I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: cesposito2 on May 01, 2011, 04:21:54 AM
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Hey everyone. I am so frustrated!! I have been on dialysis almost 20 years now (between 4 kidney transplants) and I am only 31. Anyway, starting in 2004, I have been losing my hearing on and off (mostly my hearing was fine) for hours, days, and sometimes weeks at a time. I had my hearing checked by a specialist as well as my kidney doctors and they all seem to think it is from pressure changes on dialysis.
Anyway, my hearing has been gone for the last 4 months (everyday whether I am dialyzing or not). And by gone I mean sometimes it is totally gone where I hear nothing and the other times I can hear some volume (so I know people are speaking), but the words get muffled (and so I don't know what they are saying). And speaking louder doesn't help because the words are still muffled.
I was just wondering if anyone else has experienced this (for extended periods of time) because I have heard that other patients do experience some hearing issues while on the machine, but nobody seems to know of anyone who has experienced it for extended periods of time.
If anyone has exprienced (or knows what I'm talking about), please let me know. I feel so alone and frustrated. My kidney "team" is no help as they just chalk it up to dialysis (like they do with any other problem I have). :boxing;
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I have no answers (sorry) but I know my Blokey occasionally loses hearing in his right ear after dialysis. It doesn't seem to last long though (a matter of hours at most). I hope that you get some answers; it must be so frustrating.
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I developed ringing in both ears but the left was worse. I have just been told I need a hearing aid in the left ear. I do not know if it is the dialysis or the meds that have caused this.
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have been on dialysis almost 20 years now (between 4 kidney transplants) and I am only 31
Oh good lord, I am sorry you have had to deal with this "all" of your life. I was just happy to get to 38 before my kidneys totally failed. I can't imagine what you have gone through. Sorry, can't help you with your question. I have gotten hearing loss only when I was dehydrated and stood up too fast. I wish you the very best!
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I've had it happened in the left but it cleared up after that evening that I had dialysis, im curious of what causes this as well.
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Unfortunately this is all too common with patients with kidney failure. You should try to rule out other causes such as some of the antibiotics you are taking and also check for vitamin and mineral deficiencies, but it is likely due to toxins build up in your system that may lead to some neuropathy. Better and longer dialysis may help.
(http://ihatedialysis.com/forum/index.php?action=dlattach;topic=22892.0;attach=18747)