I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: abondanzamama on April 17, 2011, 05:40:06 AM
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Hi, All. I've been lurking at this site for months. Grateful for the perspective. My Beloved Hubby Joe, whose AV Fistula operation was performed 12/14/2010 just passed away on Friday. He had been diagnosed with Stage 4 last year, and his lab stats were holding steady on the fence between Stage 4 and ESRD. He was 84 according to legal chronology, but he was ageless -- ask anyone who's ever known him. Obviously, this is my emotional roller coaster time. My Joe would approve of (and insist on) my emotions running freely no matter what. I was gaining INVALUABLE insight from IHD, ever since I found it online the day My Joe was informed of his Stage 4 status. He was never formally told "Hey, you have CKD," but our doc did let him know he was "spilling more protein." (Joe used to be a medic during the Korean War in England), and was a former lab tech for Shell Oil Development and Raytheon, so he kind of knew what was going on. I asked the primary care doc and the nephrologist what to do differently for him, diet-wise, and they advised me to maintain the best diabetes instructions, they would be the same. We did attend Kidney Care Classes, and Frankly, My Dear, My Joe didn't give a damn. (Well, he kinda did for my sake). He had not yet needed to use the fistula, and apparently it wasn't quite fully developed yet. But the hospital neph said he would probably be starting it during his hospital stay. We never got that far, and I consider it a great blessing not to have had that added aggravation.
Like I said, I have been lurking for months. I feel like I know so many of you. I always felt that I woulda, shoulda, coulda joined in earlier, but I was prioritizing quality time with Joe. I would have brought him around to the pc and y'all once dialysis began. We had attended an orientation at WellBound, and were going to go for self-dialysis at home. I was going to take state disability (approximately half pay for a limit of 6 weeks paid leave per year in California). Lots to share on the caregiving board when the time comes, if I am still welcome there.
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abondanzamama, I am so increbily sorry for your loss. It sounds like you got the right information and were doing the right things. Joining or not isn't what was important at all - your time with Joe is what was important. I'm glad the site was here to help answer your questions and hopefully provide a little hope and comfort. Hopefully we be there for you now - you are always welcome here. Allow me to start with a: :grouphug;
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You will always be welcome here. In fact, during your emotional roller coaster, we are here to support you.
You need some :grouphug; :grouphug; :grouphug; right now!
And since you already "know" us to a large extent, I'm glad we are getting the chance to learn more about you! :waving;
:welcomesign; :welcomesign; :welcomesign;
And more :cuddle; :cuddle; :cuddle;
Aleta
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You will always be welcome here. Condolences on your loss We are here for you if you need to vent or cry or whatever. Please don't feel you have to leave.
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Dear abondanzamama, like all the others have said, you are always welcome here. I'm so glad you finally joined. Joe sounds like a very smart man, and I think he probably knew to check out right before going on dialysis. You have to admire him for that. Although, leaving you was probably very hard on him. I'm so sorry for your loss. He is in a much better place.
Rerun, Moderator :welcomesign;
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As others have said, the welcome here is always warm for any member of the kidney 'family', however connected!...
May your husband rest in peace...
I'm thinking of, and praying for you...
Love...
Darth....
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So sorry for your loss :grouphug; and I would have liked to get to know Joe here also. You are of course welcome here, any time and for whatever you need.
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Please accept my deepest sympathies..... may your Joe rest in peace and you find comfort an peace at this difficult time.... :grouphug;
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Abondanza, I am so sorry for your loss. As others have said, we are here for you at this awful time. I certainly do hope to see you in the future on the caregivers board and anywhere else you feel like posting.
R.I.P. Joe
:grouphug;
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I'm so sorry for your loss :grouphug;
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May Joe rest in Peace!
I wish you all the best.
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I am sorry for your loss, your Joe sounds like he was a wonderful man- :grouphug;
you are definitely welcome here! I look forward to hearong any stories about you two that you want to share!
Julie
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I'm so sorry for your loss. Your Joe sounds like a gem of a man. :grouphug;
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Am so sad for you. Please accept my sympathy. Wishing you strength and courage through this difficult time. :grouphug;
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I am so sorry for your loss.
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I'm so sorry for your loss, abondanzamama. But welcome. I'm pleased you've de-lurked.
*huggles*
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Oh, my heart aches as I read your introduction. I wish I had met Joe. He sounds like a special guy. I am so very sorry that you have lost him. Please keep posting and share your thoughts. Other caregivers can learn from you, too. When we share our sorrows, others can help us carry the load. I am glad you introduced yourself and look forward to reading more posts from you.
My deepest sympathy to you. :cuddle;
paris, Moderator