I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: jules1962 on April 27, 2011, 12:26:56 PM

Title: Hello From a Dialysis Employee
Post by: jules1962 on April 27, 2011, 12:26:56 PM

Okay, don't get out the bats and run me off just yet.  :Kit n Stik;  I have been lurking for a while.

I have been working in an independent Dialysis center for a year. I am not a nurse, or medical assistant or social worker or a dietitian.

My "title" is Financial Coordinator, and what I do is assist the SW and RD with prescription assistance programs, prescription grant programs and grants through the AKF. I am the AKF HIPP liaison for our clinic as well.

I had never worked in a medical related field prior to this so everything has been quite the learning experience.

I work with almost 100 patients in two locations plus our PD patients.

I enjoy reading the view from your side, I have encouraged my patients to check out IHD too. I have also told both of our physicians about the site.

I love being able to enlighten our patients about programs available to assist them when some of them had no clue any such assistance existed.

Anyway, I am here, and I like you guys!

Title: Re: Hello From a Dialysis Employee
Post by: willowtreewren on April 27, 2011, 01:53:55 PM

 :welcomesign;

It is great that you are here and even better that you are telling others about this site!  :2thumbsup;

Stick around!  :waving;

Aleta

Title: Re: Hello From a Dialysis Employee
Post by: WishIKnew on April 27, 2011, 02:16:42 PM

I'm glad you're here, I'm glad you like us!    :welcomesign;

Title: Re: Hello From a Dialysis Employee
Post by: Rerun on April 27, 2011, 03:26:32 PM

Hi Jules, and welcome to IHD.  I'm glad you pass our sight around.  The more people that read this site, the more educated they become.
It is also a great site to realize you are not alone. 

So, tell me, do your doctors make rounds at the center with the patients right next to each other? 

Glad you are here.

Rerun, Moderator    :welcomesign;

Title: Re: Hello From a Dialysis Employee
Post by: Zach on April 27, 2011, 03:35:09 PM

Welcome to our community!
 :beer1;

This year I'm receiving Renvela from Renassist and have just been approved by HealthWell for Sensipar reimbursement.
Last year it was AKF Part D.

Thanks to these programs, I can take my most important medications.

8)

Title: Re: Hello From a Dialysis Employee
Post by: greg10 on April 27, 2011, 03:53:34 PM

Welcome to the forum, Jules.

I am glad to hear about your good work.  However, the drugs are still too expensive and not much has changed from 2006 where this thread talked about the high cost of Sensipar (Cinacalcet) for example, a copay of $600 a month:
http://ihatedialysis.com/forum/index.php?topic=1246.0

There was a response from one of the posters in that thread that the high cost of drugs is justified by the research they have done.  But I beg to differ in that in many cases, and cinacalcet in particular, the original research was sponsored by the National Science Foundation, then patented by the individual scientists who then formed a company which in turn was bought out by a larger company (Amgen) and finally marketed at a very high price for what could be manufactured at few pennies per dose.  These are the typical stories in the pharmaceutical industry.  Do you have a point of view on this and how do we solve the problem of high cost of drugs?

Title: Re: Hello From a Dialysis Employee
Post by: galvo on April 27, 2011, 10:11:38 PM

 G'day, Jules, and  :welcomesign;  :ausflag;

Title: Re: Hello From a Dialysis Employee
Post by: peleroja on April 28, 2011, 07:51:00 AM

Welcome to the group.  I think it's great that you are spreading the word about IHD.  The more, the merrier. 

Title: Re: Hello From a Dialysis Employee
Post by: paris on April 29, 2011, 01:52:50 PM

Welcome to the site and thanks for telling others about us.  This group has helped me through good and bad times and understands more than any doctor of relative what I feel.   We learn so much from each other.  Looking forward to reading more of your posts.  Welcome to IHD.   :2thumbsup; 



paris, Moderator