I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Brightsky69 on April 28, 2011, 09:54:15 AM
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:'( :'( I had labs done this morning and less than an hour ago I get a calll from my transplant clinic saying that my creatinine was up to 2.8 , my H&H was really low and that there was protien in my urine. And that they were going to have to put me back in the hospital for a few days. I felt like someone took all the air out of my sails. :'(
I felt completely defeated. They even told me they had a bed waiting for me.
I was driving home to get my netbook and a pillow for my stay. My doctor called me and said they hadn't gotten my prograf level back yet. He said if my prograf level was high then they would just lower my dose and check me again by Monday or tuesday....with NO hospital stay. Whew! :pray; BUT he said if my prograf level was good and me with a high creatinine level then thats bad and they would have to put me in the hospital.
So...I am waiting on his phone call and prey that they only want to drop my prograf level. :pray;
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:grouphug; :grouphug; :grouphug;
It is so very difficult to get news like this.
I'm thinking of you.
Aleta
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Thanks Aleta, I stillhaven't gotten a phone call fromthe Doc yet. No news is good news......right?
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:'( Not so good news. The clinic nurse said that my prograf level is fine and to get a good night sleep tonight (HA!) they will admit me tomorrow morning. :'( :'(
I am just getting over a UTI so I am preying that is what messed me all up...and it's all fixable. :pray;
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Let's keep that good thought!
There is no need to "borrow trouble" as my mother used to say. Soooooo, until you have other news, it is just some left over from that UTI. This is what I am hoping for. Something that you don't need to really worry about and will take care of itself or the docs can easily handle. I am continuously amazed at the powers of modern medicine.
:pray; :pray;
Aleta
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I am trying to keep it positive. I just called a co-worker to let her know what is happening. My bosses already know. I joked with her about me complaining earlier this week about how I needed a vacation....I joked "God...I didn't mean it like this!!" ;D
Be careful what you wish for.
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So sorry but at least they're on it! glad you'll be able to keep in contact with us ;) and will be waiting for news. Take their advice and get some good rest/sleep as you know they'll keep ya up as much as their able once your there. Best of good wishes to you.... :flower;
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I agree, at least your team is on it and is being proactive in treating you. Keep positive and take it easy tonight (as much as you can.) :grouphug;
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:grouphug; :grouphug; :grouphug;
It's all I have at the moment....but at least I made you laugh earlier!!! ;D
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Thanks :) I will get to bed early and I will have my netbook in the hospital. I'll try to keep you guys updated via my phone....the hospitals wifi won't let me on IHD. ::)
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Sorry to hear Brightsky. Hope it's just a med change and some fluids. At least you have time to prepare to go in is a positive spin on things. Now you will have your netbook, pillow and extra clothes and toiletries than using hospital issued.
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Good luck luv!! Thinking of you! :cuddle;
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Thanks everyone....It's nice to be able to talk about it with people who know what I am going thru and have been where I've been.
Your my peeps!! ;D :grouphug;
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Sorry, I should have bought some peeps so you could have more peeps with you on your stay Brightsky ;D :rofl;
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hope your sleeping but.......... just kinda funny to hear about not being able to get into ihd.. while training one day (for nxStage), i went out to my computer to find something to show them and it wouldnt let me in there either.. harummp!!
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watching the wedding and dreading the phone call to come.
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Well I hope you get a room with a view and hopefully your hospital is a one bed room facility. Good Luck Brightsky, hope you get out by Sunday.
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Thinking of you today! :grouphug;
Aleta
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fingers crossed for you brightsky.
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Thinking of you and hoping for good news!! :cuddle;
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It's 11:14am and they still haven't called. Not that I am complaining. Chris.... ;D
Thankfully the kidney wing of the hospital is all one bed rooms.
I am sure it's all going to be ok. :thx;
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We need a fingers crossed emoticon!
:clap; :clap;
:cuddle; :cuddle; :cuddle;
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We need a fingers crossed emoticon!
I actually HAVE one of those!! just need to figure out who to send the clip art to....any ideas?
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Iam in my room and already looking to get out by sunday or monday. They have me drinking barium stuff for a cat scan
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:grouphug; :grouphug;
And here is to everything being just hunky dory! :2thumbsup;
Get some rest....
Aleta
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Gotta love that barium taste! :sarcasm;
Hope test comes out good with no problems.
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Hope you get better soon. :pray;
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Freedom!! My creatinine dropped to 2.0 and they let me go....everything else came out clean. Doc said I may have gotten a little dehydrated. They are going to do labs again on Monday.
I wasso scared it was going to be rejection.
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That's great!
How did you feel beforehand? When I get deehydrated, I do not feel so good and that's when I am admitted.
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:bandance; :cheer: :bandance; :cheer:
Let's :beer1; to this diagnosis!
:wine;
I'm soooooo glad that it was nothing serious! :2thumbsup;
Aleta
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:yahoo;
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This is the best one can hope for. If dehydrated, the BP should be low and it should be dizzy when standing up from sitting.
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:cheer: :clap; :2thumbsup; :yahoo; Great news!
At 4.5 weeks post transplant, I have found my creatinine levels are affected by how much water I drink. If I do not drink between 2000 and 2500ml of water a day, my creatinine goes up on average .20 points. Post transplant, I am finding it almost sickening to drink that much of anything in a day, let alone water. :banghead; I have to consciously force myself to drink that much water even though I drank bottled water like a fish before the transplant. Go figure.
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sooo glad to hear!!!!
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Freedom!! My creatinine dropped to 2.0 and they let me go....everything else came out clean. Doc said I may have gotten a little dehydrated. They are going to do labs again on Monday.
I wasso scared it was going to be rejection.
:pray; :2thumbsup; :cheer: :cheer: :cheer: :cheer: Yayyy! Good news! Love it!! :beer1;
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Peep's - Covered (and on clearance :rofl; )
"Can I get a break?" - How about a Kit Kat Bar now after all that? ;D
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:clap; :clap; :clap; so happy
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BSky I hope you get out of the hospital soon!!! I am glad it wasn't a rejection!!
xo,
R
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Thanks for all the support. :grouphug;
The doc also said I need to stay off the salt. Shame on me....I have been partaking on some salty things lately. I have been "in love" with hot dogs lately. No more!!
It's been hard to drink a ton of water. It's getting hot outside and my office has some messed up AC. It's 63 degrees in here now.....burrrrr.
The temp makes it hard to drink my ice water. So I am drinking cups of hot tea.
Jie - I was finding my BP was on the low side....And I was geting out of breath and dizzy when I treid to do anything....like take a shower. I figured it was my anemia. Once I was hydrated again...my H&H came back up some.
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Brightsky, don't say no more to hot dogs, just moderation. Or when you do, drink more fluids than normal. I like fry's, but Most places over salt the suckers, so I don't get those to often.
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Thanks ! :) I am drinking and staying off the salt. Now I need to get my butt off the couch and excercise some. ::)
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I am SO glad it is going better with you.
Don't excercise !!!!! Just think of it as "repetative movements" :cheer:
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I'd love to get a dog. But the Bf is highly allergic. ::) I had a big doggie once and she was great.....never let me miss a walkie. I would get home from work and about an hour later she would bring me her leash. ;D I could not resist that cute face and big brown eyes.
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Dogs are perfect companions. BF's, well maybe.
Ed
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Dogs are perfect companions. BF's, well maybe.
Ed
True ;D
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Dogs are perfect companions. BF's, well maybe.
Ed
True ;D
lol :)
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go in for labs on Thursday....fingers crossed.