I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: plugger on December 16, 2010, 08:59:55 AM
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I just thought there might be more people like me who thought this was a good time to vent:
http://www.dialysisethics2.org/forum/index.php?topic=612.0
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This is going to be my New Year's Resolution, to write to my Congressmen in Washington about this very issue. With whom do you think I should start...state congresspeople or US congresspeople?
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I would start with the feds: U.S. House of Representatives and the U.S. Senate - that's what I'm doing anyway. But its all good! I think we need to stop being :banghead; :flower; wallflowers! (Sorry, couldn't resist)
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I regularly write to my senators (ie Dick Durban); one is D and the other is R, so I can do some bipartisan ranting.
I think I know the answer to this, but I am assuming that the reason we're stuck on the thrice-weekly in-clinic modality is purely financial, right? I mean, no one seriously thinks this has a better patient outcome than daily/nocturnal, correct?
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I think I know the answer to this, but I am assuming that the reason we're stuck on the thrice-weekly in-clinic modality is purely financial, right?
That's my take on it! I know I've seen a whole lot saying how more frequent and longer dialysis is better - and common sense tells me so. You won't see any of us urinators trying to hold our water over the weekend.
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Urinators
Is this the title of Arnold's new movie? The governator IS looking for a new job...
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:rofl; I understand there are a lot of Californians who hope the governator's new movies are about as popular as his governorship. Too bad we haven't found our Lula (http://www.newsweek.com/2009/09/21/the-most-popular-politician-on-earth.html) here like Brazil did, I'm still amazed he only has a fourth grade education! I guess you don't learn everything in school. But hey, maybe somebody like that is out there!
Anyway, I try not to let cynicism and despair get to me so I'll keep on writing, hope others might join me: Write Congress (http://www.dialysisethics2.org/forum/index.php?topic=612.0) (and it feels good to fight back).
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You can also help journalists around the country by sharing your stories and experiences at Propublica:
http://www.propublica.org/article/dialysis-inform-our-investigations
Tis the season for sharing!
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Might also write your representatives and tell them to give Senator Grassley (http://www.dialysisethics2.org/forum/index.php?topic=617.0) a nudge, a hard nudge, maybe a kick-in-the-(ok, I'll stop now).
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Wanted to wish everybody a Happy New Year!
(http://www.dialysisethics2.org/open_images/happy-new-year.jpg)
(even supplied a couple of new year resolutions from the above posts)
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OK, I'm going to start drafting my letter to my US Representative, so now is the time for all of you to let me know what your overriding concerns are. I don't want to inundate him with too many figures and with lots of references to various studies (yet). He is a new congressman, so I want to start off with a broad overview of the poor state of D in the US today as seen by an ordinary patient. I don't want to appear like a professional advocate because that is not what I am.
Let me know what you'd like me to include in my letter.