I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Atooraya on March 19, 2011, 09:14:11 PM
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I don't just hate dialysis. I'm sick of it.
How do you handle it day in and day out? It's tough.
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Very good question.
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Fred, are you thinking about getting a transplant?
I cannot recall if you had considered it.
Not that it's a magic cure, but it's a different way to go.
:cuddle;
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You are so right, it is tough, every day is different. One day you are fine the next you feel like sh*t. It is not just the dialysis, its every thing else that goes with it. but what is the answer, you have to keep going no matter what.
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Otto has a picture of our kids and EVERY session they show it to him, as he never wants to put the needles in. :'(
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Otto is a wise man!
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My loving husband of 17 years is on Dialysis with me, and we go in on the same days. That makes it harder and easier all at the same time. What I do is focus on are the blessings in my life. Do I have down days, yes we all do. The key is not staying in that place. I hope you find comfort in knowing you are not alone in your struggle, and this site has many people who care about you. Hope you find your sunshine soon!
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I think the key for me to remember is that I still have tomeet my obligations towards my family. It it wasn't for them it would be really difficult to go on.
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I think the key for me to remember is that I still have tomeet my obligations towards my family. It it wasn't for them it would be really difficult to go on.
That's the best reason.
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It's bloody tough!
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Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr
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I hate the waiting list.... southern cal waiting list is very long.....
Have you thought about Home hemo.....?????
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My perceptions is home hemp is less friendly vs pr.
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I thought home hemp was popular in CA..... :P
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Are there any advantages to home Hemo vs PD?
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I thought home hemp was popular in CA..... :P
Hemp is very popular in California :rofl;
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Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr
We recently met with the transplant team in Los Angeles and were told the wait time now for an O blood type kidney is 10 years.
If I were you I would go to Scripps Green Hospital in La Jolla. Jenna switched her wait time form LA to there (which was 3 years at the time) and got a pager and 2 calls in 3 months! The wait time is shorter there. You can find out more info here: http://www.scripps.org/services/organ-and-cell-transplantation/medical-services__kidney-transplant-program - To learn more about our kidney transplant program, call us at 858-554-4310 or fill out the Transplant Candidate Application (PDF, 47.6 KB) and Transplant Contact Form (PDF, 20.9 KB) and fax to 858-554-4311.
If you cannot travel to get on a shorter list, but have a willing donor, can you ask about a swap program at your transplant hospital?
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Yup, it can be "trudgery" - as we've defined it here on IHD," a trudge through drudgery." Some days, all you can do it slog through the muck and hope for dry ground. Maybe write down a list of reason why you are still going to keep with you? Or pictures of the reasons, if they have faces.....
Honestly, there were days that the only reason I kept moving was because the cat expected me home to feed her. And ya know, sometimes that was enough. They don't have to be big reasons. A warm, full kitty tummy in the sun that I could rub was enough sometimes....
:grouphug;
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I'm sick of it too, but right now the alternative is worse. I like the hemp suggestion but it's hard to get hold of in my genteel Sydney suburb, my current plan is to grow it in my backyard so I'm searching the internet for clues.
Another thought...could we not have a specialised thread on this...something like "Hemp Help for HD Buffs"...would that be legal, Mr. Moderator?
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I like the hemp suggestion but it's hard to get hold of in my genteel Sydney suburb, my current plan is to grow it in my backyard so I'm searching the internet for clues.
Another thought...could we not have a specialised thread on this...something like "Hemp Help for HD Buffs"...would that be legal, Mr. Moderator?
We've discussed it before - especially how smoking it will keep you off the transplant list.
Medical mj is legal in my state now.
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Okarol, im on a transplant list in L.A. 6_7 year wait. Grrrrrrr
I know UC Davis (in Sacramento ) is quite aways for you, but their waiting list is so much shorter than the 6.7yrs. Depending on your blood type it could be anywhere from 2-3yrs, You can either multiple list or transfer your time over.
When I started PD I decided I couldn't and wouldn't go anywhere before I saw the kids grow up, graduate from college and start a family of their own.
So I did and still do everything I can to stick around :)
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I don't just hate dialysis. I'm sick of it.
How do you handle it day in and day out? It's tough.
No one likes dialysis...but we have to realize its part of our lives and must accept it... In my opinion, that once you accept it as part of your life..you can move on and live your life to the fullest....Its all in your attitude...
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No one likes dialysis...but we have to realize its part of our lives and must accept it... In my opinion, that once you accept it as part of your life..you can move on and live your life to the fullest....Its all in your attitude...
OMG, you hit the nail right on the head!!!!
My late sister hated dialysis so much (in the beginning). She wasn't doing so great physically, nor emotionally. Her lab numbers were horrible.
Then one day she decided that "it is what is it is, I'm gonna make the best of it" Everything improved, her emotions, her activity level, and her her labs numbers too.
So yes, accepting it is the biggest step. ACCEPTANCE IS KEY!! Everything flows nicely after that.
I myself, knew it was my reality and accepted right from the start. My lab numbers were great. I was always referred as the "poster child" for my unit.
I was asked by the unit if I would talk to other patients if needed. Anytime we had new patients who were struggling with PD, they were asked if they wanted to speak to other patients on PD. They were always given my number or I was given theirs.
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Well, look I'm with you on all of this "acceptance" stuff. Intellectually, I get it.it is what it is. The kidneys are not working anymore. But we have to do so much to make this work- multiple exchanges per day. Receive the material. Store it. Watch for peritonitis. Don't eat this don't eat that. It's just a lot of stuff. I'll make it work until the transplant. But it ain't easy.
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I thought smoking "Pot" made people want to eat. Would that be a good thing for Renal Patients? The diet is so restrictivefor kidney disease!
lmunchkin :flower;
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I wasn't thinking about Pot and my appetite, I was hoping it would help me forget I'm on dialysis. I started off with the 'right attitude' moved on to 'studious determination' worked my way through 'seeking God's will' and am currently trudging my way through drudgery.
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Well I understanding of it is that it does all of those things and more! But eating is definately a major part of it. God I really feel bad for all of you dealing with this disease!
lmunchkin :flower;
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Sometimes I feel sick of it, but when I look at my darling grandson, I know I want to live some more. The nurses laugh when they are cannulating me because I always say (with a big sigh) "It's keeping me alive!"
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Well I've officially been on dialysis for one year now. Wow, how quickly time passes. It seems like it was just yesterday when they cut me to get the catheter in. It's been a strenuous one year. But I'm seettling down. 1.5 more years till I'm in the range of a transplant. Not sure how my life will change with a transplant? Hopefully I'll have a bit more freedom. I really miss swimming pools, lakes and the ocean. My PD nurse has restricted me from going into swimming pools or the lake. I wonder whats the worst that can happen if do go into a swimming pool? Infection at the exit site? So I'll put some antibiotic on it just before and right after. I wonder if that is a good countermeasure. Has anyone had any bad experiences with swimming pools?
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Hey Atooraya! Been wondering where you been and how things were going for you. Personally, I would not chance it! You are so close to transplant, why take that risk? 1.5 years is not that long away! If you swim, and you get some infection, your transplant might be delayed, just saying!
You have been through too much! I would hate to see taking chances like that, you know?
I vote No to now, but YES after transplant!
lmunchkin :flower;
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I thought smoking "Pot" made people want to eat. Would that be a good thing for Renal Patients? The diet is so restrictivefor kidney disease!
lmunchkin :flower;
Imunchkin,
Not everyone is restricted on dialysis. Yes, you much watch postassium/phosphorus at times, but with home hemo, there are many that have a liberal diet and can eat pretty much anything they want. For those that do in-center dialysis, they are very familiar with the renal diet. You are very right, its not a nice diet to be on.....
If one is going to be on dialysis, I would think they would want the best possible treatment available.... and in-center is not the answer with all of the restrictions....This is even harder for those who are unable to do home dialysis as they must follow the renal diet on top of the other restrictions.... Kidney failure is not easy!!!