I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: cath-hater on April 26, 2011, 11:13:35 PM
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I'm just wondering what is your daily routine and is it as full as mine.
I usually get up at around 7:30am. My wife gets up and gets my son up. She gets him ready for school. By 8am, I'm out the door with my son. I take him to school in the mornings. Then I'm off to work. I get there by 9am. I do my usual 8 hours everyday. I leave around 5pm. I get home at about 6pm. As soon as I get home, I get my machine ready. I get hooked up and do 1 fill. I disconnect and have dinner. Around 8pm, I do another exchange and then disconnect again to jump in the shower and get ready for bed. In bed around 10pm and wake up in the morning to do it all over again.
It just seems that if I'm not dialyzing, then I'm working. There's not much "free time" in between.
I wonder when I'm 60 or so, will I still be able to keep this up? Wonder if my peritoneum will last that long? Hmm? Sorry, I'm just thinking out loud here.
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My Blokey gets up at 8ish, works full-time and goes straight to haemoD immediately after work on MWF, then has a forty minute drive home (gets home at about 11ish.) He's also doing a part-time university degree.
When he was on PD it seemed to eat into most of his day, everyday. PD didn't work for him and although he was disappointed, it did mean that we got our weekends back, where all we have to worry about are diet/fluid restrictions and medication. At weekends he can pretend that he's fit and healthy because he's not thinking of dialysis ... *grin*
It's crazy what you have to put up with in everyday life just to stay alive, eh?!
;D
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While Carl was on dialysis this was our routine:
Alarm went off at 6:00 AM.
We arrived at work at 7:15 AM
Left work at 5:30 PM
Got home about 5:40 PM and immediately started the NxStage set up.
I started dinner....
Cannulated Carl about 6:20 PM.
After he was settled, I served him dinner, which he ate one-handed (I always cut his meat! :lol;)
We usually unhooked around 9:30 PM.
I knocked down the machine and cleaned up the supplies (and set up supplies for the next day) while he held his sites.
In bed by 10:00 or 10:30.
Next morning started again.
Weekends we had to do ALL the regular household chores....
Definitely a treadmill, but it kept Carl VERY healthy and able to work those long hours.
Aleta
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Up at 6:30 - unhook from PD cycler and tear it down.
Get son up/breakfast/ready for school
Take son to school at 7:20
Now the day is mine for housework/exerciize/ grocery shopping/ dr appointments/ helping my mom/ visiting with friends/ napping/ pay bills, etc
2:30 pick up son form school
3:30 husband home from work (he goes in REALLY early!)
I make dinner/ 4:30 we eat dinner
In the evenings I help with homework, we walk the dog, do yard work, or whatever needs done/ watch TV
I set up my machine by 9
9:30-10 bed
Right now we are getting ready for a yard sale and packing to move, so that's mostly what my days are filled doing. And, of course, IHD message board and facebook! :cheer:
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When I was on PD I got up around 7, unhooked and dismantled the machine. Did whatever I wanted to all day long, prepared the machine around 7:30 pm and hooked up at 9,bed at 11.
Now, on dialysis days, I get up around 6, take my BP medication, go back to bed until 8:30, eat breakfast and out the door at 9:15 to go to dialysis clinic. Come back around 3, take a nap, and back to bed around 10 or 11. Hemo really wipes me out much more than PD. I sure miss my PD.
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Up at 5am outta bed about 5:20.
Shower cup of coffee wit with Karen for a bit
6:45 out the door for work hit wawa for coffee paper and a roll or bagel
at work 7:15 leave work between 4 & 5pm depending on how busy.
Shopping if need be then home.
karen at home around 5:30-6pm
talk about day watch Tv play with cats have some tokes
eat dinner
set machine up around 7:30 in bed around 8:15 watching tv whikle hooked up
asleep around 9:30-10 just to hear the alarm go off and do it all over again
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I am on Hemo D.
Get up at 5, make dinner for drive home at night on Mon, Wed and Fri
Get ready for work, leave for work at 6:20
Get to work at 7:10, get off at 3:10 on Mon, Wed and Fri for drive to D Center
Hooked on from 3:45-7:15
Arrive home around 8:15
Go to bed at 9 or 9:15.
On Tuesdays and Thursdays, I leave work at 4 or so, go home, help with dinner, clean kitchen, go help hubby with horses, do laundry, go to bed about 9:30 or so.
Some days if I really think about it, I don't know how I do it. If I stopped though, not sure I would feel as energetic as I sometimes do now. I love doing Hemo, because for just a few days, I can sorta "forget" about D and live my life mostly like I was free.
Good Luck! :waving;