2work.org/about/mission.pwr
Thanks, I will check it out. However, patients with transplants are not usually considered disabled anymore.
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^^
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488K for a CEO of a company with revenue of 45MM and senior VPs in the 200 to 300K range and the CFO at 158K! That's cheap. Really that is cheap for a NYC based company. Supervisors in sanitation department in NYC make more than most of those VPs.
Bill
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488K for a CEO of a company with revenue of 45MM and senior VPs in the 200 to 300K range and the CFO at 158K! That's cheap. Really that is cheap for a NYC based company. Supervisors in sanitation department in NYC make more than most of those VPs.
Bill
American Kidney Fund. Operations in Atlanta, Chicago, New York, HQ in Rockville, Maryland. (http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=3270) Revenue of $173 million.
LaVarne Burton President and CEO $359,786 0.21% (of expense)
Mission
American Kidney Fund (AKF) was founded in 1971, to help a single individual with kidney failure pay for dialysis. Forty years later, AKF has become the leading source of direct financial aid to chronic kidney disease patients across the nation. The American Kidney Fund leads the nation in providing charitable assistance to dialysis patients who need help with the costs associated with treating kidney failure. Last year, 101,000 people-1 out of every 4 dialysis patients in the United States-received assistance from the American Kidney Fund for health insurance premiums and other treatment-related expenses. Millions of people nationwide benefit annually from the American Kidney Fund's efforts to fight kidney disease through public awareness campaigns, free health screenings, health education materials and courses, online outreach, and toll-free health information HelpLine (866-300-2900).