I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: -Lady Noir- on April 02, 2011, 01:45:31 PM

Title: Allopurinol
Post by: -Lady Noir- on April 02, 2011, 01:45:31 PM
Is anybody still taking Allopurinol after their transplant? Is anyone been taken off it after their transplant?

Mikes got an extremely sore knee today, randomly. Hasn't done any exersize or heavy lifting. He got taken off his Allopurinol the day after his transplant. Could this be gout?
Title: Re: Allopurinol
Post by: Jie on April 02, 2011, 10:21:25 PM
I took it before transplant and was taken off it after my transplant. I have not had gout since taking it and after my transplant.
Title: Re: Allopurinol
Post by: Chris on April 02, 2011, 11:09:28 PM
That does not sound vagly familiar from any of the things I was on post transplant, post OR.
Title: Re: Allopurinol
Post by: -Lady Noir- on April 03, 2011, 01:21:00 AM
True i heard some bad things about the drug Simvastatin, for high cholestrol.. hes also on that. Apparently that can cause sore joints as a rare side affect.
Title: Re: Allopurinol
Post by: Sugarlump on April 03, 2011, 01:45:57 AM
Not that rare side effect either! I took it for 2 weeks terrible joint pains stopped and was fine. Also can cause kidney failure!!! A lot of people in England refuse to take it. I settled for taking garlic capsules instead no side effects from that!
Title: Re: Allopurinol
Post by: RichardMEL on April 03, 2011, 11:41:41 PM
Yes, I'm still on alopurinol post tx. I thought it was odd that I would still be on it..... I might ask about that at next clinic.
Title: Re: Allopurinol
Post by: bette1 on April 04, 2011, 09:23:26 AM
I was on allopurinol for gout post transplant.  Gout is caused by uric acid and the thinking may be that now that he has a working kidney his uric acid would go down and also the gout symptoms.

He may want to go to a specialist to look at his knee.  I was incorrectly diagnosed with gout.  I had bone damage to my knee.  It could be any number of joint problems.  Check with your doc.
Title: Re: Allopurinol
Post by: -Lady Noir- on April 04, 2011, 02:33:23 PM
Not that rare side effect either! I took it for 2 weeks terrible joint pains stopped and was fine. Also can cause kidney failure!!! A lot of people in England refuse to take it. I settled for taking garlic capsules instead no side effects from that!

 :secret;

Oh my! Thats crazy.. can cause kidney failure?! I was annoyed that they chucked him on any drug for cholesterol without any sort of advice or anything.  :urcrazy;
Title: Re: Allopurinol
Post by: RichardMEL on April 04, 2011, 08:57:38 PM
I know this is going OT, but I've so far avoided the cholesterol stuff, but it is VERY common since the post-tx cholesterol shoots up something shocking - I went from 4.3 to 6.2. Last check I was down to 6.0 which is real borderline. They muttered about putting me on liptor or something, but let it go for now - I think the bigger priority is to get my PTH back in normal range first then worry about the cholesterol.
Title: Re: Allopurinol
Post by: Sugarlump on April 05, 2011, 01:22:13 AM
Avoid this statin like the plague.
I've told you what to do ( a million times)  :boxing;

GO AND BUY SOME GARLIC CAPSULES BETTER STILL I'LL POST YOU SOME men!!!!!     ;D  ;D  ;D
Title: Re: Allopurinol
Post by: Sugarlump on April 05, 2011, 01:33:39 AM
Not that rare side effect either! I took it for 2 weeks terrible joint pains stopped and was fine. Also can cause kidney failure!!! A lot of people in England refuse to take it. I settled for taking garlic capsules instead no side effects from that!

 :secret;

Oh my! Thats crazy.. can cause kidney failure?! I was annoyed that they chucked him on any drug for cholesterol without any sort of advice or anything.  :urcrazy;

I've learnt the hard way to question any medicine they want to put me on. Statins are a definite no-no. Can generally control cholesterol with garlic capsules and watching saturated fat intake.  :) I'm trying to educate RM about the powers of garlic. They used this for hundreds of years!
Title: Re: Allopurinol
Post by: RichardMEL on April 05, 2011, 01:49:14 AM
I prefer satin myself...... >:D
Title: Re: Allopurinol
Post by: Sugarlump on April 05, 2011, 02:30:38 AM
I know.  ;D That might make your blood pressure go up  :-* as well!
Title: Re: Allopurinol
Post by: -Lady Noir- on April 05, 2011, 01:00:41 PM
I know this is going OT, but I've so far avoided the cholesterol stuff, but it is VERY common since the post-tx cholesterol shoots up something shocking - I went from 4.3 to 6.2. Last check I was down to 6.0 which is real borderline. They muttered about putting me on liptor or something, but let it go for now - I think the bigger priority is to get my PTH back in normal range first then worry about the cholesterol.

Mikes cholesterol was like, 5.4 or something.. is that even high??
Title: Re: Allopurinol
Post by: Sugarlump on April 05, 2011, 01:14:50 PM
No 5.5 and under is fine,  :2thumbsup;
(I'll answer for Rich as he's probably still in bed!)
Title: Re: Allopurinol
Post by: RichardMEL on April 07, 2011, 06:46:20 AM
5.4 is good. I'm jealous!! (note to self: stop eating chocolate might help!!!  >:D). I always thought under 6 was "OK" but definitely under 5-5.5 is considered great. Well done Mike.
Title: Re: Allopurinol
Post by: Sugarlump on April 09, 2011, 10:28:57 AM
I don't think chocolate is necessary the culprit here
Top ten things to avoid include
EGGS*CAVIAR*LIVER PATE*SHRIMP*BUTTER*OILY FISH*CHEESE*PROCESSED MEATS*ALL SHELLFISH* FAST FOOD JUNK*

How much caviar have you eaten recently???  :rofl;  :rofl;  :rofl;
Title: Re: Allopurinol
Post by: Chris on April 09, 2011, 10:25:11 PM
Reply to wrong thread, whoops!
Title: Re: Allopurinol
Post by: RichardMEL on April 11, 2011, 12:18:30 AM
Does watching Black Caviar the amazing racehorse count????  :rofl; :rofl; :rofl; :rofl; :rofl;
Title: Re: Allopurinol
Post by: Sugarlump on April 11, 2011, 04:30:27 AM
Only in England next summer  :secret;
Title: Re: Allopurinol
Post by: Elvis on April 11, 2011, 10:21:29 AM
I was taking Allopurinal before my TX for the gout as a preventative medicine. Worked great! Now after my last hospital bout with an infection the DOC put me back on it. I'm  sure every case is different. My problem turned out to be Necrosis  of by Bones around the knee. What that means is the blood supply was deminished or compromised at some time after the TX. The DOC put me on Nefedipine to try and get more blood to the bones. You may want to talk to your Nephrologist about that. I'm still having kne and ankle pain, but I just started back on the Allopurinal. Good luck to you. Stay on top of this and ask lots of questions of your doctors.
Title: Re: Allopurinol
Post by: -Lady Noir- on April 12, 2011, 02:04:42 PM
Thanks for that! And welcome to IHD  :2thumbsup;
Title: Re: Allopurinol
Post by: paris on April 15, 2011, 06:39:09 PM
I'm still on it post transplant.  I still get some pain in ankles but nothing like before. I couldn't even walk before taking the drug.

Regarding post transplant drugs and side effects - prograf can cause kidney failure.  That is why the keep such a close watch when you are on it.  I think everything has a label that says "may cause kidney failure"   LOL.   My transplant team is very good about explaining every drug and answering all my questions.