I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: KidneyMommy on January 10, 2007, 06:57:45 AM

Title: Anybody with a child on dialysis or who has gone through transplant?
Post by: KidneyMommy on January 10, 2007, 06:57:45 AM

Hi everyone...

I'm fairly new to this board.  I was just wondering if there are many folks out there who's CHILD is on dialysis or has gone through/is going through a transplant...

My 2-year-old had a transplant about a year ago, and I'm finding that there aren't many people that have been in my boat, at least in the "real world"...I'm hoping to connect with some people who have youngsters that can identify!!!

Title: Re: Anybody with a child on dialysis or who has gone through transplant?
Post by: okarol on January 10, 2007, 08:07:35 AM

Hi Jessica - Good to see you here! I  know you from caringbridge!
I cannot believe Gavin is already 2 years old - such a cute guy!
Have you also posted with The National Kidney Foundation? There are
message forums for transplant recipients and patients - you may find
someone there http://www.kidney.org/patients/mboards.cfm.  You may
find parents of young recipients that post here - and they sometimes have
a chat http://www.kidney.org/transplantation/livingDonors/shareEmail.cfm
There's also a email discussion for living donors - I know there are a few parent's
on the NKF listserve http://www.kidney.org/transplantation/livingDonors/index.cfm.
I think Gavin's story is unique but I am sure there must be someone with a
similar story.
Best wishes!
Karol

Title: Re: Anybody with a child on dialysis or who has gone through transplant?
Post by: okarol on January 10, 2007, 08:31:54 AM

Here's another option http://www.aakp.org/aakp-library/Parents-Support/index.cfm
it's a listserve for parents of kids with kidney problems.

Title: Re: Anybody with a child on dialysis or who has gone through transplant?
Post by: KidneyMommy on January 10, 2007, 08:54:21 AM

HI Karol!  Good to see you here!






EDITED: Moved Thread to Proper Topic, Dialysis General Discussion - Sluff, Moderator

Title: Re: Anybody with a child on dialysis or who has gone through transplant?
Post by: carolyn77531 on February 08, 2007, 04:44:14 AM

i understand your situation..my daughter received a transplant when she was 5yrs old.....we went thru dialysis before the transsplant...there wasnt hardly any sites i know about...i didnt want to take the time to know another parent..i just wanted a normal life...so, i kinda shut myself out.but., im going thru this again...she rejected her kidney  back in oct of 2006..back on dialysis.....getting back on the list soon..i made a promise this time i will find people who are in the same boat..