I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: cfmosher on March 01, 2011, 04:52:12 PM

Title: Hello
Post by: cfmosher on March 01, 2011, 04:52:12 PM

Hi my name is Carrie.  I have been on dialysis for 4 years now. Three years on PD and then switched to home hemo.  Found it to hard to work and do four exchanges a day.  Like hemo but am worried about travelling.  I have summer and spring breaks off and this will be my first spring break on hemo.  I normally would go somewhere but I am not sure how this all works.  I know you have to find a dailysis clinic and book appt. for treatments.  That is about all I know. Would like some tips and advise on travel with hemodialysis.  I love cuba has anyone been there and done hemo there?  Been there on PD and had no problems and would love to go back.  Does anyone have any suggestion on other places to go.  It was -37 today and can't stand the thought of not getting away this break.

Title: Re: Hello
Post by: looneytunes on March 01, 2011, 08:13:07 PM

Hi Carrie and welcome to IHD!   :welcomesign;   My hubby does home hemo with NxStage which allows us to travel pretty much at will.  We just take it along with us.  I don't know if that's an option for you or not but might be worth checking into. 
'
Good luck in your travels, stay safe.

Title: Re: Hello
Post by: galvo on March 01, 2011, 09:55:19 PM

G'day Carrie and :welcomesign;. I can't help you with an answer but someone here will.

Title: Re: Hello
Post by: YLGuy on March 01, 2011, 11:24:32 PM

 :welcomesign; Welcome to IHD. I do not have answers but am interested in reading the other responses.

Title: Re: Hello
Post by: Poppylicious on March 02, 2011, 08:32:49 AM

 :welcomesign; Carrie!

Title: Re: Hello
Post by: peleroja on March 02, 2011, 08:50:13 AM

Hi, Carrie, and welcome to the group.  Do you have a social worker?  I understand the social worker can help you find a clinic wherever you are traveling.  Just a thought.  Glad you found us!

Title: Re: Hello
Post by: Rerun on March 03, 2011, 08:33:08 AM

Hi Carrie, where do you live?  I didn't know people could even go to Cuba and get out!  My gosh there are LOTS of places better to go.  How about Libya (HA  JUST KIDDING)  Do you live in the United States?

Welcome to IHD, I'm so glad you found us.  Lots of information on here.  I would suggest that you stay close to home the first time you travel very far.  You should still have a Social Worker that should arrange travel, but if yours is an idiot than you can make arrangements yourself.  There is dialysisfinder.com (i think) that you just put in the zip code of where you are going and it brings up all the dialysis centers in that area.  You have to have a recent chest X-ray and recent labs and Hepatitis shots updated.  Usually! 

Rerun, Moderator   :welcomesign;

Title: Re: Hello
Post by: Rerun on March 05, 2011, 07:44:35 AM

 :bump;

Title: Re: Hello
Post by: WishIKnew on March 05, 2011, 07:51:49 AM

I do nocturnal PD with my trusty machine.  I have traveled a  little with the machine with no problems, airports were really good about me keeping my machine on the plane with me.  Anyway, can't really address the hemo question.  Sorry.  Good luck with your travels and  :welcomesign;

 :flower;
Diane