I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Donna360 on December 26, 2010, 06:40:48 AM
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Hi everyone.
Well where do I start? I've been t1 diabetic for the last 30 years and I've known for the last 8 years that my kidneys are slowly divorcing me. At last count (8 weeks ago) my egfr was 23. Can't remember the other numbers but I am back at the neph clinic this Thursday. I've been told for the last 24 months that I would need D in the next 12 months and I've still managed to hold off. Having said that I do believe this time next year i will be on D as my numbers now change every time I go to the clinic.
I feel like crap now and tend to sleep at every available opportunity so God knows what i will be like when I actually need D. I am hoping to have heamodialysis at home and I have a dialysis nurse coming out to my home in a few days time. My favourite saying is "shit happens" and you will see me write this a lot. Having said that I do try and remember that things could be a lot worse.
I feel mentally prepared for it but I am sure I'm not really. To be honest, I just want to fast forward a couple of years so that i know i can cope with it. This forum is fantastic and looks like it covers everything I need to know.
I think you are all amazing and I wish you all the very best for the future xxx
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Welcome :welcomesign; and your right this is a fantastic site!!! i am actually at this moment sitting outside in the dark at the D 'center' where my hubby is dialysizing and where did i check into??.........to "ihatedialysis) lol WE are actually in training for home hemo with the NxStage machine, but because of the holidays, we are incenter today, with me doing his needles but them doing the D. So anyway, it's really good to see you here and you will be so happy you found it. It has given me more than i can believe in reasurance. I do know what you mean about the fast foreward stuff too!! i 'sort of' have that feeling about my training for nxStage. I just want to know we'll cope.. So, welcome to the 'club' it's not so bad you'll see in time :-)
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Hi Donna! I pretty much know just how you feel. I am pre-dialysis also. Like you, I've looked seriously into home hemo with NxStage because I know for a fact that longer, slower and more frequent dialysis is far better for your overall health. I have fsgs and have been watching my renal function slowly deteriorate. My egfr was in the 20's for 5 years, but earlier this year, it dipped below 20 and has been declining a bit since. I am on the transplant list; is this something you might consider? I know exactly how you feel about wanting to fast forward time but at the same time wanting it to slow down so that D will never arise. I figure that if other people can cope with NxStage then I can, too. Welcome to IHD! I know we can help each other out...people here are more than willing to give you advice, information and most of all, encouragement.
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Hello Donna, good to meet you and welcome to our gang. This site is great for learning from other folks who "walk the walk" but also we try to support each other when the going gets tough. Glad to have you here. :welcomesign;
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One thing about dialysis, is it is a slow journey to recovery. Take your time, as time flies faster then we realize some times. One day at a time for now, you will be fine, welcome to our forum, your friends here at I.H.D.
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welcome!
xo,
R
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Hi Donna :waving;
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:welcomesign; to IHD Donna, glad you found us.
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Thanks everyone. Transplant is definitely on the cards for me and my nephrologist has already said I am an ideal candidate for a joint kidney and pancreas transplant. Scary and exciting at the same time! The average waiting time for a kidney in the UK is 3 years but I'm not so sure about a double transplant. There are currently over 7000 people waiting for a kidney but less then 300 waiting for a joint kidney / pancreas.
Like I said in my first post - shit happens.
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Big welcome. Believe it or not, you will actually feel better with dialysis.
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it's great that you joined. My eGFR is 25 so I know what you are thinking about as you look forward at the years to come. You've found a great site to get information and support from others that understand. Please stay in touch.
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I feel like crap now and tend to sleep at every available opportunity so God knows what i will be like when I actually need D.
Donna, you'll probably feel 1,000 per cent better like many of us have...
I am hoping to have heamodialysis at home and I have a dialysis nurse coming out to my home in a few days time.
... especially if you're doing home hemo.
:welcomesign;