I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: wj13us on January 17, 2011, 06:51:01 AM
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I came across this site while searching for a copy of the documentary narrated by Edwin Newman about the lack of dialysis machines in 1965.
I was on dialysis for 11 months in the 70's and hated every second of it. I had to be dialyzed for 5 hours 3X per week, could not take the standard 6 hours. I got really sick each and every time. Fortunately my Uncle steeped up and donated one of his kidneys. That was 1973. I'm now (cough cough) 51 years old and will soon celebrate by 38th anniversary with the same transplant. If anything I think it is my hate for dialysis that made my transplant last so long.
Bill
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congratulations on your enduring transplant.
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38 years; I think that''s the longest transplant I've heard of. Many pats on the back to whatever you are doing that it has lasted so long. Welcome to the group.
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G'day, Bill and :welcomesign;.
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welcome!
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38 years! I like to hear stats like that! :clap; :welcomesign;
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Wow. Welcome.
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Hi Bill and welcome to IHD! The longevity of your transplant will be an inspiration to a lot of folks here. Glad to have you join. :welcomesign;
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Wowsers! That's some kidney you have there!
;D
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Hey Bill!
:welcomesign; from another 70s transplant veteran and former dialysis child. My first transplant lasted 34 years almost to the day, and I had a (for all intents and purposes) preemptive transplant last March. I too hated every second of dialysis, though I was only on for a month, and I think I had a total of 16 sessions. Then I had 5 runs in the week before my transplant using a tunneled line and it was just as miserable as I remembered. :P
My theory for myself is that non-adherence contributed to the long life of my transplant. I like yours, too - hate is a powerful motivator when used correctly.
Anyhow, good to have you here and I hope you'll be visiting us often.
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Really fabulous news. Welcome to IHD - here's to your next thirty years - God bless you and keep you well!
Kay
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Hi Bill,
You're unusually lucky with the life of your transplant. Normally they last around 5-7 years before you need a new one.
Given that, the waiting list for a new kidney is absurdly long. The easiest way to shorten it is to prevent most new cases of dialysis. Fortunately, the paper showing how to prevent 90% of dialysis has already been published. Unfortunately, the renal community has kept it out of the media by the simple expdient of refusing to endorse it.
After 8 1/2 years of trying to find a single righteous nephrologist (details are at http://tinyurl.com/healthcrime), I'm now appealing to patients who know how God-awful dialysis truly is to help me get word out about my paper. Could you call up a local newspaper or TV health reporter and tell him/her to contact me? Could you do it to keep others off the kidney machine? Could you do it so you'd be able to get a new cadaver kidney in no time, in case you needed one again?
Best regards,
Dave Moskowitz MD FACP
CEO & Chief Medical Officer
GenoMed (www.genomed.com)
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I came across this site while searching for a copy of the documentary narrated by Edwin Newman about the lack of dialysis machines in 1965.
I was on dialysis for 11 months in the 70's and hated every second of it. I had to be dialyzed for 5 hours 3X per week, could not take the standard 6 hours. I got really sick each and every time. Fortunately my Uncle steeped up and donated one of his kidneys. That was 1973. I'm now (cough cough) 51 years old and will soon celebrate by 38th anniversary with the same transplant. If anything I think it is my hate for dialysis that made my transplant last so long.
Wow! I thought I was pretty lucky to have had my transplant last 20 years. Congratulations on 38 years and counting. I'll bet you are totally compliant with your medications and doctor ordered life style events. I was. I should have had more kids -- LOL.
Bill
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38 years! Tell us your secret and what you did to help keep your transplant for so long??!! I am almost 6 months post transplant and reading your post gives me inspiration! I'm going to do anything and everything I need to do to be just like you!! Congratulations. I am so glad you joined this site. It has wonderful members who help each other everyday. Post often and share more of your incredible story. Welcome to IHD.
paris, Moderator
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:welcomesign; and WOW!!!!!!!
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:welcomesign;
38 + Years is what we all strive for with a transplant :thumbup;