I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: molldw on February 15, 2011, 11:50:46 PM
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I first had kidney failure when I was nine months old. Welms tumor and later diagnosed drash syndrom. Fun Stuff. My original kidneys were removed when I was 3, I was the first infant on PD (at least at OHSU). First transplant at 5, second at 15 started HD at 19. 3rd Transplant at 20 back on dialysis, forth transplant at 25. Back on dialysis at 29. Did nocturnal for a while, started doing nxstage about 6 months ago and am healthier than I have been in a really long time.
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Welcome to IHD molldw,
Wow you have been through alot from the start of your life. Glad you found us here at IHD. Quess you can help us as much as we can help you. I am glad that you are doing NXStage and that it is going well for you. Hope to see you around the boards.
P&K
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Welcome!
My husband was on NxStage until his recent transplant. It kept him really, really healthy.
Aleta
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All I can say is Wow, you sure have been through the mill a time or three! Welcome to the group. Glad you found us!
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Hello molldw, and welcome to IHD. I'm so glad you joined us. You have lived with this your whole life and we welcome any advice from you. I'm glad you found NxStage. Who is your partner (person that helps you). I lack one so I'm not doing it. I do in center Nocturnal. It works pretty good for me and my days are free.
Rerun, Moderator :welcomesign;
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Welcome molldw!
As the others have said "wow" - 4 transplants under the age of 30 - that has to be some kind of (unenviable) record! You've certainly had a VERY tough run of it, having to live with this your entire life. I admire your strength and resolve! The best news is that NXstage seems to really be working out for you!! Is there any talk of a 5th transplant chance? Would you even consider going there if there was?
Anyway I *know* you have so much to offer us with your long and varied experiences with both dialysis, transplant, kidney failure in general and indeed as a young person living and coping with all this. I look forward to seeing your contributions to our community, and hopefully we can return the favour to you!
:welcomesign;
RichardMEL, Moderator
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G'day molldw and :welcomesign;. Let me add another 'Wow' to your story. You're a tough 'un. Stick around.
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IT'S OFFICIAL!!!
You are now the Official "WOW" girl of IHD!!!
Congratulations!!
:yahoo; :2thumbsup; :clap; :bow;
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I agree...WOW! But welcome to IHD, Molldw! :grouphug;
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An amazing story! I'm not sure what to say - you are incredibly strong to have gone through so much. You have my admiration! We probably can learn a lot from you. We are glad you joined this site. There are so many supportive people here that really care about each other. Post often, we look forward to getting to know you. Welcome to IHD and I will add my WOW !!!!
paris, Moderator
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and yet another WOW! ( and to think while reading your storry, i may be the first to say it... HA!) Increadable life story and im glad your here to share. ANd glad that NxS is working so well for you. Hubby (and i his helper) have been on NxS for a bit over a month and real happy with it as well. Share away, you have us all waiting for more :-)
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Hello and :welcomesign;! I guess all I can really do is add my 'WOW!' here from Phoenix! You sure have been through a lifetime's worth already.