I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: mike22 on May 01, 2011, 06:20:00 PM
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There is a huge chance I will have to start PD in future. I was wandering is there a difference in the number of supplies for each type of PD treatment. Meaning, are there more boxes for CAPD than CCPD. I really think the cycler would be the best modality for me and I was wandering how many boxes do I need to expect on a monthly basis. I'm thinking in the ballpark of 60. Would love advice on how you guys manage all the supplies
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You are probably thinking right. In the UK we are having supply difficulties, our normal delivery is 2 x5000 in a box,we need 32 of them, along with the other stuff, extraneal, 200 box's for manual so we would have say probably about 40/45 box's plus the ticky tacky.. We are now getting supplies from Turkey, America and Canada and they have 4 in a box which are so heavy and that has cut the box's down by half. You are going to get a lot of box's which ever PD you choose. I feel like my spare bedroom is a ware house for Baxter's.
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yeah there is more boxes for the CCPD then the CAPD. Put it this way If i go out of the country for 2 weeks, I go manuals. 1 box of manuals for me is 2 days of just supplies, not counting mini-caps or masks. so 2 weeks for me is a total of 7-8 boxes only to be shipped. If I took the machine, 1 box is 1 days worth of supplies (14 boxes for 2 weeks instead of 2) + drain bags or drain lines + another suitcase for the cassettes.Oh then you also have more boxes that are similar to manuals, but if you go on the machine, if you have a last bag fill, is what you would carry around in you all day
CCPD with your days free is sooo much more better then doing exchanges every 4 hours. So, if you have the room it is soo worth it to go to the cycler. Dont let the boxes scare you.
Now this is work, but what i used to do before I moved. I got under the bed containers, I was able to empty out about 12 boxes for under the bed, the rest of the boxes went into the basement. I was able to get my nurse to okay a 2 week delivery. So, the heavy bags for the machine were under the bed and diddnt need to worry about carrying them 2 flights of stairs. I still had to carry up the last bag (which is a 2000ml small bag, compared to the 5000ml bag(x 2) on the machine, a drain bag or drainline, and cassette (a packaging of tubing on this plastic thingy), (each tube goes to a bag)
I hope this helps, I hope I didnt confuse you more.
Lisa
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@Lillupie Yeah this good. I will be required to do exchanges for a month. Then switch to the cycler which is the best choice for me. I'm still have a hard time coping with going to PD. In some ways I dont have a choice because I have clotted all acesses. I ll go back to Alabama after graduation. Then I want to move to either to Dallas or DC. So, alot of transition and this PD thing scares me sometimes. MY PRA is so high that the wait for a kidney is a long one. So my strategy is to live and get invovle in many things, especially in big cities. Who knows. Ill probably find a kidney donor quicker that waiting in out. Sorry for venting and getting off subject.
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no Mike,
dont evey worry about venting. I know it is frustrating. You just want to live a normal life. With Pd, I do hate to tell you this, because it can be a drag. but do NOT, NOT, NOT get an infection. Try your best not to. The infection scars your PD cavity and it wont work at 100% like it should. So, it is a pain, but you have to avoid it. You have to wear your mask at all times, wash your hands with antibacterail soap, before connecting and disconnecting, close the windows, and vents, turn off the air and fans. You only have to take the recaution steps when disconnecting and connecting. Dont let anything touch the end of your cathater but a mini-cap.
best of luck, Lisa
Let me know if you have any more questions
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The boxes for CCPD are a bit larger and only hold 2 bags, 1 bx/day for me. So at the most I have after a delivery 35 boxes of solution, one or two boxes of cassettes. They fit in our walk in closet. I do like using the night cycler and having my days free. As you were told, either way you have to be very careful to follow the safety procedures you will be shown every single time you hook up and un hook. I've been over a year so far with no problems, you will do fine.
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wow,
Intresting my boxes are shorter/smaller on the cycler. The 5 liter bags are laying down to make the boxes smaller. My CAPD boxes are taller then the ones for the cycler.
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Interesting, the PD nurse back home showed me a box and it held 4 bags. It was cubed sized.
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oh my God. How much did that box weigh, Mike? Wow My boxes are 25lbs each with 2 5 liter bags in them.
Lisa
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I have 6 liter bags, 2 in a box, which weighs 29.5lbs.
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Yep, that's what I have, 6 liter/2 in a box. Never weighed them....wow glad my hubby is here to lift them for me. :cuddle;
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Wow mine are 5 liters each. Did you guys ever have 5 liter bags or were always 6 liters?
Lisa
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One the cycler, I've always had 6L bags, even though 5L would be more efficient, seeing has how my script calls for 14.5L.
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One the cycler, I've always had 6L bags, even though 5L would be more efficient, seeing has how my script calls for 14.5L.
At the end of your treatment, do you have a lot left?
Lisa
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About 3L. For saving product it would seem logical, but I think they plan to up my script here soon.
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what size are your manual bags?
Lisa
About 3L. For saving product it would seem logical, but I think they plan to up my script here soon.
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Manuals are 2L.
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It's a lot of supplies either way. You'll need a spare bedroom or large closet. You'll probably get supplies for both because manual is a back up for the cycler. I prefer the cycler because it frees up my days. However, I'm battleling drain pain because the cycler sucks as a siphon (standard force)and this gives me quite a bit of discomfort.
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I have a lot of solution left over, seems such a waste to dispose of it. On manuals I also had the 2 liter bags and you do have to keep a small supply of those boxes too. We do recycle the empty boxes and any paper products but just a lot of waste.