I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: 4thsiblingondialysis on January 24, 2011, 05:51:41 PM
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Hi everyone!
I just found this site and I am so grateful there is somewhere I can go to get great information and inspiration from others when I have a meltdown grieving my once healthy active life.
I'm amazed at some of your stories, what you've been through, and yet you keep such a positive mental state. I don't know how you do it!
I would love to connect with some people who have been on HD for some time to ask questions to as I continue to adjust to this new life.
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wow 4 siblings on dialysis! how does your parent(s) handle that? i would love to know more of your background story. my bro and i both have PKD and were both on the big D. i feel fortunate to have someone in my life who gets it
how do u stay positive while continuing to find folks to be tested and they turn out not to be a match?
xo,
R
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Hi there!
Actually my 3 siblings have all had kidney transplants and are doing well. I'm the only one on dialysis right now. Thank God both of my parents are no longer living (my mom died at 39 of a brain aneurism caused by PKD when I was 14 and my dad passed about 15 years ago). My dad would have been broken hearted if he had to watch his fourth child go through this!
I'm grateful for my siblings who "get" what I'm going through but it's been more than 15 years since they were on dialysis so their memories are a bit faded when I ask them for information. That is why I am so grateful for this website!
Staying positive has been a challenge for me because I was an athlete before all of this happened and to be truthful, I've had quite a few meltdowns on the bathroom floor since this all started.
I look at what you've been through on your signature and wonder how you keep going! How do you?
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Hello and welcome to IHD. Glad you joined us but sorry you have a reason to. It sure sounds like you and your family have been through a lot. My hubby is on home hemo (with NxStage) and has been on dialysis since 2007.
I'm looking forward to seeing your posts. Hope you come back often. :welcomesign;
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Hi and welcome to IHD. Your siblings are probably saying "oh, now you want to know........." HA Just kidding. I'm sorry you have to know. We are here for you and any questions that you have. If you want to vent, we are here for that too.
Rerun, Moderator :welcomesign;
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:welcomesign;
Welcome! There are many people here with a wealth of knowledge. I am also in SoCal. I live in Orange County and am coming up on my 2 year anniversary on HD.
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G'day fsod and :welcomesign;.
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Welcome to the group. Have I got a deal for you. My friend and I run a renal support group that meets the third Saturday of every month at Kaiser Bellflower, 9400 Rosecrans, Bellflower, from 2 to 4 pm. You don't have to be a Kaiser member to attend. We have snacks, great people and lots of experiences. You can IM me for more information. In the meantime, I'm glad you joined!
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Thank you all for your warm welcome! It's so nice to meet all of you and I can't thank you enough for reaching out to me especially since I had a meltdown yesterday. It appears that little things get to me now that would never have bothered me in the past. I seem to have lost the where with all to deal with even the smallest things these days. Dd you have that experience when you first started dialysis?
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:welcomesign; to IHD. I hope (and feel quite certain) that you will find this site as valuable as so many of us do. I hope that you can join your three sibs in the transplant club also...in the mean time, hang in there and keep as physically active as you possibly can. :grouphug;
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Hi there!
Actually my 3 siblings have all had kidney transplants and are doing well. I'm the only one on dialysis right now. Thank God both of my parents are no longer living (my mom died at 39 of a brain aneurism caused by PKD when I was 14 and my dad passed about 15 years ago). My dad would have been broken hearted if he had to watch his fourth child go through this!
I'm grateful for my siblings who "get" what I'm going through but it's been more than 15 years since they were on dialysis so their memories are a bit faded when I ask them for information. That is why I am so grateful for this website!
Staying positive has been a challenge for me because I was an athlete before all of this happened and to be truthful, I've had quite a few meltdowns on the bathroom floor since this all started.
I look at what you've been through on your signature and wonder how you keep going! How do you?
I had a friend once who told me "Man R you are a warrior and you don't even know it." I guess that is how I have been getting by is being in denial and not thinking what I am living with is any more overwhelming or tramatic then what other folks are living with. Are there days that are hard..of course but I allow myself to be sad and cry but I don't allow myself to wallow for days. Being on dialysis has been the ultimate test of my will versus a transplant but I have hope things will work out. Take it one day at a time.
xo,
R
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Hello and :welcomesign;