I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: willsmom on February 26, 2011, 10:24:36 AM
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Hi Ya'll,
I'm a first time mommy of beautiful son. Because of trauma at his birth, his kidneys are caput (sp?). We use a Baxter Home Choice PD cycler at home and are waiting to reach target weight to get on the transplant list.
Anyone doing the NKF walks? Team William will be at the Fort Worth walk on March 26th.
Take Care,
Will's mom
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Oh my goodness...that must be so hard. There is nothing harder than watching your only child struggle. I hope he gets on that transplant list asap. In the meantime, welcome to IHD. I hope we can be of help to you. :cuddle;
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Hi Willsmom, and welcome to IHD. I'm so glad you found us. I bet you are more than glad to do dialysis on your baby so he can get that transplant someday and then who knows what will develop during his lifetime. Hopefully a process where they can grow his own kidney from his own cells.
You have come to the right place. Good luck on the walk.
Rerun, Moderator :welcomesign;
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Hi Willsmom and welcome to IHD. :welcomesign; It's a great community for education and support. Glad to have you join.
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G'day, Willsmom, and :welcomesign;.
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:welcomesign; to IHD. I'm so sorry to learn of how you are involved with ESRD and hope you'll find info and support here.
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Welcome, Will's Mom. Lots of good information and friends here. Glad you found us!
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Hi Wills mom! My brother and I were kids born with polycystic kidney disease. My bro started D when he was in highschool, I when I was 26 years old. Will sounds like he has a great concerned and caring mama so that is half the battle!
My bro and I do the NKF walks in Ohio...next one is in Whiskey Island in Cleveland!!!
xo,
R
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Thank you for the welcome wagon. Really, PD is the most reliable thing about our lives and I've started started to shrug when people gasp and cringe. There are multiple complications associated with ESRD at such a young age; gastroparesis (hormone related), growth and developement, catheter keeping pace with growth and developement, and changes in diet always change the labs which change meds. I'm blessed to have family that live close and help me love him (my mom does the night shift -retired 911 operator and AF med. tech). My husband also works extra hard so I can stay home ... errr go the the daily appointments with Will.
Please help me keep an eye out for other moms of infants/ toddlers on PD. There is little to no information for this select group and I could use the feedback.
Love one another,
Will's Mom
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precious little heart, with a wonderful family... glad you found your way here. Bless ya all, and :welcomesign;