I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Kay on December 24, 2010, 02:55:51 PM
-
Hello to all at I hate Dialysis! I keep pressing the introduction button - but nothing is happening so here I am on new topic - sorry!!
My husband has just started CAPD following three months on Haemodialysis - I am with him through every exchange and so far so good. My question is regarding the number of exchanges per day. If we get a late start, then it is difficult to fit in four exchanges - so on a couple of occasions we have just done three, otherwise we end up putting in a bag around midnight and then can't sleep! With the use of the long dwell Extraneal it seems like three exchanges are enough - we see the doctors next week so will ask - but I would like to know if anyone else does three instead of four.
I am looking forward to following the posts on this site - the world of Dialysis is still very new to us.
Merry Christmas folks, Kay
-
G'day Kay, :welcomesign; and Merry Christmas! All your questions will be answered here.
-
hello kay and welcome. sorry i am not on PD but someone else will know how to answer your question.
xo,
R
-
Hi Kay...you have landed in a good place! If your hubby's kt/v comes back good, then you are doing all right with the schedule you are following. My hubby was on PD for 2 years and we used the Baxter cycler for night-time PD. It took some getting used to (sleeping with the sound of the machine running) but was SO worth it in order to have our days freed from the exchange schedules.
Merry Christmas to you and your hubby and welcome to IHD. :welcomesign;
-
Merry Christmas and :welcomesign; to IHD. I am pretty sure that you can find solutions to your husbands PD problems on this site.
-
Hi Kay, welcome to IHD. I'm so glad you found us! I was on PD but it was so long ago I don't feel I can answer your question. I do hemo now. I hope you come back often.
Rerun, Moderator :welcomesign;
-
Hi Kay and welcome to IHD. This is a great site and you will find so much information here. Plus tons of support. Looking forward to reading more of your posts. Glad you joined us. :cuddle;
paris, Moderator
-
Hello to all those IHD members who sent welcome greetings. It is comforting to know as I sit here, gone midnight, that there are people out there who understand the impact of dialysis on daily life. I try to keep my husband in a positive frame of mind but he said tonight that he thought he would have been better off dead! We tried to pre-empt dialysis by going straight for transplant, but it was one of the tests in the build up to transplant that put us in this position - much sooner than we needed to be. The coronary angiogram dye completely ruined what was left of his kidneys (Efgr 21) and resulted in him going into kidney failure then cardiac arrest. He ended up in ICU and we had weeks of pain and suffering because of the CPR they used to revive him. Having been placed in what is called the "Quiet Room" at the hospital - I am just so grateful he has lived to grumble about life! I hope to do my side of the tests in the new year and either give him my kidney ( by taking out antibodies as we are not a match) or do a swap with others in our position.
Wishing all members a very happy and healthy New Year - Kay :)
-
.
-
Hi Henry,
Your message is quite inspirational! I suppose because my husband has now retired (he is 65) he is not too keen on getting up early! This of course impacts on the number of hours in which to do dialysis. I notice that you do your first exchange at 5am - we often don't get moving until 8.30am. Last night we did the fourth exchange at almost midnight and then it is difficult to sleep - so getting up in the morning gets harder. After the holidays I will be back to work (I am a Specialist teacher for Inclusion and an Autism trainer ) so we will have to start earlier. I think you are brilliant for just getting on with life and not letting the dilemma of dialysis deter you!
All the best for 2011,
Kay :)
-
:welcomesign; Kay. Like all caregivers you're in a tough spot...as a patient, I thank you for caring for your husband and caring about him too. I hope you'll find this site as supportive as so many of us do.
-
Hi IHD members,
As we are new at this game, can anyone explain about the PET test. Just when I thought there was only infection to worry about, now it seems they will assess what sort of transporter my husband is. I don't want to mention it to him as he is stressed out enough - but an idiots guide to transport rate would be very welcome. Kay ???
-
.
-
Hi, Kay and :welcomesign; to IHD! There are tons of people here who do PD so you should have no problem finding answers.